I talked with my ophthalmologist about my blurred and double vision, I thought I just needed a new perscription, but he told me I have Oily eye? I also told him about haveing trouble while keeping my eyes fixed on something close my vision shuffels objects around and sometimes blends them together . He didn't have an answer for that....View Thread
I believe that not many patients get depressed after the initial diagnosis, I'll bet most even get a sense of relief with it because they know something is wrong and just the need to know is very strong thing . I think frustrated and or stressed would best describe most patients going through it, but may develop it while the symptoms progress to the point where they get a reality check because of the frustrations with doing every day stuff... are now gone.things others take for granted are not possable for them any longer...That's hard to deal with. Thier loved ones are probably the ones more likely to be depressed while even going through all the testing and watching thier loved ones struggling with thier condition. and watching them loose thier dignaty and pride and sense of self worth day by day as they struggle through it.I know that has got to be really hard on them. They most likely have way more issues on thier shoulders than they can bare.....View Thread
Let me start with I had a new appointment with the neuro's at the V.A. and I'm not sure what made the differance , Mentionng I.G. or just talking with the P.A. again but they had a new out look with me. The new Neuro was demanding to know from the student doc why I wasn't tested for things , He didn't have any answers for her and had me scheduled for some long over due tests like lumbar puncture and a work up for Gluten Ataxia...?
It also may have made a differance with haveing my wife's uncle there sitting next to me and writting everything down because they were really checking him out during the visit....even looked a little concerned about what and why he was doing it. But I also found out that the Hospital is currently under an I.G. investigation and I think that is more likely the case why I seem to be treated with a little more concern....I don't care either way, This has got to be figured out soon because this is really getting worse and still no answers.
The new Neuro agrees that this has gone on way too long with out any answers ...but then again I have heard them say all that before , so i'll have to wait and see where this goes. Maybe all a show because of the investigation but ya never know...I appreactate all the advice and guidance...It was a great help to know that I still can go to the I.G. if I have to...and that may still have to happen....I hope not..View Thread
I have also submitted the claims and have been waitting now for over two years,and have yet to have the Video hearing and has been explained due to the such high volume of claims being processed at this time. Yes we have appealed and appealed on the claims thats why we are waiting for the video hearing.We do get letters every month telling us that they are still in the process of scheduling hearings and haven't forgotten us but we have been put on the list for hearings and to be patient due to the high volumes of claims submitted. This process may take several years before you get any results from the claims you have submitted. as we were explained to us by the V.A. commision, and not to give up because so many Vets give up due to this long process.View Thread
I was also Desert Storm Desert Shield, According to The Enviromental Sepcialist at the V.A. Hospital where I am now beeing seen says yes it could very well be. But hard to prove, and it has to be undeniable proof as well. Although just like A.L.S Parkinsons is considered a presumptious condition for what ever that is worth, because of plauseable deniability and Difinnative proof that you even have it. Check with a V.A. rep.I have been trying to get this service connected now for two years and to no avail.....And Oh yeah the study for Enviromental exposures for Desert storm Desert shield Vets. has ended.View Thread
I have tried to get seen by another V.A. hospital, and got told that I have to use the one I have been going to something about Zone's and regulations that they follow. I have contacted my senator and my congressman about my case and both have been stone walled and both have told me that they have exhausted thier options with the V.A. hospital and basicaly told me there is nothing more that they can do from thier end. I have talked with the Head of Neurology Case manager at the Hospital to no avail, I have talked with the V.A. Patient rep. and got no where. I have tried to request a second opinion or to be sent to another Facility cavillian or V.A. directly with the Neurology Doctor but that got us a poliece escourt out of the hospital. I don't know how much squeekier I can get,,, I did call that number from the I.G. That you mentioned and thanks for that,and have been told to try the Patient advocte again. so I called them and I explained everything to her about what is and what went on with me and she seemed like she is going to get some real answers especially when I mentioned that If this is going to continue in this manner I would have no choice but to go to the I.G. about this. I also explained to her about everything that has been going on with me and how things have been going as far as treatment or diagnossis really makes the hospital and it's staff look real bad. I didn't just wake up one day and say, I think I'll just go to the V.A. hospital and mess with them because I have nothing better to do.and waste the gas and the entire day just to be seen by them.not to mention going through all those tests, especialy getting the two blood clots from them.I also told her that I am getting S.S.I. and because I had to appeal it all the way to a Hearing the Judge awarded it because of what she saw me and how this effects me,and because of the lack of trestment and lack of a Diagnossis from the V.A. and when I told her everything about my case she was really appauled abot the whole thing. I have to say I know about the I.G. while I was active but didn't think I had that option now that I'm inactive.So thanks again I think this gives me a few more options and jsut maybe this will get the ball rolling again.View Thread
Once again all that you have suggested I have tried and because it's the V.A. hospital that we are talking about here.They tell ME what's wrong and How I'm feeling,and what they are going to try.I Have no say in it all and tell ME if they are going to do anything at all. If I suggest any kind of treatment or Diagnossis I get told No, it's not that. I always try to find out what has been ruled out and what was tested for but never get any answers.
Patient advocates ? they Listen to us, Me and the wife,write down what we say but nothing gets done or is ever talked about after that. I have tried to request a second opinion and to see outside help but get denied. You see the V.A. has to approve it before that can happen.We have asked for refferals as well but Denied. The neuro I am seeing tells me my A-Typical tremours are highly Entertainning and that I.m too young to have Parkinson's .
Then I ask her why all the other department's that she has sent me to for testing always ask me what stage of parkinsons I'm in or even tell me that they think it's Parkinsons as well. I have tried to reason with the Neuro and tried and asked what they believe it to be and try to keep an open mind about some of the many things that they tell me but it just don't fit with the symptoms, like Migraine without headache, Or even a vestibular Issue, Because Like I was explained over and over,
I would at some point or points with a Vestibular problem you would Have or be without symptoms because the body would be able to adjust to relieve some if not all the balance and dizzieness issues. and like they tell me there is way more symptoms happening to me that dosen't go along with a Vestibular issue and that it's progressing not stableizing.
This has been going on with me 24/7 365 for four years now never stops.I can handle the pain and muscle cramps and all the other symptoms but the Balance and dizzieness issues really makes life hard to function.View Thread