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agbdiva

Joined: 05/24/2010
My Story:
It's been a little over 11 months since I delivered Charlotte a month early. What a happy day that was!

She was born with hypotonia(low muscle tone) and had to stay in the hospital 6 days after she was born because she wasn't able to take a bottle well. She was very lethargic. Her feedings mostly had to be gavaged. On the evening of the 6 day a new pediatrician came on duty. She immediately said something wasn't right. We thought maybe Charlotte had aspirated milk from a bottle feed. A few hours later, Charlotte was being flown to a children's hospital an hour away. Did I mention it was also December 23rd?

We spent Christmas and New Year's in the NICU. We were lucky enough to get a room at the Ronald McDonald House. My husband and I had to play the waiting game while tests were performed and Charlotte got the care she needed. After 3 weeks in the NICU we found out Charlotte had Prader-Willi Syndrome.

Prader-Willi syndrome is a rare disorder present at birth that results in a number of physical, mental and behavioral problems. A key feature of Prader-Willi syndrome is a constant sense of hunger that usually begins after the first year of life. Charlotte will never feel full.

After the initial diagnosis, Charlotte received occupational therapy, speech therapy, and physical therapy. She got a g-tube and 5 days later we were sent home.

Life has had it's challenges so far, but most of the time there is joy. I love Charlotte so much and feel blessed to be her mom!

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Reply: Bras Help!
I am an underwire person myself, but in preparation for BF I switched. They do not carry...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Bras Help!
I feel your pain! I am measuring a 40H. It's difficult to find a decent bra at an...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Not so great Doctor's Appointment.
I am so sorry. I know how depressing it can feel. My motto for my pregnancy has been...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Had my first check- Dialated to 3!!
Wow! How exciting! Cozy socks are a must. More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: tight uterus
I took terbutaline sulfate for 2 days to see if it would relax it(it's an asthma med) which...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Monday Updates!
Anissa and Charlotte 34w4d w/g: My scale says 13, the OB scale says 20. I'm to the point...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: tight uterus
My uterus is hard too. My OB says it's irritated. I just call it angry.
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: short birth story...more to come later
Congrats Shana and welcome Jennaraya!
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Birth Story
Congratulations!
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: I have an irritable uterus :(
It gives me the shakes. Luckily I have been able to get some sleep while on it. The bad...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva