I hope this will give you all hope. I am the mother of a 24 YEAR OLD strong, healthy youg man who was also diagnosed in utero with cystic kidneys. He has no health problems at all and played sports since he was very little through college. He was followed by a urologist until he was 2 years old when we were told that his kidney either disintegrated or shriveled up(i don't remember) butthat the kidney was no longer functional. Having one working kidney would do the work of both. The only things he was advised not to do was play football, ride motorcycles or handglide. He seems to do fine without any of those things. I wish the same health for your children. Neither of my other 2 children had any issues. I know it is scarry but no one would ever know my son has only one working kidney - living a perfectly normal life.View Thread
Hi - I hope I have some words of hope and encouragement for all of you. My son is now 24 YEARS OLD and this was discovered in him in utero through an ultrasound. I am happy to say he is a healthy, strapping, strong young man with no health problems at all. He played sports from a very young age right through college. He was checked as soon as he was born and my 9 pound 10oz baby was put in neo-natel unit to be checked out for urine out take etc. He was followed until he was 2 years old by the pediatrician and urologist and my recollection is that his kidney either disentegrated or shriveled and was no longer working . At age 2, we were released from urologist with the following instructions -- he will live a long, healthy life, but don't let him play football, ride a motorcycle or handglide. He's lived a perfectly happy life without ever having to do those things. He did play basketball at the college level. The worry would always be to not have anything happen to that good- kidney, but he has as much chance of something happening to the good kidney as anyone else. I was repeatidly told that the good kidney does the work equally as well as 2 working kidneys. So, I know this is scary to learn of anything not "perfect" with your child, but I want you to have hope that your child can potentially have a very healthy life. best to all of youView Thread
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