It has been a while since the last contribution to this post. Nevertheless this discussion helped us tremendously in the diagnosis of our son's episodes. And I guess it can help also others since we think that in this discussion not two, but three threads are being discussed. Third is the hyperactive startle response as _Paula mentioned in one of the first posts. Our son (who started to show these episodes -stiff bended arms, turning red, holding breath, blinking eyes- from age of 10 weeks old) was also firstly diagnosed with breath holding spells and/or reflux. (In the case of reflux we were explained that heartburn would irritate the Fagus nerve and initiate an episode). To me, the breath holding spells do not seem plausible since I didn't recognize this kind of behavior as he only had these episodes while being put down and didn't seem to have any control over his reaction. After a couple of weeks also reflux as explanation seemed to be unlikely since the high medication doses of antacid didn't improve anything and he had these episodes only when he moved his head while his body remained in the same position (so no reflux possible). Once I found this post about the exaggerated startle response (aka startle disease or hyperekplexia) things started to make sense. The neurologist acknowledged the possibility of this disease since my son showed vivid reflexes. Hyperekplexia is quite rare and therefore doctors don't tend to think of it immediately. Also my son didn't show the typical hyperekplexia symptoms like the extreme reaction to a tap on the nose. After further literature study it turned out there are two startle disease forms: a major and a minor one. The minor form, which my son has, is even lesser known. Furthermore the triggers of this form may vary: my son only shows an exaggerated startle response to retraction of his head while being put down and since yesterday we found out high fever also triggers it. The neurologist's advice is to prevent the startle reaction triggers from occuring so they can eventually disappear. Mostly this happens after the age of one year. We now put him down sideways and he will get paracetamol at his next vaccination, just to be sure. Note: the major startle responses are not always innocent! Since they don't know the severity of my son's startle responses are to fever, he will be monitored in the hospital the next time. (For more information about Hyperekplexia I found these links helpful: http://www.hilaryking.net/glossary/startle-response.html , http://www.medicinenet.com/script/main/art.asp?articlekey=8301 , http://www.ncbi.nlm.nih.gov/pubmed/1622521 , http://link.springer.com/article/10.1007/s13312-010-0165-4 , http://pn.bmj.com/content/5/5/292.full.pdf)View Thread
Sometimes Doctors don't truly understand how disruptive the behaviors are....... You may want to record your daughters outburst on your phone (without her knowing), and privately show her Doctor and share your concern again.
My doctors nurse gave my daughter vaccinations. She then called us back and said she had given the MMR-V which was the wrong one. She asked us to come back. When we got there she gave my daughter the regular MMR. ?? She is 12 months old. Is this safe? My niece is 8 months old and I watch her in my house. Is there a chance my daughter will get sick or get my niece sick? Help please. Ty.View Thread
I would let him carry on with his naps. How long is he sleeping at night? He might be trying to compensate for nights that are too short for him by napping. When does school start? What will the times be like?View Thread
Have you been back to his doctor or notified her that the constipation medication hasn't stopped his frequent urination? I think that would be the best place to start as maybe she has some more ideas as to what it could be or what could help. This article explains some possible causes of frequent urination (I'm guessing that the tests you had done covered these). The 2nd page of the article has some treatment options that you might try, such as monitoring your son's fluid intake and modifying his diet so that he avoids any foods that irritate his bladder or act as a diuretic. Hope this helps! Please let us know how he is doing.View Thread
I thought of a food tolerance but it was happening so randomly, not necessarily after eating. More so first thing in the morning and at bed time. Ironically school ended Thursday and his last belly ache was Friday morning. I'm going on the theory that it was nerves or anxiety considering he was leaving pre-school and all his friends and moving on to kindergarden in September. I'm monitoring him to see if any more belly aches come about. They started a few months ago when all the 'kindergarden' talk came about at school.View Thread
My first born son had surgery when he was 24 days old and the surgery was done by a doctor who taught the surgery at Baylor. I was told the chances of it happening again were none. My second son was born and when he started showing the same signs the doctors kept telling me it wasn't PS. After constant calls my doctor set up the test and x-ray at the hospital and I took my second son in and he had surgery at 26 days old. My ped. dr came to the hospital and apologized to my husband and I and said he should have listened to me. At the time the doctor was in his 50's and had never seen or heard of a second son having PS. The odds are very great that a second son would have it but we beat those odds.View Thread
My 12 year old son went to a camp where there was lot of physical exercise during a heatwave in the 100's in our area. I was called to pick him up on day 3 due to extreme swelling of elbows and unable to move arms in the bicep area. Also a lot of pain across his chest. His 1st ck level came back at 7200. He was transported to a children's hospital on normal saline iv's. The iv therapy has continued here for 1 and 1/2 days but has only brought his ck level down to 6000. His kidneys do not appear to be affected. How long should it take to get the levels to norm and what kind of damage is this doing to his body. We are not aware of any familial genetics this could be associated with and he was not sick with any viral or bacterial infections.View Thread
Don't push and get too upset. The doctor will tell you that each child is different. Most of the time they don't suggest even starting until they are at least 2. I would maybe begin to worry if they were not showing any progress by 3. start with watching them closely and take them 30 minutes to an hr after they have a wet diaper or pullup. Let them see you go and show excitement when you go. Good Luck.View Thread
Has Anyone had mumps as an adult? I had them when i was a young child, however I a friend who is a physician told me in church this morning that by assessing me - I may have the mumps. What were your symptoms? The only symptoms I have is my left lymph nodes are very swollen and I ache all over. My joints started aching about 2 weeks ago and just felt as thought I could feel inflammation all in my body. Last night while eating some salt and vinegar potato chips my left jaw started hurting and feeling like it was swollen. As I felt it - I could feel my lymph nodes swollen. I took benadryl just in case i was having an allergic reaction or something but it did not help. just worried it may be something else.....View Thread
My daughter is 5wks old and was also born with a yellow dot on the top tip of her tounge the size of an eraser and a small one underneath it . No one seems to know what it is they don't seem worried since it doesn't effect her eating and doesn't seem to bother her. They also said it could be from her sucking in the womb. I haven't been able to find anything about it on the internet until this forum... it's kinda crazy there's no knowledge about it yet after seeing this blog it makes me feel like it can't be that uncommon for doctors to not know what it isView Thread
I'm sorry you're having a difficult time, this is a tough situation on several levels.
