agbdiva

Joined: 05/24/2010
My Story:
It's been a little over 11 months since I delivered Charlotte a month early. What a happy day that was!

She was born with hypotonia(low muscle tone) and had to stay in the hospital 6 days after she was born because she wasn't able to take a bottle well. She was very lethargic. Her feedings mostly had to be gavaged. On the evening of the 6 day a new pediatrician came on duty. She immediately said something wasn't right. We thought maybe Charlotte had aspirated milk from a bottle feed. A few hours later, Charlotte was being flown to a children's hospital an hour away. Did I mention it was also December 23rd?

We spent Christmas and New Year's in the NICU. We were lucky enough to get a room at the Ronald McDonald House. My husband and I had to play the waiting game while tests were performed and Charlotte got the care she needed. After 3 weeks in the NICU we found out Charlotte had Prader-Willi Syndrome.

Prader-Willi syndrome is a rare disorder present at birth that results in a number of physical, mental and behavioral problems. A key feature of Prader-Willi syndrome is a constant sense of hunger that usually begins after the first year of life. Charlotte will never feel full.

After the initial diagnosis, Charlotte received occupational therapy, speech therapy, and physical therapy. She got a g-tube and 5 days later we were sent home.

Life has had it's challenges so far, but most of the time there is joy. I love Charlotte so much and feel blessed to be her mom!

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Reply: 4D :) And how do you post a pic?
That is so neat Becky. I absolutely loved my 4D experience! It's so much more real!
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Having a hard time Mentally
((Hugs)) We all have been where you are. What you're feeling is perfectly normal. Taking it...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: I need to be smacked
Thanks!
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: I need to be smacked
LOL I am a bit of a drama queen. I'm sure my husband would agree. I am feeling so much...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: GOOD NEWS!!! YAY!!!
Congrats!
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: I need to be smacked
I had a regular OB appt today. He was very understanding of my meltdown, bless his heart. I...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
I need to be smacked
I apologize for the long vent in advance. I have been miserable with a sinus infection for...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team!

M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Baby #2 is a.............................
Congrats! What a wonderful experience! I am so happy for you. More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: Claritin?
My OB okayed it as well. I took one yesterday but didn't notice a difference. I have a full...More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva
Reply: GTKYFP 10/14/10
Butter Cream Yankee Candles! The Macintosh Apple is good too. More
Me (41) DH(48) I will be induced sometime the 1st week of January 2011 We're on the Pink Team! M/C 6/08(unknown) M/C 8/09(trisomy 15)
Posted by agbdiva