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Pregnancy: After Loss Community

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agbdiva

Joined: 05/24/2010

My Story:

It's been a little over 11 months since I delivered Charlotte a month early. What a happy day that was!

She was born with hypotonia(low muscle tone) and had to stay in the hospital 6 days after she was born because she wasn't able to take a bottle well. She was very lethargic. Her feedings mostly had to be gavaged. On the evening of the 6 day a new pediatrician came on duty. She immediately said something wasn't right. We thought maybe Charlotte had aspirated milk from a bottle feed. A few hours later, Charlotte was being flown to a children's hospital an hour away. Did I mention it was also December 23rd?

We spent Christmas and New Year's in the NICU. We were lucky enough to get a room at the Ronald McDonald House. My husband and I had to play the waiting game while tests were performed and Charlotte got the care she needed. After 3 weeks in the NICU we found out Charlotte had Prader-Willi Syndrome.

Prader-Willi syndrome is a rare disorder present at birth that results in a number of physical, mental and behavioral problems. A key feature of Prader-Willi syndrome is a constant sense of hunger that usually begins after the first year of life. Charlotte will never feel full.

After the initial diagnosis, Charlotte received occupational therapy, speech therapy, and physical therapy. She got a g-tube and 5 days later we were sent home.

Life has had it's challenges so far, but most of the time there is joy. I love Charlotte so much and feel blessed to be her mom!

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Reply: 4D :) And how do you post a pic?

That is so neat Becky. I absolutely loved my 4D experience! It's so much more real!

Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)

Posted by agbdiva

3 Replies | Reply | Watch This DiscussionReport This| Share this:4D :) And how do you post a pic? That is so neat Becky. I absolutely loved my 4D experience! It's so much more real!

Reply: Having a hard time Mentally

((Hugs)) We all have been where you are. What you're feeling is perfectly normal. Taking it...

Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)

Posted by agbdiva

5 Replies | Reply | Watch This DiscussionReport This| Share this:Having a hard time Mentally ((Hugs)) We all have been where you are. What you're feeling is perfectly normal. Taking it...

Reply: I need to be smacked

Thanks!

Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)

Posted by agbdiva

9 Replies | Reply | Watch This DiscussionReport This| Share this:I need to be smacked Thanks!

Reply: I need to be smacked

LOL I am a bit of a drama queen. I'm sure my husband would agree. I am feeling so much...

Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)

Posted by agbdiva

9 Replies | Reply | Watch This DiscussionReport This| Share this:I need to be smacked LOL I am a bit of a drama queen. I'm sure my husband would agree. I am feeling so much...

Reply: GOOD NEWS!!! YAY!!!

Congrats!

Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)

Posted by agbdiva

6 Replies | Reply | Watch This DiscussionReport This| Share this:GOOD NEWS!!! YAY!!! Congrats!

Reply: I need to be smacked

I had a regular OB appt today. He was very understanding of my meltdown, bless his heart. I...

Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)

Posted by agbdiva

9 Replies | Reply | Watch This DiscussionReport This| Share this:I need to be smacked I had a regular OB appt today. He was very understanding of my meltdown, bless his heart. I...

I need to be smacked

I apologize for the long vent in advance. I have been miserable with a sinus infection for...

Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team!

M/C 6/08(unknown) M/C 8/09(trisomy 15)

Posted by agbdiva

I apologize for the long vent in advance. I have been miserable with a sinus infection for almost a week(on antibiotics). I had been told that I could take claritin besides doing all the natural stuff. It didn't do anything. Yesterday I just couldn't breathe through my nose so I called the OB dept. at the hospital to see if there was anything I could take. The nurse said sudafed was fine. The nurse at my OB's said not to take it because it could elevate mine and the baby's BP.

I was desperate to be able to breathe, get a good night's sleep, and go to work. I bought the 12hr sudafed because CVS didnt have the regular 4-6 hr kind. I researched online before I took it. It was making me so nervous. I took it very hesitantly. 5 minutes after I took it I tried to make myself throw up to no avail. So I laid down to take a nap. When I woke up I could breathe, but I had so much guilt.

When I went to bed Charlotte was extra active, but I felt like I could go go to sleep. Boy, was I wrong. Charlotte was bouncing off my uterine walls and all I could do was to think it was all my fault if something happened. I got no sleep and was racked with guilt all night long. At 6am I called the hospital OB dept. to check to see if I needed to be monitored. I had convinced myself that I had done something to my baby. I had used my doppler to check her heartbeat, which was "normal" but seemed elevated to me. They said not to worry and to wait to check with my OB.

So I got up, ate breakfast and watched some tv. I was getting sleepy(imagine that) so I laid back down. I fell asleep until 11 am. LOL I called my OB and talked to the nurse. She was so reassuring that everything was ok, that the benefits outweigh the risks because I'm in my 3rd tri. I am NOT convinced. I think I'd rather be miserable than to feel that much guilt again. What was I thinking???View Thread

Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team!

M/C 6/08(unknown) M/C 8/09(trisomy 15)

Posted byagbdiva

9 Replies | Reply | Watch This DiscussionReport This| Share this:I need to be smacked I apologize for the long vent in advance. I have been miserable with a sinus infection for...

Reply: Baby #2 is a.............................

Congrats! What a wonderful experience! I am so happy for you.

Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)

Posted by agbdiva

12 Replies | Reply | Watch This DiscussionReport This| Share this:Baby #2 is a............................. Congrats! What a wonderful experience! I am so happy for you.

Reply: Claritin?

My OB okayed it as well. I took one yesterday but didn't notice a difference. I have a full...

Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)

Posted by agbdiva

4 Replies | Reply | Watch This DiscussionReport This| Share this:Claritin? My OB okayed it as well. I took one yesterday but didn't notice a difference. I have a full...

Reply: GTKYFP 10/14/10

Butter Cream Yankee Candles! The Macintosh Apple is good too.

Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)

Posted by agbdiva

4 Replies | Reply | Watch This DiscussionReport This| Share this:GTKYFP 10/14/10 Butter Cream Yankee Candles! The Macintosh Apple is good too.

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