I just turned 60 and have been dealing with Parkinson's for most likely over 10 years. My Neurologist told me a few month ago that I am in early Parkinson's Dementia. This is different from Alzheimer's. Keep your Dad as active as possible and include him in games and other mental and physical stimuli. I was also told that there are really no efficient meds for this type of dementia.View Thread
I have been dealing with the same issues of sleepiness for a few years now. I have been having sleep studies done, and found out that I am missing part of my REM sleep consistently. Trying to get approved for a CPAP machine because when they tried me on it one night, I had all of my REM. I have done some research on this and apparenlty, sleep issues are a part of Parkinson's....seems like more and more things pop up because of this disease. And to think that most people think it's just tremors----including uneducated health care personnel!View Thread
You haven't mentioned your age (unless I just didn't catch it). Are you or were you employed? I was very afraid of two things--not having any income and worse, not having health insurance. I fought for almost 3 years, but finally won and I was declared permanently disabled. (I was an RN) My initial payment was retro active to the day that I was first unable to work. Granted, the income isn't great, but thank God I am now on Medicare! I was 54 when I started getting benefits.
I totally understand how you must feel. I don't want to be a burden to anyone either, but thank goodness I have wonderful family and friend supports. Your husband and son need to understand you have no control over getting PD or the path your particular PD takes you down.
Another thought with your age is looking into a reverse mortgage.
Wish I could offer you more advise. Seems to me that your son needs to get a grip on reality and your husband, too.View Thread
Yes, it is not uncommon for losing control of bowels---one thing that is never told to us. PD has affected my entire digestive system and my colon has spasms quite frequently. When that happens, I am bowel incontinent. See a GI doctor for help. I am taking an anti-spasmotic med 3 times per day.View Thread
Have you gone to see your primary care doctor? Do you need referrals to specialists? You need to see a Neurologist for a more complete evaluation. There is no specific test to determine if you do have it. It's more of a putting the pieces of the puzzle together; in otherwords, seeing what symptoms you have.View Thread
Your story sounds exactly like mine. Somewhere in this community page, I tell my story, but it is mine all over again. The doctors think it was the Taxotere that triggered the PD. (it is a neurotoxin). I had surgery, chemo and radiation during '02 and '03. My health went down the tubes quickly. I was 46 when I was diagnosed with cancer. I had so many problems that started almost immediately and it took several years for things to start falling into place and make sense. It was in '08 that my Neurologist that was treating me for neuropathy that first discussed PD with me. I was referred to a major movement disorder for confirmation, and was told that there was no doubt I had it. I am a nurse, but had to stop working in '06 and am permantly disabled. I wear a leg brace to help with the foot drop on my right side. Walking is becoming increasingly difficult because my muscles on the outer side of my right hip is contracting, which makess my leg turn inwards. I had physical therapy to give me a home program, most of which I can no longer do. I am in the very early stages of Parkinson's dementia. I have difficulty swallowing and saw a Speech Pathologist for some help with that. I have spasms and strictures all through my GI tract. I also have breathing and talking problems
Enlist your family and friends to help you. Make them become informed on this disease. Remember that NONE OF US HAVE EXACTLY THE SAME DISEASE PROCESS. And, read the posts on this page that seem to pertain to you.View Thread
Hi gordoncanada! There are so many symptoms of Parkinson's Disease that it is difficult to diagnose. My initital symptoms was shortnes of breath with chest pain. Now I know that was/is due to spasms of my diaphragm. A few months ago, I had "different" chest pain down my left chest, which after many tests in the ER was finally felt to be due to my accessory respiratory muscles having spasams. I get short of breath and chest pain when I do much talking or laughing....but I just figure that I can take my pain meds and apply heat for relief.
Keep in mind that PD affects muscles and it doesn't discriminate which ones. It affects my entire GI systems as well. I can barely sign my name anymore. I also will be adding prisms to my eyeglass prescription because now my pupils are affected. Use this community often..many of us have similar issues. Good luck to you. I hope your neurologist can help you.View Thread
Since I posted the last time with this question, I have been put on 3 anti-anxiety meds and they have helped quite a bit. I am also sleeping better. Parkinson's Anxiety is another part of this disease process. Seems like every week I find out something else. OH, I am NOT happy with my
"buddy", Parkinson's.View Thread
Yep---a common problem with PD. You will probably notice that your voice is becoming softer too. I find that too much talking becomes painful and a strain. Pain is in throat and chest. I have had spasms in my chest for several years now---causes pain with breathing. I tried taking PD meds, but I had bad reactions to them. I found that I would rather deal with symptom relief. The best thing for the talking and chest discomfort is pain meds and apply heat.View Thread
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