I don't think there are that many surgeons out there forgetting to tell us this stuff. I think there are a lot of patients out there that are perhaps overly optimistic about the side effects. They assume things will be rough for a few weeks. When it hits 2 months and you have sexual issues and are dripping like a sieve...that's when you come on these sort of boards and figure out what is really going on!View Thread
I would recommend a light high-fiber diet for the first 2 weeks. your digestive system shuts down from the drugs and surgery, so it does not move the waste thru very well. If you get constipated, the pain from that and the gas will be bad.View Thread
the surgery itself is not too bad pain wise. The first day it does hurt a lot. 2nd day, much less. In fact I was off the narcotics after day 2. But I did have a lot of pain related to the catheter--spasms, lower back pain, etc. Tylenol helped a lot, and when I maxed out of my daily dose, I added Alleve.
6 1/2 weeks out, and the peeing has finally stopped burning. Actually it was half burning & half "straining" pain. I guess things are just all tore up down there and need some time to heal.
Nurse said to lay off things that irritate the bladder, and that helped some: tomatoes, lemons, coffee, tea, alcohol.
There is an over the counter bladder calmer called AZO. If it burns a lot, that might help. You pee bright orange after taking it though. One pill at a time is fine (they imply you need to take 2 at a time).
I had enough pain that I was sure I had a UTI, but nope, the culture came back negative. It just is going to hurt some!
well, in the relative scheme of things, you are lucky. a 3 3 is realatively good, meaning it should not be an aggressive form of cancer. Mine was 4 3, which limited some of my options.
Seeds, beam radiation, prostatectomy, you need to check them all out. I might go with the radioactive seeds.
I was not given the seeds choice, because with the 4 3, they were too worried the cancer might be at the surface of the prostate where the seeds radiation might not reach. Did the davinci surgery. It was painful and a lot of after operation side effects. The radiation too has side effects, but the option of missing the pain is worth exploring!!!
I personally would get it worked on, instead of watching and waiting, but some recommend that way too.
Another tip, you are going to want a cushion to sit on to keep pressure off of your urethra after the operation. I tried various donut shaped pillow, and they did not work that well without major modifications. I did find a pillow that has a big cut down the middle, from front to back, called a "bladder and prostate friendly chair cushion" that works very well. You want to get one!View Thread
BTW, the good surgeons (the ones you want) are scheduled up to the hilt, so a couple month delay before surgery is the norm. I took a lot of lycopene, pomegranate extract, selenium, vitamin E, turmeric, luitein, genestein soy protein while waiting in an effort to slow any spread. Not sure if it helped or not, but internet reports on all of these show promise for stopping new prostate cancer growth.
Of course, you need to stop all this stuff at least a week before your actual surgery!View Thread
Well, sounds like me. A 4/3 is worse than a 3/4. In my case, the radioactive seeds were not recommended by the radiologist, as there was too much chance the cancer had spread. I was given a choice of prostatectomy or focused beam radiation for 6 weeks. I am younger (58) so I did not want any chance of recurrence 10 years down the line, so I decided on the surgery approach. I had the davinci nerve sparing surgery. Ended up loosing 30% of one nerve, 10% of the other nerve, and one of my lymph nodes. Dissection after surgery says the cancer was contained to the prostate gland, so I guess I could have also done the radiation and had similar results.
The surgery....the actual surgery is not that bad. the external openings are very small and healed fast. The internal stuff--well you are going to have pain for at least 4 days after the surgery. I ended up having pain, at decreasing levels, for around 1 1/2 weeks. Then I had spasm-like pain...probably from the darned foley catheter. They even had to re-insert the cather at the 2 weeks point as I could not pee.
Finally at 3 weeks the catheter is out, and I have not too much pain.
In retrospect, constipation is a problem, so be REALLY careful what and how much you eat. You do NOT want to get constipated and have to strain to get anything out.
You WILL be very tired from the operation. At 4 weeks, I still take a big afternoon nap. You will not feel like doing any work! You will be tired and lethargic, but once again it gets a little better every day.
Work really hard at keeping that catheter clean, because I think the majority of spasm related pain is a result of mild grade urinary tract infections.