My husband has PD and was having a difficult time getting into and out of my Hyundai Elantra. Both because of the limited space between the front seats and the dash, and because of it being so close to the ground. His legs don't have the strength to stand up from a low position, making it difficult for him to get out of the car. We looked at a lot of small SUVs and chose a Buick Encore. It is small for an SUV, but we don't often have passengers in the backseat. The best thing about it is the doors are very wide, making it easy to get his legs in and out. The power seats will go way back and adjust up and down (driver and passenger side in the one we got) so he can set them where he needs them to make it easy to sit and get his legs in and to get his feet out and stand up. We have had it for several weeks now and are very happy with it. I tried to research vehicles recommended for the mobility challenged and did not find much information, so that's why I wanted to share this tip.View Thread
I just wanted to let you guys know that I found the BEST thing ever to keep with papers that you take to the hospital!
It's called Aware in Care Hospital Action Plan and is FREE. Comes with all sorts of information to share with health care professionals, a Parkinson's metal bracelet and a zipper up bag to keep this stuff in, including small bottles of your PD medications.
When I was in my neurologist's office yesterday, I picked up a book in the waiting room and took it back to the exam room to read while I waited for her to come in. It is so well written and she wound up giving it to me. I just want to share the title so everyone else might find it if they want.
It's called Parkinson's Disease 300 Tips for Making Life Easier. Author is ShellyPeterman Schwarz and it has all kinds of great information, as well as resources for both the patient and the caregiver.View Thread
Multiple postings regarding fussy brain syndrome no medical findings...keep up the medical evaluation help by keeping symptom log, provides insight into you.... very hard to explain these type of symptoms...even with the best doctor. Should list symptoms, time day, activity, action taken.
Surprise to many that key issue is vertigo...which can be caused by a wide range sources. My room does not spin, I wobble and have difficulty thinking, talking. While a few days begin this way, it usually is brought on by positions shoveling, standing while looking down reading, cleaning bending up and own.
I have had all the tests no real findings except white matter in pons due to 1954 polio epidemic. Such scaring is common in persons who have had similar viruses that inflame the brain. There are many orthopedic issues such as scoliosis, Arnold Chiari that contribute to motion sickness..
Meclizine commonly used for travel sickness and or vertigo is very effective and can be taken for relief or preventative.is very effective and can be taken as needed. Expensive off rack for sportsmen, travelers at 6.00 for small package. Cheaper asking pharmacist for entire bottle on pharmacy shelf, 12.00 last one I purchased contained 100 pills.
This is not a cure but does work well with chronic issues..View Thread
in the past week my feet got numb and today it's up to my waist and fingertips. I see my doctor tomarrow but I want to know is what I need to have happen to figure out this issue. Any doctors out there? Anyone with the same problem?View Thread
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| ReplyReplyReport This| Share this:Numb and Nervousin the past week my feet got numb and today it's up to my waist and fingertips. I see my doctor tomarrow but I...
About a year ago, I was in the hospital because I had facial numbness that went down the right side of my...
Posted by An_221439
About a year ago, I was in the hospital because I had facial numbness that went down the right side of my face and into my arm and leg After seeing a neurologist, he indicated it was caused by silent migraines, as I did not have a headache. I stopped complaining about it when it came and went up until recently. In November, I was dianosed with laryngitis, which lasted for a period of 3 to 4 weeks. My voice came back. Periodically up until March, my voice would go out and they would tell me to just not talk, I sounded like minnie mouse and very breathy. I went to my doctors in March and he gave me an antibiotic as he thought I may have had strep throat farther down in my throat, but had no symptoms. A week later I was back in his office. He gave me a referral to an ENT. The ENT said that my vocal cords had seperated and I needed speech therapy to get them back to normal. This past Tuesday (4/6) was my first session with the speech therapist, after an hour of throat manipulation we stopped. 30 minutes later I had a stutter and the numbness came back to my face the next morning. The speech therapist indicates it was not from her and sent me back to the ENT, who said my vocal cords were now perfectly fine. He indicated he thought maybe I had a stroke or lime disease. I'm 27 years old and have always been in relative good health, with the exception of a common cold here or there. He sent me to the ER at Dartmouth. The doctors were amazed, never had they had anyone with my symptoms and no diagnosis. I sound like a foreigner with a stutter, I've NEVER had a stutter before, ever. They set me up with an MRI for this Saturday 4/10 to rule out anything in my brain. I'm set up to see a neurologist that specializes in speech next week. I do not understand and I mean no offense to anyone with a disability, but I do not sound normal. I'm 27 and have never had a surgery or been hospitalized. I cannot work, I manage a bank and deal with people on a regular basis. The doctors told me I cannot go back to work until I can perform my job duties normally. How can I perform them normally when no one can tell me what is wrong. I have headaches, facial numbness, and stuttery speech. Does anyone out there have an idea or suggestion???
