I have this same problem----what I have found out since my Parkinson's has progressed is that that feeling can become full blown tremors. I have been put on Xanax and that helps quite a bit.View Thread
Pain is much more common than people realize. Discuss with Neuro and see what he/she suggests. In addition to some pain management through prescription meds, massage can really help with that as well. Soaking in a nice warm tub feels good too!View Thread
Ditto to worn1's comments. Parkinson's is a very personalilzed disease process and there are SO many parts of it. It's not just tremors.
This community has lot's of good and useful information. Also, go to the National Parkinson Foundattion web site and order the Aware in Care items. Extremely helpful information and it's free to download and to order print materials to be sent directly to him or youl
Feel free to ask questions anytime! We aren't shy!View Thread
Hi nobrains....oh, your name says it all. I'm sorry to read your discussion, but I am responding to you mainly because I wanted to tell you that you are NOT alone with your medication problems.
My doctors tell me that my Parkinson's Disease was triggered by one of my chemotherapy drugs that I was given for breast cancer. As my Parkinson's progresses, I have tried a few of the most well tolerated drugs to help with symptom control, but I am absolutely not able to tolerate them. It has become a quality of life issue for me---am I better off or on drugs that make me feel horrible?
For now, I am pretty well maintained. I take pain medication for the muscle pain that I have all of the time. I take 3 different anti-anxiety medications which help with controlling my increasing anxiety, but also to help me sleep. I hadn't realized that it had been a very long time since I had actually had a dream until my medications were into my system. When my tremors get bac, I am able to stop and either sit or take a nap and usually that helps.
I hope you have a good Neurologist and Internist. I have both of these, but also an exellent GI doctor who helps me with my digestive issues, I have required several hospitalilzations/surgeries for bowel obstructions and I have to have my esophagus dilated every couple of months becaue of strictures.
Good luck to you. Keep us posted on how you do.View Thread
I was trying to copy and paste a response I wrote 4 weeks ago on a similar question, which is further down on the list of discussions entitled something like Parkinson's and Bladder contril. Now that I am responding here I can't see what the question is from cornwall. If I don't answer your question, try to look below at the other discussion,
From what I understand about the effect of Parkinson's on the bladder, it is the same basic dysfunction of the nerves in the brain (the sender) to the nerves in the bladder (the receivers). Bascially, the pathway is broken and other muscles/nerves need to sort of compensate for the ones that are not working together anymore. I have found that for me what works the best is trying to remember to urinate every 2 hours or so during the day, so that my bladder doesn't get too full. Limit fluid intake after dinner. Have your mother try to exercise her muscles "down there" while she is sitting on the toilet. Best way to see which ones they are is to stop the flow of urine by tightening the muscles. Hold them tight for a few seconds and then release, allowing the urine to flow again. Once she knows how that feels, she can do that exercise as often as she wants to and doesn't even have to leave her chair!
What I personally am eperiencing is that I find that I often have to push to start the urine flow, especially if my bladder gets too full.
I hope this helps. This particular question has been asked on several discussions, so scroll down til you find the other ones. If you still have some questions, fire away! Good luck.View Thread
I read that article you sent the link to, worn1. I must admit that some of the terminology (that I used to read without difficulty) was confusing to me. It does look interesting and I would be curious to know more about it. I didn't pick up any herbs in the content, but I'll take another look.
Any luck with finding Dr Stacey's contact information? I wish there was a way to give you my email address without the whole world seeing on this stie!View Thread
Hi there....your question for research begs for more information I'm not clear on what it is that you need from those of us who have Parkinson's. Can you explain a little bit what you are trying to investigate?View Thread
I tend to agree with you about this site no longer being monitored, which really ticks me off. I feel like WebMD has left all of us hanging out to dry. I would think trying to contact Dr. Stacy at Duke would be reasonable since we have tried all other methods suggested by this site.
I'm still willing to share my email with other Parkinson's patients. Worn1 I believe I recall that you and I both live in the DC metro area. I wonder how many others of us are around here.
Keep us posted on how your email search goes. I'll try to check on him as wellView Thread
Hi 6th---sounds like you are dealing with a full plate, so to speak. Let me sort of advise you based on my former nursing career of over 30 years. The last 15 or so was pretty much exclusively Geriatrics/Dementia, which of course meant there was quite a bit of preparing for death.
I do see that your mom is in Hospice Care and I commend you and your family for taking that step. You don't mention your mom's age, but I am assuming that she is around 80 or so? Have you spoken with the Hospice Nurse about this situation? He/she would be your best resource for this since they know her. Also, has the nursing staff at the nursing home given any guidance on this issue?
Often, I found that those nasty pressure sores are extremely difficult to heal and to keep from getting infected. If she is not wanting to eat anymore and doesn't seem hungry, I would be inclined to NOT ask for a feeding tube.
What could be going on with your mom is that her body is starting to "shut down." This is not usually painful and can be made worse by forcing hydration or food into her. The forcing of nutrition into a body that doesn't want it anymore IS uncomfortable because you are forcing her body to work to utilize it when it can't properly process it anymore. I would think someone could help you and your family out with this.
Another question that comes to mind is does your mother have Advanced Directives? She might have already said in that document what she would and would not accept as her condition deterioated.
My best advice for you is to ensure your mother's comfort and safety. Continue to show her that you love her. Play music that she enjoys. Make good use of this time.