I am in Stage 3 I believe, and have noticed that i am over sensitive to all kinds of things, like noise, walking into a dept. store and being overwhelmed with too many things to look at...things like that. I think it's pretty "normal" for those of us with PD.View Thread
my mom is also having pd since last 4 year,and now since one year she is also having the problam of cramps in both lower leg.we have consulted to our neurologists and he advised tab syndopa plus 3times a day and at bed time tab syndopa cr 100/25. and tab reselazine 0.5mg after breakfast. now she got some relife.View Thread
I am a 46 year old mother, diagnosed some seven years ago with PD. I am managing so far without any medication, side effects concern me as I am a single mom of two. Lately, aside from slowed down movements and freezing, I am noticeing a discomfort around my vocal cords and throat area, some fatigue speaking. Can anyone shed any light on this for me? I am scared. I have scheduled doctor's appt. and I am considering meds.View Thread
My husband who has PD, has for years experienced pain right below the rib cage more dormant in the day, raging at night and the levodopa seems to aggravate it. It also seems to have a twisted pattern in that some months the pain subsides significantly then starts again. He is doubled over walking the floor all night and part of the day. No sleep at night and only between 3 hr intervals of Meds, repeat cycle, drained, depressed, tried everything we &Dr. know. Can you shed any light on the matter?View Thread
Thanks for the info. My Ayurvedic doctor has suggested that I take 1tsp 2x daily, cooked into food if possible for better absorption. I'm not having much luck with it blending into the food well and am now putting it into morning smoothies. Any cooking suggestions would be welcome!View Thread
I checked the local library. One book we have found helpful is "Parkinson's Disease 300 Tips for Making Life Easier". Many tips are for more advanced disease than the stage where my husband is now, and it seems to be a good resource as it progresses.View Thread
Unfortunately there isn't a way to upload a video right into your post. However, you can upload a video to a video-sharing website like youtube or vimeo and then post the link here. Have you seen a doctor about the symptoms that you describe above? He/She would be best able to give you a diagnosis after an exam, viewing your video and some possible tests. Please let us know how you are doing!View Thread
My dad (80 years old) has been dealing with Parkinsons for the past 8+ years. He fell down in January and had a partial hip replacement. This has affected his mobility. He walks, maybe 20 steps at the most. Lately, we noticed that his legs were swollen. When we took him to the Dr, he ordered ultrasound and it came back with "Acute Thrombus".
I have read that exercise, walking and massage can help to improve blood circulation. A physical therapist helps him with exercise, but it's all very limited. I am looking for advice from the experts here.View Thread
I am sorry to hear of what has happened to your father. Here are some frequently asked questions about Parkinson's that addresses the differences between essential tremors and Parkinson's. This overview on Parkinson's does say that "if you don't respond to the drugs used to treat Parkinson's disease, it's possible you may have another type of movement disorder that causes the same type of symptoms. Doing additional tests can help your doctor determine if some other problem is causing your parkinsonian symptoms." It may be a good idea to get your father a second opinion if you haven't already and you believe that his symptoms are not the result of Parkinson's. Please let us know how you and your father are doing!View Thread
For a few months I have been concerned about the possibility I have PD. My concern started when I seemed to have developed more shaking in my hands (I've never had the steadiest hands around), which made me remember a few incidents from a few years before. At that time, on 3-4 occasions I recall that while I was walking I had difficulty moving at my normal pace, as though my legs were stuck in thick mud. It was a struggle just to take small steps. Then the feeling would pass, and it has not recurred since then. There are times when my right leg feels weak for a brief period, then it passes.
For a couple years, I have experienced frequent leg cramps in both legs, and last night my right leg felt painfully tight. Also, when I lay down to sleep, or nod off in front of the TV, I often jerk back to wakefulness, sometimes more than once.
I also have occasionally had momentary, infrequent balance problems and for a while a year or two ago was having occasional lip numbness/tremor.
About three weeks ago, while sitting down with my feet up, I had a terrible pain in my lower leg, ankle and foot, somewhat like a cramp but it lasted longer and felt like that whole area was being twisted as if it were an item of wet laundry being wrung out. It only happened once.
Except for the leg cramps, jerking awake and occasional leg weakness, each of these symptoms has come for a short period and then gone for months or years.
My question is whether this type of pattern of symptoms is consistent with anyone else's experience with PD. Raising the issue with my doctor could have all kinds of implications, not the least of which insurance issues, so before I go down that path I would very much appreciate hearing from others who may have gone down a similar path.
Thank you for reading and for any help you may be able to provide.View Thread
Three peoples experience with The Helen foundation at: scamorg.com/helen-foundation-43 . One story there is by a person who was an employee and worked for a year with Dr. Stenberg (retired University of North Dakota chemistry professor), Ernesto Gallegos (car salesman), and Debbie Malone, the nurse who advises you while you are in the program and is an unlicensed nurse. Sorry, sounds like a very expensive and potentially life threatening lesson in how to lose $7500. Cortisol medication has a long list of bad side effectsView Thread
My mother has been taking medications given by her doctor for parkinson's over 5 years now. It has caused a number of side effects including, insomnia, loss of appetite, and stomach pain which has resulted in a significant amount of weight loss.
