Hello, I'm looking for some advice. My almost 11-year-old is having severe pain in her head and throughout her abdomin. She was diagnosed with Lyme in February 2010 (about 6 months after symptoms began), and was treated with 8 weeks of antibiotics. Her symtoms (headaches, joint and muscle pain, stomach pain) mostly got better, however the Lyme had triggered migraines, so the headaches and stomach pain continued.
Since then, she has been treated twice more for recurrance, each time with a 4-week course of antibiotics. However, the headaches and stomach pain is not getting better. We have been to infectious disease specialists, neurologists (MRI & EEG are normal), gastroenterologist (no reactivity or intolerances detected from bloodwork and h. pylori test).
She had headaches and stomach pain over the summer, and while they slowed her down, they lasted only a day or so. However, she currently has a headache that has persisted for 4 days with the accompanying migriane "dots" and a stomachache that now ranges from just under her breasts to her hipbones. There is no fever, and she had a bowel movement last night.
I am aware of Dr. Martin Fried's findings that the Lyme bacteria can colonize the gut where it is insulated and ends up causing Chrone's like symptoms, but we keep hearing that the Lyme is under control.
Last year she missed over 30 days of school and I have had to leave a my job to care for her -- and yet when she is not in pain she is a happy, active pre-teen. I don't know how to best advocate for her, or what else to try to help her. Any advice?View Thread
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