This just started for me. I was diagnosed almost 5 years ago. If someone walks up on me, my husband walks in the front door, or a loud noise I really overdo it in my response. I jump up and am terrified. It must be all part of the anxiety which for me was brought on by the PD. It is upsetting for me but when it involves another person I do not know that well, it is very embarrassing. Oh well!View Thread
I still work and I've not been able to figure this out. I know they say short-term would be so that I could get my medicine adjusted is the major one. My dr. won't sign anything. I would talk to my HR people. My people have been terrific in regard to family leave for helping to take care of my mother. If you feel you cannot perform your job I would bring it to their attention and see what they say.View Thread
I have pd and I go to a website daily strength.com which has not only a pd discussion site but a general discussion site for Caregivers which I found very helpful because I am a caregiver to my mother who has vascular dementia. Also the NPF has the most awesome caregiver discussion and help. Good luck. Also local hospice organizations have caregiver discussion groups which are very helpful - even though you hubby is not at that stage you get a lot of good tips on taking care of yourself. I know I forget my own meds and forget to make my own drs. appointments when my mother comes first all of the time. It is like the stewardess talk at the beginning of the flight - I have to put my oxygen mask on first and then put it on the person that is depending on me.View Thread
I was able to buy it through my job. My job offers long term insurance (fully paid for by employee) and each year in January they have open enrollment no questions asked. I was able to get it that way. All the information I found prior to that was that because of my PD I would (1) be denied and (2) if I could get LTC it would be so expensive and a total ripoff.
Good luck. Another option is to have enough assets to pay for my first two years at the nursing home I choose and once my assets are depleted the nursing home will put me on medicaid. I have to make sure and discuss this with the nursing home prior to my placing myself there. LOL or my kids. I mean I don't want to go to a nursing home that kicks me out once my income is depleted.
People are always saying to me - don't worry about that - you don't how you will be when you get that old, I'll probably die with PD not of PD. I just tell my kids - I'm trying to worry about it now so you don't have to worry about it later.View Thread
Yes, it is very normal. I take meds and that helps and now it only happens when my meds are wearing off. Good luck to you and welcome to the parkie world. I try to be grateful that we have a disease that gives us time and the ability to make decisions of what will help and what will not help. Most people with diseases do not have those most important elements.View Thread
I do not know if it is swelling and fluid retention or that I just have been eating too much but I have expanded since starting on my pd meds about 3-1/2 years ago. I take azilect, sinement and neuro patch.View Thread
I have pd and I have pain from rigidity. It is in my neck, top of arm and feet and my hip (on and off) all on my left side which is the pd side. The meds usually relieves the pain and if I forget to take a pill that is one of the first symptom that comes back until I take my meds.View Thread
I don't know if you are on meds or not. Until I went on the meds I had inside shakes and sometimes when I have an off period from the meds I still get inside shakes. Its not your nerves it is the PD. Ask the Mayo dr.View Thread
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