Thanks for all the great response to my post last month.I am now on Orencia IV Infusion monthly it has...
Posted by An_259913
Thanks for all the great response to my post last month.I am now on Orencia IV Infusion monthly it has helped a great deal but still have intermitting flares and pain.I am on Cymbalta 60 now as well as the pain meds as stated before.Weaning myself off the pain meds right now and trying to see how my pain level without the meds and see if I can tolerate it.The pain meds are not good for my system at all.So far so good but the flares and severe swelling there despite the infusion.Having a little more pain relief than before.Thanks again for the support!!!!View Thread
Hi[br>I was diagnosed with rheumatoid arthritis & put on methotexate. It gave me bad diarrhea & I...
Posted by An_259902
Hi[br>I was diagnosed with rheumatoid arthritis & put on methotexate. It gave me bad diarrhea & I had to go off of it. Now I'm on Leflunomide and it is giving me bad diarrhea also. The kind of diarrhea where you can't make it to the bathroom in time. I prefer to stay on one of the above named drugs as they were helping the rheumatoid arthritis but we can't control diarrhea. Has anyone had this diarrhea problem with the above two drugs but found a way to control it? Thanks.[br>[br>SandyView Thread
Hello my name is Kornelia.I just got diagnosed with RA. I decided at this point not to take meds because of the lenghty side effects.i would love some advice on diet.i already cut out all breads. There is so much conflicting advice on the internet, on what to eat, or not to eat, i am confused and could use some advice diet changes i should make, and what has really helped.. I had my first flare up last weekend in my left hand and it was very painful, had to go to the ER. So glad i found this site. So apreciate any advice!.Sincerely Kornelia !View Thread
I knew to expect some tiredness with starting methotrexate, but I'm having some pretty extreme fatigue. It started the day after my first dose and hasn't let up since. I took my 2nd dose (10 mg) a few days ago, and in addition to the fatigue, I'm now having severe leg & foot cramps at night. The doctor wants to up me to 15 mg on my next dose; not looking forward to that. Will this ever get better? I have an intense, sometimes stressful, job and can't afford to be too tired to concentrate or work.View Thread
My husband of 8 years is fed up with a wife on disability and not bringing in decent money.He told me I have...
Posted by An_259867
My husband of 8 years is fed up with a wife on disability and not bringing in decent money.He told me I have just been using him the entire time we have been togeather.He knew I had rhuematoid when he asked me to marry him.His terrible treatment has been just getting worse as time goes by.He does not show compassion and blames me for the disease and my pain.He has become more controlling.To get his way he shuts off my cell takes the car keys .Gives me no money.Will not help me with anything that is physically difficult for me.He is so sick of me and his actions make it clear.He berates me almost on a daily badis.He has ripped away my self esteem.He does not value me.Its all because of money .I have no money can not work have no place to go.Can not make it on my own.Its nohing short of a night mare.He accuses me of so many untruths its gut wrenching.Any body have any ideas?View Thread
I was diagnosed with RA when I was 16 years old. I am now 54. Since I couldn"t avail myself of the use of...
Posted by Anon_63496
I was diagnosed with RA when I was 16 years old. I am now 54. Since I couldn"t avail myself of the use of biologic drugs until their introduction when I was in my 40's, I have suffered a lot of joint damage and wear and tear. My latest and most bothersome issue has been my neck. Is there anyone out there dealing with cervical spine problems and do you have any suggestions for alleviating this pain?View Thread
I've not been on here in a while .but was just wondering if anyone has been diagnosed with any kind of kidney problem cause of their RA ... and if so what was your symptom's ... So I thank you in advance ... for a respond....View Thread
I've had minor arthritis in my life before, it caused my hands to hurt a little bit but it never lasted long, Fast forward a few years, in the last couple of months my hands have been feeling constantly in a strange sort of pain, but it's a weird sensation... Instead of regular pain, my hands feel tight as if I need to crack my knuckles but they will not crack, the skin feels tight and the bones beneath feels sore, It gets even worse if I get them wet with hot or warm water, the only relief I can get is when I run my hands under cold water. They don't really feel "numb", I can't really find a way to figure out how to word how i am feeling.
I have no idea what this is, if this is arthritis.. How can I help it? I'm always in pain.View Thread
Natural, concentrated calve proteins taken as sublingual tablets, reach quasi instantly the immune system, bypassing the digestive track; we can send free samples to ten people suffering from rheumatoid arthritis; please apply by email to virapress.com entionning JP Paats;
We have seen interesting reactions to supplementing the immune system in cases of viral attacks and autoimmune dysfunction.View Thread
I know some discussions were posted 2-3 years ago, but I wanted to get a more recent opinion. I'm 37 and got my first case of shingles 6 months ago when I started on methotrexate. My doctor now wants me to start Humira, but insists I get the shingles vaccine first. I understand it's not FDA approved for my age so I'm having trouble finding someone to administer it. Also, I'm concerned about the unknown risks for my age group against what seems to be little known risks of getting serious infections from a shingles outbreak. Can anyone provide me some help or even opinions on this?? Just FYI - I'm also in the middle of discussing this with my PCP and Rheumy. And the vaccine is going to cost me between $200-300.View Thread
I just had my blood work done a few days ago to either rule out or in RA. So far, I only know about the...