If anyone knows of any natural alternatives to help with parkinson's , please let me know. I would appreciate itView Thread
Hello. My name is Donna Dee , I live in Daytona beach Fla. I am 65 and was diagnosed 8 years ago with P.D. I would be proud to help you study this disease.I live in an assisted living facility so I have LOTS of time to help.View Thread
I never thought I would find others with basically identical circumstances.
My father is 82 y/o and lives with me (I am his son). He has PD and dementia.
Over the past 2 months he has began to cough during the night, so much so that I cannot sleep.
It is a strange elongated cough, followed by a yawn. It happens mostly during the night, but oddly when he sleeps during the day, it does not happen.
I should note that he drools extensively, and has problems swallowing, but this has never affected his sleep time before.
Anyway, I have tried everything to stop the cough. I have bought a hospital bed, specifically to raise him from his waste as he sleeps, I have used Nasonex for post-nasal drip, I have changed bedrooms (in case of allergy), I have used different air-conditioning settings, and I have tried a host of cough medications.
I have found only 2 things that have worked however. The gas heater reduces the coughing down to about 20% of the usual.
However Nurofen Plus (Codeine Ibuprofen) shuts his coughing down completely, at least for the night.
The downside is that it gives him constipation the next day.
I hope this is helpful to all the other carers who will no doubt find this topic one day after they too get bamboozled by this very distressing complication.View Thread
Here are some tips that I found from the National Parkinson Foundation to help alleviate swallowing problems. Most are related to wallowing when eating, but they may be useful (especially the bit about sleeping with head raised):
Drink frequent sips of water or suck on ice chips during the day and before meals to help increase swallowing and thin phlegm;
Reduce sugar intake, as sugar increases saliva;
Suck on sugarless candy or chew sugarless gum for temporary relief from drooling;
Take smaller bites of food, chew food thoroughly and eat slowly;.
Sit upright for at least 15 minutes after eating;
Take small sips of water or beverage when eating;
Sit upright with head slightly forward when eating, drinking and taking pills. Tilting head backwards can increase the risk of food or liquids going into the lungs. If a glass is half empty, refill it;
Maintain an upright posture and keep chin up, because a flexed neck or stooped posture exacerbates drooling;
Rinse mouth after meals;
Eat softer foods, pureed if necessary;
Drink tea with lemon or carbonated beverages to help thin phlegm;
Avoid dairy products, as they can make phlegm worse;
Drink thicker liquids, as they are easier to swallow, because they do not go down as fast;
Moisten dry foods to make them easier to swallow; and
Have they ever tested you for mercury toxcicity? it will be found in the hair.. if you have been around spays like fields of corn or other toxins also..how many silver fillings do you have in your mouth..I went through hell with this until some nurse at a mental hospital refered me to a Dr. in Colorado springs that help me.. just look it up and see what you think... I was being poisoned by oats from the feed this ranch was giving their brood mares..also had a mouth full of fillings.. I had the same symptoms as you..View Thread
Hi jwp86....has John had any physical therapy in the hospital? It sounds like at the very least he needs to have some gentle range of motion exercises done while he is in bed. The Dementia is adding to the problem I have no doubt. I assume before he went into the hospital is was walking?View Thread
What kind of problems are you having? Inability to initiate urine stream? Inability to empty bladder completely? Incontinence? Frequent urinary tract infections (UTI's) ?
Yes, PD does affect the bladder. Remember that it is possible for PD to affect any muscle or body system in our bodies. It is a disease that causes interruptions/stopage/misfiring of the nerves that control those muscles. Make sure your Neurologist is aware of your issues.View Thread
Oh my...sounds like things are really tough for both you and your husband! You both need to be in counseling and on antipressants, at least for a little while. Is your Neurologist aware of the problems at home? Does your husband go with you to see him/her? He needs to be part of the whole picture.
Also, are there any support groups in your area? Often, there are disease specific groups for patients (and even their caregivers) and there are often groups just for caregivers. Sounds like he needs to vent and realize he isn't the only one in this situation.
I am so sorry you are going through this. It's bad enough having the damn Parkinsons.View Thread
My dad who is 80 years old has been dealing with Parkinsons for the past several years. Recently he fell down and had to go thru a partial hip replacement surgery. He is recovering. Although, his Parkinsons symptoms are worsening rapidly.
I have read about the alternative medicine and learned that Acupuncture can help relieve the stiffness. Has anyone tried this? I would love to hear your feedback.
I just want him to be able to get up and walk. Rightnow, he is almost bed-ridden which almost sounds like Stage 5 (last stage). He was able to walk with the help of physiotherapist about 2 months ago, a few days after the surgery. It does not make sense to me that he can not walk all of a sudden. He has been taking Syndopa (cinamet) for the past 5 years.
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