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Definitely post back about your consult, though!!View Thread

DS had the same surgery, and it runs in my DH's family as well. Well, he only had the one surgery.
Don't freak out when they start talking to you about whether or not the testes will both survive. Apparently the longer that they go without descending, there is a certain amount of atrophy to be expected. DS had his surgery at 9 months, and one atrophied after surgery. But he'll be just fine with only one (and was conceived via a "singlet" as well). DS will have the option of having a fake one implanted after he goes through puberty if he wants one.
As for what you should expect... bring something to help him be still during the Ultrasound. Maybe a portable DVD player? All things considered, it's a pretty routine procedure and a more common issue than people realize. Good luck!View Thread

Is your daughter on Medicaid that you could get a prescription for leg braces or a gait trainer? As for the food thing, it might just be slow going. She might be better at eating as she gets older, or she might not. The important thing is to make sure she is getting all of the nutrition she needs so that she can work on building her muscles up! I think the fact that she is TRYING to take steps is fantastic! I know someone else mentioned a push toy for walking - we had a lot of success with a Melissa and Doug wooden one - it seemed to balance a little better than the plastic ones. Also, do you have a chair she can push around on wood or tile floors? DS used to love that. Since he was considerably taller at 2 than most kids are when they learn to walk, we had to improvise a lot of things to help him. Ummmmmm... Something else we did was help him to stand up in corners and take steps to us - that was good because the walls supported him at the shoulders, and kept him upright. Have you tried some Walking Wings? That will help her to be able to walk, and you can still support her while she works those muscles. Make sure you are concentrating on smaller goals for her, and if it is going to happen, she will walk eventually. Does she cruise on furniture or walls? That's a good start.
I know how discouraging it is to have someone tell you your child will never do something (we were told our son would never speak, but he does - not a lot yet, but he's making progress!). Please don't let what any doctor or therapist says limit the help you give your baby girl. No one knows what your daughter will be capable of except her. If you want to talk some more, you can shoot me a message over on the 3 year old boards.View Thread

I agree with KatieB. I hope you can find some support in your area. Have you taken your daughter to a neurologist or developmental pediatrician? What have they said about her prognosis. Has anyone ever spoken with you about a gait-trainer?
I sense the desperation in your message, and I want to give you a hug, really. It sounds like your daughter has a tough road ahead of her, and may be on a different path than some of the other kids on this board. My son has some delays as well, so I do understand where you are coming from to a certain extent. But something my husband and I realized a while ago is that we can't just set arbitrary deadlines for him to do thing. He'll do them when he does them, and that's that. There's no reason that she has to walk before preschool - I guarantee she will get MUCH more PT there than she gets through Early Intervention, and that might be just what she needs. They will work on the eating stuff too, but you HAVE to have some trust in the therapists that she works with.
And the PP that said that the bouncer is different than walking is totally right on - she is supported in there, so it's a lot easier than having to support her entire body weight, or balance herself with her trunk. Please be patient, and continue to do her exercises. Embrace her accomplishments, no matter how small they are. If she doesn't walk ever, or eat traditional foods, you aren't going to love her any less. Good luck.View Thread

Nordic Naturals also makes a strawberry flavored oil. You can mix it with yogurt or applesauce, and your DS would never know.
You can probably order it from their website.View Thread


(((HUGS)))View Thread

The first week or so was pretty rough as far as pain management and eating issues, but truly, it was the best thing we could have ever done for him. He is much happier now that he gets quality sleep, and is a generally more cheerful child.
If your doctor recommends it, particularly if it is affecting his sleep, then my opinion is that you should do it. Good luck!View Thread

The moral of my story is that you DO know that there is an issue, and you know what symptoms to look for. Does that make sense? As scary and stressful as it is now, it really is better to know that there is a problem rather than having it be a surprise if when he is older he gets really sick from it.
I'm sorry they can't do anything about the problem now, but hopefully as they continue to monitor him, newer research will show something can be done. Also, have you considered a portable DVD player to keep him still during the scans? That's what we had to do for everything except the X-Ray. Good luck!View Thread

I agree though, that I wouldn't take my already sick child and put him around other sick kids. That's just asking for trouble.View Thread
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