Hi LD, I didn't want to take medication either but I work and type a lot on my job and my 3 left fingers were so stiff it was hard to type and I was very slow, also had a lot of pain in my left arm from the stiffness, and terrible blurred vision when facing the puter screen for long periods. Once I started Azilect all of my symptoms except the tremors cleared up for about 6 months. But other symptoms that I didn't associate with PD cleared up as well such as depression and anxiety. After 6 months of Azilect bliss the rigidity and blurred vision returned, but most noticeable was the depression and anxiety were returning. So in 9/11, I started on Sinement. My dr. prescribed one tablet 3x a day. I read on another pd support site that someone took 1 tab in the morning to get going and then ½ tabs 4 xs for the remainder of his day. I tried that except I do ½ tabs 2x a day and it is working out very well for me. I'm not over medicated and I can do things without pain. So this is where I am at now — who knows about tomorrow. But I am very grateful for my medications. Without Sinemet and the Azilect that I think helps with the distribution of the dopamine that the Sinemet makes I would be unable to work. Good luck.View Thread
I know - everyone sees the tremors. At this point in time the tremoring is the symptom that bothers me the least. Blurred vision really upsets me and the pain from the rigidity. Have a good day.View Thread
Hi, I am in stage 2 pd and have been diagnosed for 1-1/2 years. I also have a stiff mouth. I have problems speaking sometimes. It was really bad before I started taking the Azilect then Sinemet. At this point in time the meds help me a lot so I am lucky. I also have to watch the gagging or excess saliva and swallowing. I went to a speech therapist who specializes in PD and also had a swallowing evaluation. They both said I wasn't that bad yet and to not be concerned. Well it is upsetting to wake up coughing because excess saliva went down my wind pipe. They gave me some exercises to do but like I said I am lucky because the medicine helps. Also I try to not lay on my back.View Thread
I am Deb and live in NJ and was diagnosed with stage 2 PD 7/7/10. I started looking at WebMD shortly after being diagnosed and really appreciate WebMD and Dr. Stacy for all of the information, tips, etc I have received from this site. I also thank all of the other people with PD who have shared their questions and information. I am also very active on another online website - Daily Strength - I love it there too I work full time and the support groups in my area for pd are all held in the daytime so I unable attend. I am in my early 60s, a wife, mother, grandmother, aunt, cousin, friend, employee, and down at the bottom of the list (at this time anyway) a person diagnosed with PD. I take meds and exercise to help control the symptoms of pd. I never make a decision re my treatment in dealing with pd before consulting the posts present and past on WebMD and Daily Strength. Thank you all for being here and sharing.View Thread
WebMD is a good site - I really appreciate Dr. Stacy's help!!!! I was diagnosed 7/7/10 with pd. I go to a support chat room for PD in Daily Strength. If you want to learn how to live with pd it is a great site. We all share a lot about pd, life and try to look for the funny part of PD. One note - when you setup your user name please make it anonymous because you can be searched on the web under your user name. They have other security settings you can setup as well.View Thread
Hi Dr. Stacy, Sorry, another question but do appreciate your help. I was having a discussion with someone else with pd and she thought that once one starts with the dyskinesis from the Sinemet it will not go away even if the Sinemet would be stopped. I think I have read that if the dosage of Sinemet is reduced the dyskinesis will be reduced or if DBS is done and thus a reduction in Sinemet the dyskinesis will be less or will cease.
Also, do you think long term use of the herbal form L-Dopa would also cause dyskinesis?
Thanks again Dr. Stacy for your help!!!! Only a year diagnosed and I wish I could put my head in the sand and it would all just go away. For 6 months the Azilect seemed to relieve all the symptoms but now some of the symptoms are breaking through.View Thread
Dr. Stacy can you explain to me why these symptoms happened and then disappeared. About 2 years prior to diagnosis I noticed jaw tremors that lasted about a year but stopped when my hand tremors started . About a year prior to diagnosis 3 times my right leg froze when I started to walk and I had to coax to walk and then for about 2 months only, I would wake up at night because I was having trouble turning in bed — but that stopped. Why did these symptoms happen and then go away. And these symptoms disappeared on their own before my knowledge of mine having PD and without meds. Not complaining that they went away but trying to understand it all. I am 62 and when 61 I was diagnosed with PD. The tremoring is my left hand, left leg and foot started in 2/10/11 diagnosed 7/7/10View Thread
I oftentimes feel the same way. I like how your husband explains it as it feels like he is wearing a hat because that is exactly how it feels. I thought I must be crazy - just because I have a nuerological disease doesn't mean my head should feel so strange. Thank you for posting it is always good to know that someone else feels the same way!!!!View Thread