Sensory complaints in PD are not uncommon, and include visual changes, loss of sense of smell, restless legs syndrome (RLS), and pain. Changes in vision may result from alteration in visual acuity, contrast sensitivity, color discrimination, motion perception, peripheral visual field sensitivity and visual processing speed. Visual acuity can be improved with corrective glasses. Contrast sensitivity and color discrimination is important - especially if you are having trouble with freezing. To help with this problem, try increasing the light in the room, and consider using brighter patterns - sorry I cannot write a prescription to pay for redecorating… Slower visual processing speed also leads to decline in visual perception, particularly for rapidly changing visual activity - birds flying or rapid action on TV. Unfortunately, there is little treatment for these symptoms, but a thorough vision examination will make sure that other eye diseases are not a problem.
Loss of sense of smell has been considered by some to be the earliest symptom of PD, and is seen in up to 90% of PD patients, and this increases as the disease advances. There is no treatment for this symptom.
Restless legs symptoms are commonly reported in PD, usually at the end of a dosing interval - "wearing off." Distinguishing between true RLS and wearing-off limb discomfort and restlessness can be difficult. Nonetheless, the first treatment would be trying to take your PD medication at regular intervals - and dosing prior to the onset of the uncomfortable symptoms. If this is not helpful, medications like clonazepam may be helpful.
Shoulder pain is known to be an early, sometimes initial symptom of PD. Other pain symptoms can be a common complaint in PD, however it is important to differentiate between dystonic (muscle cramping) versus non-dystonic pain. Pain associated with dystonia is likely related to low blood levodopa levels, and responds to levodopa therapy. Non-dystonic pain (numbness, tingling, burning, aching, coldness, heat and pain) in PD is poorly understood and difficult to treat. Sometimes this also responds to treatment with PD medications, and may simply be treated with over the counter drugs like tylenol or ibuprofen. If these do not work, discuss the symptoms with your doctor.View Thread
PD medication regimens may be as varied as the number of people with parkinson's. There are several things that are useful when organizing a medical regimen.
First of all some PD medications last a short time. Levodopa, the active ingredient in Sinemet, lasts in the blood stream (and brain) from 2.5 to 4 hours. The controlled release form (Sinemet CR) may last up to 6 hours, but usually only 5. Levodopa competes with other protein for absorption to the blood stream, and some recommend that it not be taken with meals. I think this is not a major problem, and have my patients usually take the medication at mealtimes, and as the medication effect becomes shorter, may move to four- hour intervals (eg. 7am -11am -3pm, -7pm). Drugs that make levodopa last a bit longer include entacapone and rasagiline. (Carbidopa/levodopa/entacapone tablets are brand named "Stalevo.")
Dopamine agonists, pramipexole (Mirapex) and ropinirole (Requip), usually last 6-12 hours, and both have recently developed once daily preparations. These new agents may be great for people who are having mobility problems in the night. I recc the once daily forms to be taken with the first dose of the day, unless night-time is difficult, and then will dose later. The original formulations are now available in generic, and may be also dosed at mealtimes - and simultaneously with levodopa.View Thread
At this time, there is no confirmatory test for PD. The best testing we have is functional brain imaging to assess dopamine concentration in the "basal ganglia" or "striatum." This area of the brain demonstrates a decrease in dopamine concentrations with PD, and may be imaged using a Positron Emission Tomography (PET) scan or a SIngle Photon Emission Computed Tomography (SPECT) scan. PET scanners with dopamine-type imaging are not widely available, and dopamine scanning with SPECT is not available in the United States at this time. However, a SPECT imaging molecule may be approved in 2010, and there are others in development for use in the US.
