I was diagnosed with PD eight years ago. Recently I have been experiencing my head turning tightly to my strong side as I sleep resulting in a painful cramp on my weak (left) side when I wake. Is there any remedy for this?View Thread
I have recently moved to a supportive living facility and discovered a marked improvement in the physycal sypmtpms of my disease.I previously lived in a high rise condominium in the depths of a large city. My current abode is in a more rural area, and the facility contains many large spaces.Also, my symptoms have varied widely with the changing of the seasons, and the quality of the weather over a period of time.My PD is classified ideopathic, however at various times in my life I have experienced extraordinary stress. I was diagnosed eight years ago at which time I exhibeted extreme tremour and have, at times, suffered long bouts of dysconesia of which there is not trace now and has not been for at least a year.Lastly Parkinson's is supposed to get worse as time goes by. I swear my physical symptoms are improving. Psychiatric difficulties are, however another matter. Is it possible that I have been misdiagnosed?View Thread
My dopamine replacemernt therapy has included 200mg of Comtan with every dose of sinemet for eight years. The Comtan seems to have some psycoactive effects although I am informed it is only suposed to delay metabolism of the Sinemet before it reaches the brain. Is there any benefit to reducing the Comtan or eliminating it at this point in my treatment.View Thread
My searches on the internet have revealed that a small number of patients taking Dopamine Agonists may develop sensitivity to the drugs resulting in severe behavioral probllems similar to bi-polar 1 disease. However the reports are not easily interpreted, and seem to me, to refer to a single study. How much research is actually going on regarding this? Is there an approved diagnosis? What can you tell me about this?View Thread
Just over eight years ago, at the age of 49 I was diaosed. I had to take disability after only two years, The second two years were great. I attended scool and kept busy, The third two years saw my wife and I drawing apart as I became more home bound and she maintained a normal social and prof life, The last two years were a downward spiral, I felt that my codition was worsening and my isolation was inreasing geometrically. At the beginning of 2010 I began showing signs of dopamine dysregulation syndrome, and my wife and I agreed that i should move to assisted living. That was two weeks ago and I feel GREAT! The cramps and stiffness have abated and i am using half as much Sinimet as I was at home. as to the tye of PD that afflicts me, my syptoms manifest themselves with profound weakness in my legs and occasional (sometimes exremely paifnul) cramping Any Ideas?View Thread
I am not a doctor, however, I was diagnosed seven years ago with the disease at the age o 49. My experience has been that both the syptoms and progression of the disease is differernt for every individual. As such, doctors are reluctant to render a prognosis. One reliable, but expensive tool is a PET scan to see how advanced the disease has gone, however, many insurance companys will not pay for Parkinson's patients.
Money is certainly a major consideration, the inescapable fact is that if you live long enough,you eventually end up on medicaide, and my therapists tell me horror stories of people who survive past the medications ability to aid them. The question is how to make the most of the time that you have given the resources that you have. My luck was pretty good for seven years, until my system developed an intolrance for the agonist therapy, then it went downhill real fast. If anyone out there has some experiences to share, we'd sure appreciate them.View Thread
my original query was made at the very begining of the depakote treatment and I was up to 14 sinemets a day. It has been three weeks on the depakote and the sinemet was reduced to 12 tabs perday. My mental condition seems to have returned to the state it was before I was taking the sinemnet or the reqiup, and absolutely no dyskinesia, however I cannot walk, I use my jazzy chair to get around although I can stand and shuffel shortdistances allowing me to use the bathroom and the shower. Can my meds be tweeked to find a happy medium? Is there any chance of reintroducing a small amount of an agonist (I have heard of this being done). Is deep brain stimulation idicated, although my research does not reccommend it for patients who have shown a suseptibiliy to DDS.View Thread
Thnak you worn1 for your kind and thoughtful response. My wife has been the only person in my life for seven years, and, of course, she has a lif of her own. Married 26 years we have no children, and as for support groups, the nearest one for early onset PD was in Lisle. As for my 'manic episodes' I have discovered that the virtually dissapear with the elimination of major stress, the source of which was my deteriorating relationship with my wife. Things are not perfect but we are cooperating to find a situation for me. I hope that people reading this will appreciate the need for advance planning when a loved one has a disability or deteriorsting condition and there is a dearth of experts out there to seek advice from.