Posted by An_259592
I just had my blood work done a few days ago to either rule out or in RA. So far, I only know about the fibromyalgia and that I have some sort of major "inflammatory" arthritis. I have been taking Cymbalta for about 2 1/2 years for the fibro, and it has worked remarkably well. But for the other pain, the only thing that works is percocet which I hate that I have to take but it works so well and I am able to function every day. Thankfully, I have a great relationship with my primary care doctor; he is easy to talk to and heaven forbid if I ever felt I was having a problem with the percocet I can easily go to him with no problem. He monitors me very well, so I am comfortable with that as well. I am rather anxious, though, to see the results of my blood work so I can once and for all address whatever this is and take the necessary steps to get more appropriate care/medication or whatever!View Thread
Recently diagnosed with RA, also have type 1 diabetes,Hashimotos and Lupus. Also gluten sensitivity and diary. Also found out have bad Gerd. Whew! Have been on a lot of RA drugs with no luck , none work. Do Prednisone when can't take pain but that messes with my blood sugars. I have started reacting to almost all drugs. The next ones they want to try are Orencia,Actemra and Rituximab. Have researched them sound a bit scary especially since I am reacting to drugs weirdly. Anyone out there have luck or not with any of these? Worried about damage because i can't find a drug that helps. Can't stay on Prednisone for ever. My blood work is always normal, nothing shows in my blood which just makes this whole experience that much more frustrating.
I am new here and first time writing. I find you learn the most from these boards. Hello everyone.View Thread
The pain in my hands is so bad, it even keeps me awake/from staying soundly asleep, It does not seem to go away either as the day goes on, Does this sound like RA? I have not been tested for it.View Thread
I am new to this forum- I am in the process of seeing docs to determine if I have RA from symptoms that started about 3 weeks ago and have slowly been getting worse/more intense- I have pain, swelling, redness in symmetrical joints in hands (index and middle finder are bad, thumbs too, and most of the knuckles at base of hands are red, swollen and hurt like a BLEEP), both wrists are swollen, some swelling at base of feet, and elbows are red and hurt at intersection of bones- I guess that would be a joint, right? ) and sometimes pain in my shoulders. I feel extremely fatigued- like, difficult to describe type fatigue and a kind of tiredness I've not had before, and touching my aforementioned joints are extremely tender. Anyways- I went to a family practice doc, he barely did any kind of physical exam (simply looked at one hand, but listened to my symptoms) and ordered some blood tests, including the anti-CCP antibody test.
So- my question is this- aren't anti-CCP antibodies, at any level, considered abnormal? I mean, a healthy person wouldn't/shouldn't have ANY detectable amount of these in their blood, at any level, right? Or am I wrong? I have read a number of medical studies as of late, recent ones, and many are now stating that the diagnostic level considered "positive" of detectable anti-CCP antibodies should be lowered (some say as low as 2, but most are stating 10) as it has proven to have a higher sensitivity in diagnosing and predicting RA.
Depending upon the exact test (most from my understanding are the ELISA type), most manufacturers of the tests state that a level under 20 U is considered negative. HUH? My test came back 15.6 U. I just can't wrap my brain around how this is considered negative- in conjunction with my clinical symptoms. Because of this one blood test, and an ANA test which came back at .4 U which is also considered negative (anything under 1.0 U is, but this also echos my same question/confusion as the anti-CCP antibody test), my doc isn't doing any follow-up nor referring to a RA doc. It's so frustrating when docs simply rely on their tests and not the patient in conjunction and then dismiss you entirely if you don't "fit" nicely into their criteria.
Has anyone had RA physicians explain this, or have you had anti-CCP tests with a similar level and considered negative, or for that matter, positive- OR- had a physician say that it was positive due to recent studies strongly suggesting the levels be lowered? I just don't get why I even have ANY level of anti-CCP antibodies at all if I don't have RA. I know you can have RA with normal blood tests, but I just can't accept that my anti-CCP antibody test as "negative." Wouldn't a TRUE negative be ZERO??? Could it be that I am very early in the disease as well and my levels just aren't at the "set criteria" for a positive YET? So confused how you can call something negative when it is in your blood.
