I just wanted to let you guys know that I found the BEST thing ever to keep with papers that you take to the hospital!
It's called Aware in Care Hospital Action Plan and is FREE. Comes with all sorts of information to share with health care professionals, a Parkinson's metal bracelet and a zipper up bag to keep this stuff in, including small bottles of your PD medications.
Philcharles, reading your question sounds like exactly what I have right now. I've had to have my esophagus dilated 3 times over the past year to open up some strictures that occluded the passage of food into my stomach. I have also had difficulty with initiating the swallow for several months now. For the past month or so, I have also had the same type of cough from the back of my throat and some bad reflux. My GI doctor started me on carafate liquid before meals to try to get the reflux under control ( I have been taking Protonix twice a day for several years). We will then do a swallowing study--a radiologic test done with doc and speech therapist in the room. I will need to swallow several different thicknesses of liquids to see if I might be needing thickeners in my fluids. I also find that I do much better eating things like thicker soup, crackers, yogurts, etc.
Good luck to you. I'll keep you posted from my experience and you do the same thing.View Thread
When I was in my neurologist's office yesterday, I picked up a book in the waiting room and took it back to the exam room to read while I waited for her to come in. It is so well written and she wound up giving it to me. I just want to share the title so everyone else might find it if they want.
It's called Parkinson's Disease 300 Tips for Making Life Easier. Author is ShellyPeterman Schwarz and it has all kinds of great information, as well as resources for both the patient and the caregiver.View Thread
I visited this site again this morning and re-read the original discussion. When the loss of smell was mentioned, I recall that a few months ago I realized I am having that as well. I love going into the Yankee Candle store with a good friend of mine. I could smell the GENERAL overall smells, but was unable to distinguish a smell when trying to smell individual candles.
PD is such a puzzle to patients, their caregivers and medical professionals. We just have to notice everything and keep reporting changes. Of course, some of the changes we patients don't really notice---especially the ones that involve our brain and communication skills.View Thread
I am responding to the part about muscle pain in the posting. I started down this PD journey with severe pain in my chest that started with minimum exertion----like talking or laughing. It greatly inhibited my participation in many things. I was given a complete cardiac workup that revealed some minor things, but nothing to cause the severe pain and shortness of breath. Now, I am having the same type of pain in my legs and arms, also occuring with minor exertion. It is of the burning type and lessens when I try and relax or catch a nap. I have been prescribed Ultracet (Ultram Tylenol) for pain for the past 3 years or so and it works for the most part.
I have been declared totally disabled about a year ago. I am a Registerd Nurse, and between the pain, the inablilty to concentrate, and the extreme fatigue, I just can't do the work anymore. Oh yeah, and my voice is VERY soft when the pain in my chest gets bad.View Thread