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Parkinson's Disease Community

Reply: New to this forum...

P.S. I don't know very much about this site and if anyone can see other postings from other...

Posted by lepman

14 Replies | Reply | Watch This DiscussionReport This| Share this:New to this forum... P.S. I don't know very much about this site and if anyone can see other postings from other...

New to this forum...

Hi, I'm new to this forum and have been Diagnossed as Probable Pakinsons,by an Enviromental...

Posted by lepman

Hi, I'm new to this forum and have been Diagnossed as Probable Pakinsons,by an Enviromental Specialist, and he believes that I am now between stages 2 and 3. I'm not real sure If that is what it is for sure because my current Neuro won't say it is or isn't for sure because there is no difinnatve proof for Parkinson's, and keeps telling me that my M.R.I.'s show nothing and that My A-typical tremours are very entertainning? What ever that's supposed to mean .And keeps saying that a Vestibular issue is more likely. I have been tested many times for a vestibular issue and have been told by the E.N.T. Doc's why they feel that it's a Neurological Issue and explained why they know it is and went over all the vestibular issues and why they have ruled them all out.

The E.N.T. Doc's also have told me that I do have a 98% loss of function for balance in my right ear and was starting to progress to my left ear, and that it has been progressivly getting worse sense my first test and something is causing it to happen. They have also told me that once it is gone you can never get it back and that if I totaly loose that function in both ears I will not have any balance at all..That was over a year ago.

I feel dizzy and off balance 24/7 365 and never goes away, Have lots of joint pain and muscle pain, hard to swallow food at times and choke sometimes even on my own saliva .I have a hard time finding my words and have major problem solving issues as well short term memory issues, as well as speech problems.I have blurrred vision and double vision at times, especially when I follow movement. Trying to focus on the object when motion stops is the hard part.I have numbness burnning and tingleing sensations in my left leg and my right arm has the shakes and tremmors. sometimes when at rest and sometimes while I'm using it.

My reactions and actions feel as if were being slowed by something even boardline being stopped by something. I guess I should explaine the dizzieness better, It's not a spinning sensation but like being Very Very drunk and haveing no control of your movements or ability to walk straight and your sense of balace is way off kilter. It never stops until I fall asleep. and every morning I wake the same way. I found out that I have E.D. never even thought that would happen.

My Neuro want's to dissmiss this as Vestibular issue and keep testing for a vestibular issue. I feel that this is a wrong direction and have no way to get a new Neurologist who will listen or treatment. I guess I'm looking for some guidance and or some help in getting Help....Any thing at all would be very appreacted thanks for listening......

I get sick alot ( throw up) I think it's because of the dizzieness and trying to do things and I over do it, because movement and motion dose make it feel worse. My neck and shoulders are so sore and stiff all the time because I have a hard time keeping my head balanced all the time and I believe it's because of the need to keep my sense of balance. If I'm makeing sense there I hope you under stand.View Thread

Posted bylepman

14 Replies | Reply | Watch This DiscussionReport This| Share this:New to this forum... Hi, I'm new to this forum and have been Diagnossed as Probable Pakinsons,by an Enviromental...

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