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Depression Takes a Toll on Parkinson's Patients
As a patient or caregiver, have you found this to be true? If you have faced depression, how are you managing it? (therapy, medication, lifestyle changes like nutrition or exercise, etc.)
HaylenView Thread
I also live in Maryland and I worked as a nurse in this state for over 30 years. It was always my experience that the Advanced Directives carry considerable weight, especially if the physician and facility believe in them. Don't give up. Your mother is fortunate to have you working in her behalf. It's so sad that as a population, we consider our pets' well-being more than our humans'.View Thread
Also thank you Sparky for your response and getting the info out of me. I hope if I stay at a low dose I will not fall asleep from the agnostic but will look out for signs of extreme sleepiness.
Thanks again!!!!View Thread
Thank you for your note. It would be unusual for a DatSCAN to be abnormal, and I would encourage you to talk to your neurologist, and actually look at the scan. Here is a link to a presentation to the FDA, but the first slide shows the difference between a normal and abnormal:
http://www.fda.gov/downloads/AdvisoryCommittees/CommitteesMeetingMaterials/Drugs/PeripheralandCentralNervousSystemDrugsAdvisoryCommittee/UCM186404.pdf
If your scan looks abnormal, and your neurologist does not think this is parkinsonism, consider asking for a scan to be repeated - perhaps you are the "one in a million" that had a false positive result and the next will be ok.
If your neurologist does not think you have PD, ask him about other conditions that can produce this result, and if one of these could be the diagnosis. Please know, I am not sure I would have the answers to these questions in an office visit, and would likely suggest watching to see how this evolves. Do not give up on your doctor, if this is the response.View Thread
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There are a few discussions that must occur for not only your peace of mind, but his. Ask your son to share with you everything that the doctors have told me about what is going on. I assume he has put you down on the HIPPA form as someone that can be told this type of information. If not, it MUST be done. The other discussions should be done with the health care professionals that are in charge of his care, namely his MD that told him hospice or home. This is usually a choice given to someone who is terminally ill.
Does any home health agency come to the house to help with monitoring of his condition? Having no idea what type of insurance your son has (or his previous medical condition), I don't know if he has a Case Manager associated with his insurance. If so, this person (usually a nurse or can be a social worker) should be able to guide you both through is maze and figure out what is going on. Any follow up physician visits after being discharged? If so, you need to go into the room with your son so that you can also hear what is being told to him.
There are so many unanswered questions here. It sounds like there is a bit of work to be done, and as quickly as possible, to find out what in the heck is going on. I hope this helps you.View Thread
After all of those tests were done, I was put into cardiac/pulmonary rehabitlitation My heartrate has been high ever since I had my severe symptoms that had me in the hospital for a week...could hardly walk more than 10 feet before I couldn't breathe. Anyway, the rehab did absolutely nothing more than frustrate me even more. i would develop the same old symptoms, but with no changes seen on the cardiac montitor. I got the feeling that the nurse and techs thought I was pretending at first, but then they noticed how pale I would get and how short of breath I became.
So, until my Cardiologist and my Neurologist started to connect the symptoms, we had NO idea that we were dealing with Parkinson's. It took over 5 years for us to get the diagnosis and then having it confirmed at a very large and respected Movement Disorder Clinic at a major teaching hospital.
Seems to me that shortness of breath and mid-level chest pain need to be considered possible symptoms of Parkinson's.View Thread
I know little or nothing about this disease at all. The neurologist that saw me wasn't even the same guy that I was scheduled to see. All he did was confirm that I had it, he asked me if I had any questions which I was just too floored to think of any, and that was it. I've used WEB MD for other things so I thought I would check but I'm still confused, VERY uninformed, and I have to tell you, very scared at this point. I'm totally on my own here so please forgive my asking so many questions......but I need help FAST.......View Thread
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Patient confidentiality and data protection is a big business, and I think it is quickly coming up to a point where your fears can decrease. As we learn the culture of the electronic record, we are all going to be more comfortable with providing our health record data in private and protected fashion, and we will quickly develop methods to allow sharing of our limited health data sets. Nonetheless, a motivated hacker seems like a difficult thing to stop.View Thread
I found this nice tid bit of information that you may want to check out...maybe for some it would explain why they are in limbo land for so long....see what you think.....View Thread
wView Thread
wView Thread
Thank you for your note, and simple question! I would agree that this is a time of great of unknown for the health care system in the United States and in many other countries. In the United States the health care system must undergo many changes to care for our people. I am not sure this can happen strategically unless we begin to speak the same language and be on the same page. I think many of the things you describe may represent the pain points of all the stakeholders to live on the same page. From a physician standpoint the profession has changed from an independent small business model, and I suspect your neurologist was at a point that he or she could retire rather than shift to a new standard. I think 5 years from now we will see a different system, that makes sense in a long term, resource-limited environment. I also think it will be better, and doctors and patients will not feel like we are the last stakeholders to be asked to the table.
I also do not plan to stop practicing medicine - and appreciate your tact!View Thread
The only area of medicine Dr Stach covers is Parkinson's.
If you do not like the diagnosis of sleep apena you may want to get a second opinion. If you are over weighy you most likely have sleep apenea. This would account for your fatigue. If you are considered obease try and loose weight. This will help with the sleep apnea and fatigue. I can not help with the dizziness and involuntary movement of your arms and legs.
wView Thread
It is hard to know how your physician came to a diagnosis from the examination you describe. I look for the presence of tremor and difficulty with performing rapid movements - like finger tapping or opening and closing the hand. If these are slow - or one side is worse than the other, I will look for "rigidity" or a stiffness of the limbs. I will then look at walking and balance, but this symptom usually comes later than the others.
I would suggest asking your doctor about these, and whether you should see a neurologist.View Thread
Thank you for your note. Given that the Heart and Lung tests are normal (that's good!), I think it is very likely that this is related to PD. Because it occurs in the morning, I think it may be from low levels of medication in your system, after a night's sleep. If the symptoms ease within 30 - 60 minutes after taking your first dose of carbidopa/levodopa (Sinemet), I am almost sure of this.
You may want to talk with your doctor about how to rearrange your levodopa dosing schedule or adding additional medications to avoid this symptom - called wearing off. Other symptoms of wearing off are listed in a questionnaire called the WOQ-19.View Thread
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