From your description, it sounds like the boys parents divorced when they were young. Divorce on its own is a traumatic family event. These young boys can not verbalize their feelings of upset and moving from home to home is quite disruptive.
Now, they have 2-homes, and new siblings to compete with. I don't know what home looks like at their Mom's, but if there are boyfriends - other children etc...... its a confusing world for these boys.
It seems to me that there needs to be as much consistency as possible for these boys. Their Dad should talk with their mom and work on a plan together to potty train the boys - so the same expectations happen in both environments.
If mom is doing one thing, and you're trying to do another and the boys go back and forth, I can see why nothing is working.
My sister has Skew foot also she was the first one in Mayo Clinic to have it. She got to get pictures of her...
Posted by An_263236
My sister has Skew foot also she was the first one in Mayo Clinic to have it. She got to get pictures of her feet in the Mayo Clinic book she she was proud of that.She had 4 surgery's on them but medical ankle braces help with pain and walking/ posture. ( that does not apply to everyone) My sisters feet are in the shape of a Zee. Ps not every case of Skew
foot is painful.View Thread
I'm a nanny for two girls who are 8 and 11. I love working with them and they're great kids.
However, they can be very rude, defiant, and downright mean.
This has been a pattern since I first started watching them 7 weeks ago. They are more rude to their parents than they are to me. They argue with everything they're supposed to do. The younger one throws huge screaming temper tantrums. When they argue I stay calm, use a normal tone of voice, repeat my request, and have consequences. I have never yelled at them.
The most hurtful thing though is that the older one makes a lot of catty, backhanded comments. I feel like it's hard to tell her that these are hurtful, she'll ask me why it's mean to say it.
Here are some examples: "I'm not saying that you're not pretty (meaningful pause)" "You're too blond" "Woah, your eye is crooked" (I had surgery to correct a lazy eye a few years ago) "Can I do your nails? They (meaningful pause) really need to be done"
Outside of this job I feel pretty confident. I have a loving boyfriend, great friends, I'm close to my family. But one shift leaves me drained, exhausted, sad, and crushingly insecure. Today I called the eye surgeon to see if my eyes are really that bad (my boyfriend and friends say they don't look crooked) and I was thinking that I might as well get a nose job at the same time, but...I can't afford surgery. I realized this is crazy talk. But that's how I feel when working with them, like I'm unbearably ugly and it hurts.
Their parents either ignore their rudeness or get in screaming fights with them in front of me. I don't feel like it's my place to tell the parents about it because I'm just the help, who am I to tell them how to parent?
I don't know what to do. I would appreciate any advice you have.View Thread
She was given a baby blanket when she was first born by her sister. It's small. She still carries it around the house! She does really weird things with it, too. Firstly, she named it Shnooz when she was younger, and she still refers to it as that. She says that she "likes the way it feels when it is cold," so you could often find the old worn thing in the FREEZER, I kid you not! She never brings it outside the house or to school, (she did bring it to middle school twice, one time was her first day at a new middle school and she kept it in the bottom of her bag and never took it out, and the second time was pajama day and you were allowed to wear pj's and bring stuffed animals) but she always has it around the house. But she doesn't carry it, she kicks it around and rubs it in her feet!
Is this okay? Should I tell her she needs to get rid of it?View Thread
If your baby is suffering from blue tongue or skin, weight loss, fever or lethargy, then the grunting is probably an indication of serious respiratory problems. Check with specialist one more time to confirm on it.View Thread
Dr. Benaroch, can u tell me how long should I wait? When my daughter was about 18 months old I took her to a doctor who referred the case to a surgeon and the surgeon suggested pulling apart the labia..I didn't agree bcz I read about it online. Right after we visited the surgeon the labia came apart at the time of her regular wash up in lukewarm water. I suspect her mom(influenced by the surgeon's advice) also played a part there. She had pain for a day or two. But soon afterwards the labia stuck together. This time the adhesion extended though she could urinate normally. Now my daughter is 38 months old. things haven't improved. Once in a while she complains while urinating. Just how long can we wait doing nothing?View Thread
With pool, beach, and all things sun season here, it's important to make sure that you are using sunscreen that is effective. However, "nearly 1/3 of sunscreens tested by Consumer Reports fell short of the promised SPF protection, missing the mark by anywhere from 16% to 70%, according to the organization's annual sunscreen report."
Did your sunscreen make the list? Read the article above for more information, including the top recommended brands.View Thread
Just remember that every child is different and everyone grows at different rates. Go and see a GI doctor if...
Posted by An_262922
Just remember that every child is different and everyone grows at different rates. Go and see a GI doctor if you are worried and they will either put you on some milk that has more calories (like pedi sure) or tell you not to work.View Thread
This article has some advice on how to handle belly aches in children -- it suggests keeping a diary of belly pain in an attempt to find the cause that might be a good idea (recording when it occurs, what she's eaten, what she was doing before it happened, etc). It wouldn't be a bad idea to have her pediatrician exam your daughter just to make sure the pain is not being caused by something that needs further medical attention than what you can provide at home. This article can also help you decide if your daughter needs to see a doctor. Pleas let us know how she is doing!View Thread
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