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Parkinson's Disease Community

Includes Expert Content

Reply: Vision problems

I talked with my ophthalmologist about my blurred and double vision, I thought I just needed...

Posted by lepman

32 Replies | Reply | Watch This DiscussionReport This| Share this:Vision problems I talked with my ophthalmologist about my blurred and double vision, I thought I just needed...

Includes Expert Content

Reply: Is there such a thing as a Parkinson's Flare?

Well...I heard of M.S. Hug...Maybe P.D. Hug....?

Posted by lepman

7 Replies | Reply | Watch This DiscussionReport This| Share this:Is there such a thing as a Parkinson's Flare? Well...I heard of M.S. Hug...Maybe P.D. Hug....?

Reply: Have you experienced depression since diagnosis?

I believe that not many patients get depressed after the initial diagnosis, I'll bet most...

Posted by lepman

5 Replies | Reply | Watch This DiscussionReport This| Share this:Have you experienced depression since diagnosis? I believe that not many patients get depressed after the initial diagnosis, I'll bet most...

Reply: New to this forum...

Let me start with I had a new appointment with the neuro's at the V.A. and I'm not sure what...

Posted by lepman

14 Replies | Reply | Watch This DiscussionReport This| Share this:New to this forum... Let me start with I had a new appointment with the neuro's at the V.A. and I'm not sure what...

Can you have two?

I was wondering If a person could have two conditions going on at the same time Like a...

Posted by lepman

0 Replies | Reply | Watch This DiscussionReport This| Share this:Can you have two? I was wondering If a person could have two conditions going on at the same time Like a...

Includes Expert Content

Reply: Parkinson relation to Desert Storm

I have also submitted the claims and have been waitting now for over two years,and have yet...

Posted by lepman

8 Replies | Reply | Watch This DiscussionReport This| Share this:Parkinson relation to Desert Storm I have also submitted the claims and have been waitting now for over two years,and have yet...

Includes Expert Content

Reply: Parkinson relation to Desert Storm

I was also Desert Storm Desert Shield, According to The Enviromental Sepcialist at the V.A....

Posted by lepman

8 Replies | Reply | Watch This DiscussionReport This| Share this:Parkinson relation to Desert Storm I was also Desert Storm Desert Shield, According to The Enviromental Sepcialist at the V.A....

Reply: New to this forum...

I have tried to get seen by another V.A. hospital, and got told that I have to use the one I...

Posted by lepman

I have tried to get seen by another V.A. hospital, and got told that I have to use the one I have been going to something about Zone's and regulations that they follow. I have contacted my senator and my congressman about my case and both have been stone walled and both have told me that they have exhausted thier options with the V.A. hospital and basicaly told me there is nothing more that they can do from thier end. I have talked with the Head of Neurology Case manager at the Hospital to no avail, I have talked with the V.A. Patient rep. and got no where. I have tried to request a second opinion or to be sent to another Facility cavillian or V.A. directly with the Neurology Doctor but that got us a poliece escourt out of the hospital.
I don't know how much squeekier I can get,,, I did call that number from the I.G. That you mentioned and thanks for that,and have been told to try the Patient advocte again. so I called them and I explained everything to her about what is and what went on with me and she seemed like she is going to get some real answers especially when I mentioned that If this is going to continue in this manner I would have no choice but to go to the I.G. about this.
I also explained to her about everything that has been going on with me and how things have been going as far as treatment or diagnossis really makes the hospital and it's staff look real bad. I didn't just wake up one day and say, I think I'll just go to the V.A. hospital and mess with them because I have nothing better to do.and waste the gas and the entire day just to be seen by them.not to mention going through all those tests, especialy getting the two blood clots from them.I also told her that I am getting S.S.I. and because I had to appeal it all the way to a Hearing the Judge awarded it because of what she saw me and how this effects me,and because of the lack of trestment and lack of a Diagnossis from the V.A. and when I told her everything about my case she was really appauled abot the whole thing.
I have to say I know about the I.G. while I was active but didn't think I had that option now that I'm inactive.So thanks again I think this gives me a few more options and jsut maybe this will get the ball rolling again.View Thread

Posted bylepman

14 Replies | Reply | Watch This DiscussionReport This| Share this:New to this forum... I have tried to get seen by another V.A. hospital, and got told that I have to use the one I...

Reply: New to this forum...

Once again all that you have suggested I have tried and because it's the V.A. hospital that...

Posted by lepman

Once again all that you have suggested I have tried and because it's the V.A. hospital that we are talking about here.They tell ME what's wrong and How I'm feeling,and what they are going to try.I Have no say in it all and tell ME if they are going to do anything at all. If I suggest any kind of treatment or Diagnossis I get told No, it's not that. I always try to find out what has been ruled out and what was tested for but never get any answers.

Patient advocates ? they Listen to us, Me and the wife,write down what we say but nothing gets done or is ever talked about after that. I have tried to request a second opinion and to see outside help but get denied. You see the V.A. has to approve it before that can happen.We have asked for refferals as well but Denied. The neuro I am seeing tells me my A-Typical tremours are highly Entertainning and that I.m too young to have Parkinson's .

Then I ask her why all the other department's that she has sent me to for testing always ask me what stage of parkinsons I'm in or even tell me that they think it's Parkinsons as well. I have tried to reason with the Neuro and tried and asked what they believe it to be and try to keep an open mind about some of the many things that they tell me but it just don't fit with the symptoms, like Migraine without headache, Or even a vestibular Issue, Because Like I was explained over and over,

I would at some point or points with a Vestibular problem you would Have or be without symptoms because the body would be able to adjust to relieve some if not all the balance and dizzieness issues. and like they tell me there is way more symptoms happening to me that dosen't go along with a Vestibular issue and that it's progressing not stableizing.

This has been going on with me 24/7 365 for four years now never stops.I can handle the pain and muscle cramps and all the other symptoms but the Balance and dizzieness issues really makes life hard to function.View Thread

Posted bylepman

14 Replies | Reply | Watch This DiscussionReport This| Share this:New to this forum... Once again all that you have suggested I have tried and because it's the V.A. hospital that...

Reply: New to this forum...

Stuck In the V.A, System....No Insurance to see outside of the V.A.

Posted by lepman

14 Replies | Reply | Watch This DiscussionReport This| Share this:New to this forum... Stuck In the V.A, System....No Insurance to see outside of the V.A.

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