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agbdiva

Joined: 05/24/2010
My Story:
It's been a little over 11 months since I delivered Charlotte a month early. What a happy day that was!

She was born with hypotonia(low muscle tone) and had to stay in the hospital 6 days after she was born because she wasn't able to take a bottle well. She was very lethargic. Her feedings mostly had to be gavaged. On the evening of the 6 day a new pediatrician came on duty. She immediately said something wasn't right. We thought maybe Charlotte had aspirated milk from a bottle feed. A few hours later, Charlotte was being flown to a children's hospital an hour away. Did I mention it was also December 23rd?

We spent Christmas and New Year's in the NICU. We were lucky enough to get a room at the Ronald McDonald House. My husband and I had to play the waiting game while tests were performed and Charlotte got the care she needed. After 3 weeks in the NICU we found out Charlotte had Prader-Willi Syndrome.

Prader-Willi syndrome is a rare disorder present at birth that results in a number of physical, mental and behavioral problems. A key feature of Prader-Willi syndrome is a constant sense of hunger that usually begins after the first year of life. Charlotte will never feel full.

After the initial diagnosis, Charlotte received occupational therapy, speech therapy, and physical therapy. She got a g-tube and 5 days later we were sent home.

Life has had it's challenges so far, but most of the time there is joy. I love Charlotte so much and feel blessed to be her mom!

Latest Activity

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Just got a BFP
Totally shocked that I got a BFP tonight. I took a pregnancy test so I could safely take...More
Me (42) DH(50) DD 11 months

M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Just got a BFP
Trigs: I m/c. It will be okay.More
Me (42) DH(50) DD 11 months

M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
She's here-short version
I delivered Charlotte via c-section Friday night around 7pm, about 4 weeks early. She is...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team!

M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: The LIST!! 12/16/10
Add me to new mommas. I delivered at 35w6days Anissa-agbdiva- 12/17/10 Charlotte...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: The LIST!! 12/16/10
Bless you and your LO Becky!
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: When was your first Dr Appt?
I was able to get in during week 6 because of my history and had early blood tests to...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Bras Help!
From my research, underwire can hinder the breast tissue/ducts. It has taken me awhile to...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Hungry Hump Day 12/8/10
I am into easy and tasty. Tonight it's Schwan's chicken Parmesan with a side of whole wheat...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Doppler Question
I got mine on Ebay for $70. I got a Sonoline 3MHZ. It works well.
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Dinner Ideas
I love www.kraftfoods.com. I made a chicken pot pie Sunday that was delicious and easy....More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva