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I keep noticing that no one has responded about the bladder question I posted a few weeks ago. Don't be embarrassed---we have no idea who each other is or where we even live! I am amazed each time I read a new posting that I am not the only PD patient with weird symptoms! Add that to the fact that all of us can help other patients by making these symptoms known by health care professionals. We can all make such a huge impact on our lives and maybe even on our treatments.
I hope the sun is shining wherever you all live. We have been given another day!View Thread

What i continue to find frustrating is the huge lack of knowledge people in health care about PD. I will be the first to admit that I really didn't know much more than patients have tremors and some get dementia. I am a RN (disabled since '06) and I have learned so much. I have had bad GI effects; so bad that I have required several surgeries to handle them. Shortness of breath, chest pain, esophogeal strictures/spasms, continual muscle pain/tightness, and just recently found out that I now have problems with the muscles in my eyes not receiving instructions properly from my brain which means I now have diifficulties with vision accommodation. My short term memory is awful. Oh, I could go on and on, but I won't.
I have learned so much from this community...I know you will, too. We are always here for each other!View Thread


Unfortunately, I am not able to tolerate any of the PD medications, so we just treat the symptoms when they become too much for me to tolerate without meds. I did learn to stop and smell the roses in my mid-40's when I was diagnosed with cancer...and I believe that has helped me to cope with my current health situation. I am approaching 58 (next month) and am satisfied with the way my life has gone for the most part. I enjoyed life and tried to take advantage of everything offered to me.
worn1, I think your and I would definitely enjoy each other's company!View Thread


I was never a runner---hated it as a matter of fact. But I danced as a young girl through high school and then changed it up to walking and going to the gym for weight training and cardio. Both of those necessary to keep working as a nurse! ha! My main source of exercise now is walking my dogs--I'm quite a sight with two dogs, my leg brace and my cane! But, because of the current health issues, I haven't been able to walk them (or me, for that matter) since before Easter. I'm gradually increasing my activity, which then means I have to give in afterwards and take a nap.
Anyone else had time to think about my bladder question yet?View Thread

There are a few discussions that must occur for not only your peace of mind, but his. Ask your son to share with you everything that the doctors have told me about what is going on. I assume he has put you down on the HIPPA form as someone that can be told this type of information. If not, it MUST be done. The other discussions should be done with the health care professionals that are in charge of his care, namely his MD that told him hospice or home. This is usually a choice given to someone who is terminally ill.
Does any home health agency come to the house to help with monitoring of his condition? Having no idea what type of insurance your son has (or his previous medical condition), I don't know if he has a Case Manager associated with his insurance. If so, this person (usually a nurse or can be a social worker) should be able to guide you both through is maze and figure out what is going on. Any follow up physician visits after being discharged? If so, you need to go into the room with your son so that you can also hear what is being told to him.
There are so many unanswered questions here. It sounds like there is a bit of work to be done, and as quickly as possible, to find out what in the heck is going on. I hope this helps you.View Thread
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