I had a follow-up email with my neurologist and would appreciate your input to the previous post above. I wroteL
It is the symptoms I describe to you that can't be seen that I want to know which disease it is. For example, no one sees a headache but they can deduce what it may be and that is what I need clarification on with all oft symptoms. Can you do that?
Here's my neurologists response to our conversation:
Your tremor condition is most consistent with a postural tremor and is therefore most resembles "benign essential tremor." I do think that it could relate to the cervical spine disc protrusion. I do not see evidence of Parkinson's disease or atypical parkinsonism (PSP, MSA (aka Shy Drager), OPCA, or Pure autonomic failure. I do not have concerns that your tremor disorder will affect your life expectancy.
I continue to believe that your condition may improve in time.
Dr. Stacey, could my condition improve even though I feel my tremor when laying down on my side, in my pants pockets when standing and when arms are folded? Aren't these rest tremors? He still thinks these tremors are related to my discs - I would truly appreciate your input with all of your expertise.
I met with the neurologist who thinks that this is still a postural tremor even though he didn't ask to see it in the positions I experience it in - lying down or arms folded. I showed him that my hands shake when they are in my pants pockets and he still considers this postural tremor. He says that postural tremors in specific positions even when laying down can be considered postural. Is this correct? I am having a EMG test end of September.View Thread
Thank you for your response. I was asking if you could answer the question about your directive you gave me to try moving my fingers gently and see if the tremor stops or doesn't stop. I did try that and the tremor didn't stop - I did do this in the position where I feel the tremor under my pillow. So, what is this tremor called then if it isn't a resting tremor? My appointment is this Friday, so do please respond. I want to be able to discuss this with him.
Thank you for your response. I am already with a neurologist that specializes in Movement Disorders and have an appt for end of August. When I saw him in May and the subsequent conversations between my husband and him and he states that this isn't Parkinsons, MS, ALS, etc.
From our correspondence above in all the previous posts, you made it sound like I don't have Parkinsons or any other Parkinsonian syndrome, so when your post said that to have a DatScan to convince you that I didn't have PD was a change and I wasn't sure that you had changed your thoughts from not PD to PD, so I am sure you could understand my confusion. I am sorry if I offended you in any way, I just wanted you to clarify as I thought it may be an error in typing. Anyone in my position has many questions especially when you are young with a young children involved and reassurance is helpful along with information. Anything you would like to answer like the test you had me do for finger movement to test for rest tremor as asked above or have additional thoughts would be appreciated.
Thank you for your response. Could you clarify your datscan response with regards to convincing - do you think I have parkinsons or to convince me that I don't? Along with numbness and weakness could this be worse as in Parkinson's syndromes?