Short of functional brain imaging, Neurologists look for signs and symptoms associated with PD to lead to diagnosis. Early symptoms include: resting tremor, difficulty with handwriting, dressing, cutting food, and other fine motor tasks. It is also helpful to see if one side of the body is more affected than the other.
Early signs are termed "cardinal characteristics," and include resting tremor, bradykinesia (slowness of movement), and rigidity (stiffness of the limbs, when moved through a range of motion by the examiner). If two of three of these signs are present, there is a 70% chance that the condition is PD.
The next step is to treat with medication, and if a significant benefit is seen, the chance that it is PD increases to 90%. Before initiating therapy, it is important to define these expectations, and remember, if you barely show signs of PD, you may not show a dramatic or significant improvement. In addition, the medications suggested in early PD, differ significantly from the medications used in more symptomatic PD. I prefer to start drugs that may slow disease progression in many patients, particularly in very mild cases, and use more potent therapies later.
If there is no symptomatic benefit, you should discuss other possibilities with your doctor. I would consider brain imaging in some instances. Symptoms that lead to other diagnostic concerns include: frequent falling as a first sign or early in the disease, double vision (particularly when reading), frequent crying or laughing at minor things, a hand that seems to have a "mind of its own" or that will not move the way a patient wants it to move, urinary incontinence, or significant memory disturbances. In addition, a highly symmetric presentation (both sides affected equally), or lack of tremor will push me to consider other diagnoses.View Thread
Communication is the key to any successful visit with the doctor. As a patient, even though I am a doctor in other settings, I have experienced leaving a doctor visit, thinking - I did not get my question asked, or even worse, I did not remember what the doctor told me...
As a doctor, here are some tips that may be helpful to all.
First is to be prepared. Make a list of questions or concerns about any symptom. Then prioritize them, and review (or maybe even rehearse) them with a friend or loved one.
Second: give the doctor an out as you begin to ask your questions. For example if you say, "Doctor, I know we do not have much time, and I have 10 questions. If there is nothing to do about one of my concerns, just say pass, and we will move on to the next," it let's me off the hook about things not related to your PD. More importantly, it let's me try to help you on a symptom that I may be able to do something about. Remember, at the core Doctors are service providers, and we do like to think we have made a difference.
Third: Have a list - typed! - of your medicines with the dosage, number of tablets and times of day you take them, and whether you need refills of your prescriptions. A doctor can often be writing these while listening to your concerns, and then will not save time at the end of a visit to write them - that will give you more "real time" in the meeting.
Fourth: Take someone with you to listen. If your companion can be your advocate - and not take over your visit - educate him or her to reasons you are asking a question, in order to ask a follow-up. You may be trapped in the polite listening mode, and not be able to do so.
Fifth: do not take all the time with questions. The doctor does need to examine you, and may have other issues that he or she would like to address.View Thread
If you have PD and notice foot cramping in the morning, you may be having wearing off from your previous day's medications. There are several things you can discuss with your doctors. Potential treatments include: taking a dosage at bedtime or during the night, taking your first dose of anti-parkinson medication before you get out of bed, and sometimes taking a medication like baclofen at bedtime may help.View Thread
Vivid dreams in Parkinson's Disease are quite common. They may be accompanied by yelling or thrashing about during sleep. If this is occurring, it may represent a condition called REM-sleep Behavior Disorder. It is important to talk about this with your doctor, and for you to realize that when these dreams occur, they are not the same as hallucinations. Treatment of REM-sleep Behavior Disorder is different from treatment for hallucinations.View Thread
If the answer is yes, check your blood pressure sitting and standing. If the top number is dropping more than 20 points - or below 100, you may need to discuss further with your doctor. For example, if your sitting blood pressure is 110/70 when you are sitting, that is great - right? Now stand up and wait 30 - 60 seconds. Recheck your blood pressure. If it drops to 90/50, you may be a bit dehydrated. Drinking a glass of water at breakfast and lunch may be all that is needed to help this. Other things to raise blood pressure include talking with your doctor to reduce any medications that lower blood pressure, and after that increasing the salt in your diet or trying medications available to raise blood pressure.View Thread
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