I am also curious to see what you find out. Our son will be 3 in October and has been doing what you described for a long time with the tantrums. It's not something that just all of the sudden started tho. We have always noticed his moods/tantrums to be more extreme than other children his age. He was diagnosed this past May with Pervasive Developmental Disorder which is an Autism Spectrum Disorder. He does so much better now tho since he is able to talk more and express how he is feeling. I have heard of children who have had regressions tho and have changed or when they turn 3 or 4 actually had worse symptoms for being on the Spectrum but every single child is different. I am not saying your child is autistic or even on the spectrum but it is something that just reminded me of what our son does, except its a very small portion of what we deal with. It's hard dealing with him and going out has never been something we do easily. Distractions with him are key to everything, keeping transitions easier for him are a constant battle. Just going from the car to the house is a struggle for us each day but we manage him pretty well and keep him very distracted by other things....I am not sure about her behaviors tho or what may be triggering them? Our sons are triggered by different things but mainly when he is tired or hungry I notice them worse. I will be praying for you and for you to get answers soon, I know it's hard and so frustrating not knowing but you do know your child best and know when something's not right, or I did anyways, Even when everyone else told me otherwise, I just knew something was off about him. I love him so much but knew I was right and I was! We now are getting him ABA therapy along with his regular speech and OT therapy he's been doing since last October on his 2nd birthday. He is doing so much better, we also are putting him in a preschool program with other children where they deal with typical and non-typical peers so he will be with children with a few delays and then other normal children so we are very excited about this for him. He needs to be around other children to learn how to play appropriately ect. but can't just be thrown in anywhere that doesn't know how to deal with his Moods/tantrums or his inability to play appropriately with other children so that's why thankfully we have finally found somewhere to help us. Keep me posted on what you find out. We are heading to Vanderbilt in September to redo some test on our son and pray the Diagnosis falls off by then. His ABA therapist is really trying to work with him on it!View Thread
Glad to hear he is repeating things better. SO is our DS he is starting to talk about all kinds of things and I am so not worried about him anymore and talking. He is picking it up and will be talking in sentences sooner than later i think. Keep me posted. I'll try to check in soon. Our 2nd baby is due anytime now so I may not be on here as often but will try my best.View Thread
that is so great to hear. We don't pay anything for speech at all or OT either and with his PDD diagnosis we are also able to get him ABA therapy paid for by my husbands insurance at 70% so that's a blessing as it is 2000 a month otherwise. Keep me posted on how he is doing. DS will be 3 in october and hope to start him in a preschool then.View Thread
tlkittycat1968! I am sorry i am so late replying to you all. I hope this works out for him and it sounds great ot hear you are getting help regardless. He may just be a neat case They did tell me my son was a hard case and it also didn't make me mad cause I was just finally relieved to hear somoene say he had issues ya know. I knew they were there but when nobody wanted to do anything it became so frustrating. Now we finally have a Diagnosis of PDD-NOS and it all makes sense more. I am glad you are getting help and hope the research is going great. Let me know what all things you are oding to help your child I'll try to do better updating now. thanks againView Thread
That is great to hear. They did tell me my son was a hard case and it didn't upset me either cause I am like finally someone gets him. He isn't just the ordinary normal case kid. He is very high functioning but he also does a few things that we are like good grief son. We are also fixing to see a neurologist, what are you guys seeing one for. My son twitches alot in his sleep so we are going to get that checked out and do an EEG if they feel he needs it. SOrry i haven't kept in touch and hope all is going well with you guys. That is neat they wanted him as a client, this probably means you didn't have to pay for any of the normally big cost that are involved I am guessing as well so that's good maybe. I know the test we just did was 1600.00 and it ended up insurance paid for it but not sure if most insurances normally pay for that. Also his therapy is 2000 a month and insurance will pay 70% of that as well so it is expensive for sure. Please update me when you have time. I will try to check in a lot more often now. Thanks again!View Thread
