This has also happened to my son. On 4 occassions (between the ages of 5 and he woke up in the morning unable to walk but able to get around on his knees. Like your son at the end of recovery he would walk on tip toe. Only on the last attack was a blood test done which revealed a CK of over 4000. There were worries of MD but a further blood test was repeated two weeks later and fortunately the CK had gone back to normal. We then saw numerous doctors and had a number of tests but never got an answer to the problem. A potassium deficiency was suggeste;, the last doctor we saw favoured the viral theory. The muscle biopsy was suggested if he had another attack as otherwise he is fit and healthy. He has not had an attack for 2 years but the last couple of weeks he has complained of leg aches, tiredness and headaches. The doctors did another blood test but CK was ok however I am still concerned. I hope your son is ok, and just wondered if the muscle biopsy revealed anything or if you have gained any more information on this condition? Many thanks.View Thread
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.
Do not consider WebMD User-generated content as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.