Bounces after radiation are pretty common, I am told. What you are experiencing at present is likely no cause for alarm. However, if you have a series of consecutive rises, then you will want to attend to it.
I had seeds (12/05) followed by 7 weeks of EBRT in the early weeks of 2006. I was 48 at the time. Of 12 biopsy samples, 10 were positive for cancer and an eleventh was "suspicious." The percentages ranged from 5% at the low end and very high--I'm trying to recall--like 80 or 90% at the high end. There was a bit of grade 4 in one or two of the samples, so my Gleason was 3 4. Digital exam was normal--twice.
My PSA was approaching 4.0 going in to treatment. Immediately after treatment it had dropped to 1.8. Then, as I seem to recall, it went down to something like 1.2, then back up to 1.6, hovering around there for a couple of PSA checks. I was getting nervous.
So I definitely experienced a bounce, as many patients do. At the same time I had some pretty awful urinary symptoms, including some bouts of dark blood and clots in the urine as well as urinary restriction and urgency (I fell a step or two short of the restroom a time or two). My best guess is that this was all due to residual inflammation from the radiation.
But eventually--after 18 mos or so--my PSA began to descend and my symptoms completely disappeared. The PSA went to 0.1, where it has now been for 4 or 5 years.
Happily, many of the details are now fuzzy as I have not had to think much about either the disease over the past few years.
The clinic where I was treated views treatment as successful if the PSA drops to 0.2 or less and stays there. Here's hoping that this is where you are headed!
I frequented these boards some 8 years ago when I was diagnosed. I received much good info and guidance. Went on to choose a treatment for my rather aggressive PCa and have lived with good results ever since. (Ask me and I'll share more. I'm quite happy with my choice, but will offer an honest assessment. )
I'm actually here for a friend who was just diagnosed. He's trying to learn of treatments available, and was interested in Proton therapy (not what I had). He lives in Central Florida (Space Coast). I am wondering where the best centers in Florida are for this treatment. I had thought that Mayo in Jacksonville offered this, but so far I'm not finding clear evidence of this. Thought I'd seek out some personal experience.
Thanks for this very helpful information. I found their web page, wrote down their contact info, etc., and gave it to him. This sounds ideal for him.
I wound up choosing RCOG. Had seed implants in 12/05 followed by 35 EBRTs. Had a couple of PSA bounces and some rather nasty side effects in the first 18 mos or so, but my PSA settled in at 0.1 and hasn't moved. No side effects either as of today. I'm happy with RCOG, but had proton therapy been more widely available then I might well have gone that route.View Thread