Anyone with insight or explanation is much appreciated! And God bless and sending strength, health and wellness to all of you living with this disease. Thanks in advance. Joolz9View Thread
Little background - I'm 40 and active and I've recently received the diagnosis of Rheumatoid arthritis & fibromyalgia. I've started taking a Yoga class as recommended but had to skip this week as I only had a limited number of moveable joints on Yoga night. In fact Last Sunday I had a major flare, the first since I started seeing the rheumatologist. She saw me Monday and said I seem to have a very aggressive case and wants me on mtx sooner than later. However she wanted me to have flu/pneumonia shots first so she put me on 30mg prednisone, and basically said I would be in pain for the next couple of days. After 3 days I was having massive unrelenting headaches,neck & shoulder pain, and while the swelling has reduced my joints are achy and I get shooting pains from toe to knee & fingertip to elbow. I called & she upped my prednisone to 60mg and told me to call today if still in pain. So I called today & let her know my hands/elbows are feeling much better but headache persists & still just not sleeping because of the pain in my neck/shoulders/foot. She says if it gets worse go to ER & get a steroid shot.
I'm a bit concerned that all she wants to do is fill me full of steroids. Should they be working quicker? Is it really safe to take that much? Also she is the one saying I have fibro so if the pain remaining is caused by the fibro & not the RA should she even expect the steroids to help that? I'm not sure what to expect with all of this. It is terribly overwhelming & I'm terrified of having to spend 5-7 days in pain until the steroids kick in next time I flare? If she moves me to the MTX is it going to work faster or does it also take days to see relief? Should I just accept the fact that I'm going to have days & days of pain from time to time now? I'd love to know what other people have experienced & how their doctors handle their pain. I just want to be sure I'm starting this dreaded journey with the right doctor who is concerned with not only helping me control the RA but is also concerned with my quality of life & comfort. I have two young kids to care for & a career, I can't let pain rob me of that.View Thread
Hello, I am having a problem and thought maybe by posting this SOMEONE may have an answer for me. Here it goes.
Over a year ago I noticed that on the corner of my fingernails, there would be something like a blood blister. Then I noticed that near my joints there would be a sore spot for about 2 days and it would be painful and turn into a clear blister filled with clear fluid for about 2 days and then it would fill with blood and be that way for a couple of days and then would become callus and peel off.
I have a Rummy that I see on a regular basis but he has no idea what is causing it. He has sent me to a Dermatologist and they biopsied on of the blisters with no results. Sent me to my regular DR for blood cultures, which are negative and HE referred me to Cardiologist to rule out Hear trouble.
I take Humaria and thought maybe it could be a side effect but spoke with Pharmasist and she said, it would not do that. but felt I was on the right track with Dermatologist.
I'm just wondering if ANYONE out there has ever experienced ANYTHING like this and if they would SHARE with me.
Thank you for your time and I look forward to hearing from ANYONE.View Thread
I have done all the biologics none of them work.Tried methotrexate,all the NSAIDs nothing has worked.Now I live off of oxycontin 30 mg and Oxycodone for rescue in between pain.I also take Naproxen 500 twice a day.Please any suggestions I'm only 42 with 2 little kids I can barely function.Any advice?View Thread
I found out in march 2014 that I have RA, Fibromyalgia and my rhumetalagest is concerned about Lups. Is it always going to be like this? Im always in pain, some days more then others. Sometimes I feel like I have the flu and others im slow and slightly dealing with pain. Does it get better? Im taking 1200 ibprophine, vitamin D and 4 others that I cant remember. Im not sure if they help. Not sure what im asking really, I just feel lost and in pain. My husband is caring but truly doesn't understand. Is there a support group or seminar we can go to and understand together?View Thread
Hello, Last week i was diagnosed with RA. I'm currently having a lot of swelling in my ankles. I'd love any...
Posted by An_259306
Hello, Last week i was diagnosed with RA. I'm currently having a lot of swelling in my ankles. I'd love any advice in how to get the swelling down as well as any helpful info about this disease. I'm feeling lost Thanks for your help DebbieView Thread
RA runs in my family. Father, mother and two sister plus various aunts, uncles and cousins. I just found out on 9/17/2014 that the only thing that will relieve some of my pain is a total hip replacement then both knees need to be replaced. I am seeing an orthopedic surgen and can't get into a rheumatologist/pain mgmt. doctor until February 2015. I have know idea how I am suppose to live with the severe pain I am experiencing. Two of my sisters have RA with Fibermyalgia....I have severe symptoms of fibermyalgia. I also suffer from a mental illness. I would take five mental illnesses as opposed to having RA and needing surgery. I have never been more depressed in my life...I can't see a psyc until October 7, 2014. The carrot is dangleing in front of me...people say I will get help I just have to wait until someone elses time frame Any suggestions on how to mentally deal with the sever/chronic pain would be so very helpful.View Thread
I was diagnosed 18 years ago with R.A. but have been remission for 13 years. I have recently been told my R.A. may be acting up again. I also have I.C. and am wondering if it could be caused from the R.A. also the lining of my lungs are inflamed, and their is scar tissue on the outside of the lining of my left lung, just wondering if this is all related to R.A.View Thread
I took my first does on 4 pills last Thursday after one week of relafen which did nothing for me. (I have psoriatic arthritis as per my rheumatologist) Since I took my first dose, I seem to be much worse than before. Every joint in my body aches, I can barely walk, no strength in my legs/knees, my hands are more sore than before and I am having some headaches. Is this normal when first starting out on this medication? I am a little scared about the rapid worsening of my symptoms and almost want to stop taking this drug. Has anyone else had these issues and if so, did they go away after a while and did you actually feel better? Any information will be greatly appreciated.View Thread
Hello, I am wondering if any one with degenerative arthritis and what career do you have? Is this current...
