Well, she had another seizure a couple of weeks ago. She didn't collapse with this one, just started trembling after naptime in one of her arms/shoulders and I think head and lips and was unresponsive. The doctor still doesn't seem concerned enough to do anything proactive at this point, which I'm glad of. It's really stressful though, because we're constantly waiting for something else to happen. I know the poor thing's getting tired of me asking her if she's alright! Hopefully we'll get some answers soon. I've read about other children having mutiple seiures in a day or week, she's only had three, the first two six months apart, the third one a couple of weeks later. I can't help but wonder if she's got a pretty good chance of having more or if this could possibly, hopefully, be the last of it?View Thread
Thank you so much Dr. Benaroch. We are very blessed to have a pediatric neurology department at the children's hospital in the city where we live. I completely understand why we can't be seen, but as a parent, it's just really difficult to wait.View Thread
I posted a question several months ago about my 2 year old daughter having an unexplained seizure. She had an EEG and an EKG and they were both normal. There was one little spot on the EEG right before she fell asleep but the doctor wasn't concerned about it. Well, last weekend she had another one. She was playing and just fell over, stopped breathing, or slowed down enough that her lips were turning blue by the time we got to her. it took her about an hour to an hour and a half to completely come back around to being her normal self. Absolutely terrifying for us! Her pediatrician has referred us to the neurologist, but they can't see her until the end of April. We're pretty nervous, even though her doctor has assured us that she should be fine until then. She doesn't sleep that well at night, she never has. At two years old, she still doesn't sleep consistantly through the night. As far as I know we do everything right, she puts herself to sleep, white noise, all the things we've been told to do. She falls asleep just fine. She just can't seem to stay asleep. Could this be a contributing factor to the seizures? Could this consistent lack of good sleep be messing up her brain? She is perfectly normal in all other aspects. Actually a bit ahead of normal (in my opinion! ) Also, in your professional opinion, is 3 months too long to wait to be evaluated? Thank you so much for your response! EmilyView Thread
We finally got her in to do her EEG and her EKG. She did remarkable well!! The hardest part was keeping her awake. The EEG was a sleep deprived test. I got the results yesterday and I wanted to ask you a question. The EEG was fine. One little blast right before she went to sleep, but the neurologist isn't worried about it. But we've got to follow-up with a cardiologist because her EKG showed activity in the right ventricular region that the doctor said could mean she has an enlarged right ventricle. We'll have to have more testing. Now, you know the first thing I did was google this. lol What I read sounds pretty bad. Please tell me what this means.
Thank you Dr. Benaroch. Her appointment is tomorrow. I'm a nervous wreck! lol I'm not as worried at this point about the outcome as I am about the actual procedure. She's so little, and she gets really frightened by strangers.View Thread
I'm a new member, but I've often read discussions on here. I've got to wait two more weeks for any possible answers, so I thought I would see what someone here has to say.
This past monday at daycare, my 21 month old daughter had what we think is a seizure. For no apparent reason, she fell forward, on her face. The teacher rushed to get her, and she arched her back and got very rigid and stiff. She was unresponsive and the teacher said she was making a gurgling noise. Her tongue was hanging out. By the time she got the daycare's director, my girl was awake and crying. She was sleepy afterwards, but within an hour she was completely back to baseline, playing and seeming fine. She has never had any health issuses or developmental issues, she wasn't running a fever and she wasn't doing anything out of the ordinary when it happened. She is scheduled for an EEG and an EKG in a couple of weeks. What could this mean? How likely is she to have another one? Epilepsy does not run in either of our families. Thank you so much for any responses! EmmyView Thread