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Turning to the support group.
Let's start at the beginning, at six months old I and also my son started showing pfapa syptems. Although I'm...More
Posted by An_265013
Complete recovery from PFAPA!
I came across this discussion board today and had to post. My youngest son started developing symptoms of...More
Posted by 4boymom
PFAPA and Vetiligo
Hi everyone. I have a daughter who was diagnosed with pfapa after about a year of episodes that her doctor...More
Posted by An_262710
Reply: Irregular fevers
My daughter started having weird rashes and slight fevers around 6-8 months old that grew into very high fevers...More
Posted by the_ex
New here
My 13 year old son has PFAPA. He was diagnosed about a year ago, but he has had it almost all his life....More
Posted by derekcodysmom
Reply: 100% cured
Thank you for this.
Posted by junelogan
Reply: PFAPA relapse?
Yes. My son is now 14. He is not typical in that his episodes didn't start until he was 10. He cycles every 21...More
Posted by ckgaer
New in pfapa
Hi, I'm 21 years old, im from Chile, and last year I started with pfapa syntoms. Right now, im having an...More
Posted by appfapa
Reply: PFAPA Syndrome
I just came across this post and I am wondering the same thing. I think you are on to something. How did...More
Posted by sunnsnow20
Reply: PFAPA
My daughter had her tonsils removed a month after being diagnosed with PFAPA. She was fever free for 14...More
Posted by blakey84
Reply: Helena's Pfapa story! Help!!!
Lor I can tell you this after the surgery she it was ruff and a fight with her to get her to take meds or...More
Posted by galamb0913
I have my own theory about PFAPA. It sounds crazy but it reminds me of a menstrual cycle. My daughter has...More
Posted by lorrainemia
Reply: Do you know anyone that suffers from PFAPA syndrom...
Wow...this is exactly what we are going through right now, but I didn't even think about the molars. Our 7 yr...More
Posted by emily35rn
Reply: We have had success with a chiropractor
Hello Caseyjdoyle, I came across your post when i was looking online for PFAPA remedies. I am just curios to...More
Posted by mylilbaby
Reply: Pfapa
After 17 months, of my daughter suffering from Periodic Fevers, 4 different doctors, 5 ER visits. We finally have...More
Posted by azlzv
PFAPA Research and Information has a lot of resources for the different fever syndromes, including PFAPA.
Posted by ararauna
Was this Helpful?
Hi , Thanks for your story I love happy endings . My grandson started getting fevers at 4 months old and now...More
Posted by An_257798
Tonsillectomy cured my 4 year old granddaughter. D...
Tonsillectomy cured my four year old granddaughter. The medical data is clear that this is a cure for...More
Posted by bostongrandma
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Reply: Pfapa BACK minus the fever? Could it be?
My son is 12. He was diagnosed at age 7. It started to taper, but it is back with a 6 week interval. I am...More
Posted by terimj
pfapa help
My daughter is 6 1/2. She had rsv and pneumonia at just under a year of age. since then she has had...More
Posted by momfor5myersgirls
Reply: PFAPA and Eosinophilic GI disorders
My 7 year old has had fevers since November and was just diagnosed w/ PFAPA. She was actually tested for...More
Posted by An_253484
I hope someone here can give me some support/help. My son is 6 years old and has been sick since he...More
Posted by RavenandMelsMommy
Reply: Found a way to eliminate my daughter's PFAPA
Could you give me the name of this chiropractor? We live near that area and I would like my son to see him. He...More
Posted by DeannWC
Reply: Wondering if my son has pfapa
We dealt with PFAPA for two years with my son. His first fever was at 24 days old. We went to every...More
Posted by MommyHoover
PFAPA and Eosinophilic GI disorders
My 8 year old was diagnosed with PFAPA 3 years ago when she was 5. She has been having severe stomach aches...More
Posted by mjrivera
My 15 yr old grand-daughter was diagnosed with pfapa as an infant after too many tests on her tiny body. Her...More
Posted by grammaof9
Reply: 22 years of PFAPA
Hi there, I hope you still check and read this post. I just want to share a little of my stories with you both...More
Posted by Fver14
Reply: Fevers undiagnoised
One more thing. He gets cronic sinus infections, like every few weeks completely unrelated to the fevers....More
Posted by mommaculley
Reply: new diagnosis
My son was 4 when he started with fevers and got them regularly about every 21 days for a year until he was...More
Posted by D1001
A very desperate mom...
My 5 year-old-son has been very sick for four years now. He is blood transfusion dependent, suffering...More
Posted by Bravelittlegabe

Helpful Tips

100% cured
My son had a high fever every 13 days for almost 2 years. Five doctors misdiagnosed him. I finally did my own Internet research, took him ... More
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