Posted by Anon_23422
I am wondering if any one with degenerative arthritis and what career do you have? Is this current job better for you comparing to others in previous?
I have degenerative arthritis since all my life without realizing that, and I am only 33 years old, will be 34 next month. I recently found out from the doctor last week. Reason, I had an accident with the box hitting on my collarbone and shoulder in the freezer room 3 weeks ago, by picking up the box that had white cakes in it. I am a cake decorating. Now, I cannot do the cake decorating probably for 8 weeks.
I am an artist by heart, and passion. I am a painter, and a comic artist and that is my side art business. I just got the new job as a cake decorating three months ago.
As the doctor order that I cannot drive with both arms due to my right arm that is injured needs to rest, and avoid much of movement till I get recovered. So, there is not much for me to do at Wal-Mart that is where I work as a cake decor-- my boss does not have any thing to offer me to work as a temporary job except hanging clothes and cleaning.
I did try with cleaning, it was so pressure on my arm side even I did not use it, mostly using my left arm, and that was big impact and I was in pain later at night and the next few days.
The same thing goes with hanging clothes with just left arm. So now doctor orders, my left arm cannot lift anywhere overhead. It has to stay down as long it has to be all under the level at my ribs. I thought of computer job related such as typing, data, shuddering papers... something simple..
But no, there is nothing except cleaning, and hanging clothes and that I HAVE TO WORK. I am so frustrating, and my boss seems does not get it.
So, I am serious reconsidering a different career however I am not sure if I am over reacting with degenerative arthritis because I am still in shock with the news and I am upsetting especially I am an artist mainly in my right hand and my right side is disable for a long while!! I cannot drive, I cannot lift things with the left arm, and I cannot do a single damn thing!
Not just degenerative arthritis, I have issues with the bursa itself that is not firm enough between bones. It is in my spinal, and both of my shoulders. That explains why I often feel pain on my spine all the way down, and a huge headache.
If I just try to overcome with doing things, I get the suffering from the pain all night, and the next few days. There is no win-win unless I change the career???
have polyarthritis in all my joints. i have mild swelling in my joints except my elbows. mostly effected are the large joints my spine, shoulders and hips are the worstly effected.
my test was
RA factor 15 (normal 1-14) ANA 1:160 nucleolar HLA B 27 gene (highly correlated with spine arthritis) WBC count 14.7 (normal 3-11)
what scares me is my rheumie says i prob have two autoimmunes. ankylosing spondylitis and maybe ra. he said ra factor is never pos in ankylosing spondylitis alone and it also doesnt come with a positive ana. usually the ankylosing spondyliyis only showes the hla b 27 gene
is a ra factor 15 significant for RA? i have alot of swelling in my elbows but the other joints it seems mild swelling but mostly tendon swelling. my elbows is synovial and tendon i believe. they are the worst. i have joint pain even in my JAW the only place i do not have it is my feet and hands. i have it in elbow, shoulders, hips, spine, neck, wrists, and ankles.
can someone help me? i have been misdiagnosed for 2 years. i was told it was fibro by my orthopedic surgeoun. now im becoming very disabled and im only 28. is there any hope for me?! what could these results mean ?!View Thread
im screaming out for help I don't know how much longer I can take it my name shawnda im a single mother of 2 girls 9-5 im 26 years old trying to live a normal life I have fibromyalgia, mixed connective tissue, rheumatoid arthritis, I had these diseases for 4 years in its only getting worst I take lyrica ,Norco prednisone,(norvasc for my blood pressure) morphine , ambien for sleeping will those to pain pills does not last i been on norco for years the highest dose in i just started taking morphinea a month ago 15mg not working i feel like im burning in the inside of my body every day along with pain EVERYDAY where do i start far as eating any vitamins what not to eat a different pill what will help please.please comment if u have what i have in tell me what do un do to ease pain in this burningView Thread
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