I am so sorry I just now ready this. I have been having a hard time dealing with our child who at that time was going thru major major tantrums. After a couple of months finally getting the run around we were able to get him tested and he does have PDD-NOS(pervasive developmental disorder) And he is getting ABA therapy now. I encourage you guys to talk to your pediatricians and get the Early intervention set up and they can then tell you after that what they see and if there are any red flags there for the autism. I hoep you were able to find help cbmarm777 and again i will try to do better updating now. We are due to have our 2nd baby in july and I am having contractions now so it' sbeen a rough couple of months but now we are doing much better with our son. His communication is much better and he is not having as many tantrums as before and is jsut doing much better. His play is beginning to get better as he did just scatter his toys as well and didn't ever play appropriately. He is now 32 months and odoing so much better. I hate to say he may be a different kid cause I am scared his old ways will come back how he was soooo awful there for a while but the past 3 weeks have been so much better for him and his understanding of things has gotten so much better. Before it was like he didn't get anything I was telling him and he would just breakdown. It's hard but you can do it. Keep me posted I will check back very soon!View Thread
Also the ODD is something that could very well be there and they may not diagnosis it this early either but it's worth checking into and talking ot them about. Again I wll keep praying. please update on what you find out.View Thread
I do have advice for you. He sounds very similar to my son. Look up some Autism spectrum disorders and see if he has any of those symptoms I just about guarentee you will see them in him. My son was recently diagnosed with PDD-NOS look it up also. It is pervasive developmental disorder. One of the signs that it may be autism too is he isn't talking. That is one of the first things you notice but the tantrums for us were the worst ever and going out was never an option for us. We quit. He is now 32 months and he is starting to communicate alot more and things have gotten much better. He has a speech therapist he sees 2x's a month and an OT for his sensory issues 2x's a month as well and we have started him in ABA therapy recently. I would talk to the pediatrician and voice my concerns to them. Tell them you would like to get an Early intervention set up for him if you haven't already done so. I would then try to find out as much as I could about his symptoms and write them each down exactly what he does. It is not within the normal range like you say for him to be doing those things and that is something I knew as a mom. Even him being my only child I knew something wasn't quite right with him. He barely tested for the PDD-NOS diagnosis since he is doing so much better with speech and he is so high functioning but I do feel he still needs the therapy to help with his behavioral issues. Him throwing himself in the floor was something we dealt with alot too. I would say my son had at least 20 major meltdowns a day before and then now it is down to a good 5 or less a day and they are minor. He is able to communicate more tho and that makes so much difference. When they can't tell you what they want its so hard. My son just now is putting two words together and saying a few phrases like No I not and things of that nature. but he mostly still just speaks in two words like Hi daddy( he just started saying alot in the last 3 weeks) He never told anyone Hi or bye and now he is all the sudden talking and telling everyone and everything bye including the moon and rabbits and the dogs ect. So breath and know that it will get easier with time and the right help just don't give up if you think something's not right then keep talking to ppl until somoene listens even if you have to get referrals like we did. I will be praying for you all and know this is a difficult thing to swallow. I am not saying your child is Autistic or on the spectrum but it could very well be something along those lines so read into it for sure. They won't touch diagnosis a child under school age that is ADHD trust me we've tried that cause my son is extremely hyper as well but that also runs along with the Autism spectrum disorders so I encourage you to read more and look at his symptoms and see if you can get your dr. to listen and get you someone to test him or at least start the EIP now!View Thread
My son is complicated but to hear someone else say that would make me furious. I hope you will get another opinion also. Please keep me posted on what you find out! Don't give up on getting him help if you think there is something there. Mother's intuition is usually always right. I kept putting it off for about 8 months and finally it's time. My husband kept saying he's fine he will grow out of it. So not true and it's actually gotten worse in somethings. Speech is better tho so I am anxious to see what they tell us tomorrow.View Thread
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