I was diagnosed with RA about 3 1/2 years ago. Have been on prednisone, methotrexate and Humira for it. Lots of medical problems lately and diagnosed with pituitary gland tumor. Humira is on hold until I see neurologist next month. Also off prednisone presently because I DO NOT like this drug. For the past few days have been having shaking chills and seems like every joint in my body hurts esp in my hands, knees and right shoulder. Is this a flare? When RA started it was brutal and pain was much worse. So I am confused. Do I need to start the dreaded prednisone back? Or do I need to call my rheumatologist as it was my pcp who ordered me to hold the humira? I hate this disease and I have had never-ending medical problems since RA diagnosis and beginning the meds.View Thread
Well seems as if my pcp thinks I have renal insufficiency and the fainting spell was due to an acute adrenal crisis BUT my rheumatologist doesn't agree with that diagnosis and says no to changing my meds. SO what do I do noe? I'm sick of being sick and just want to cry over all this.....View Thread
I have had RA for over three years and just last month I was diagnosed with acute adrenal crisis after fainting while on my way to pick up meds from pharmacy. I fell on the pavement and evidently landed on my face. I had abrasions over the right side of my face with a black eye. It was really bad. My main problem is EXCESSIVE sweating. I mean my clothes are constantly wet. Sweat literally pours off me. My hair gets wet and I look like I just stepped from the shower. Sweat drips from my hair and face. My PCP says that the treatment is more steroids. I take prednisone, methotrexate and humira plus other meds for hypertension and cardiac dysrhythmia. BUT he refuses to change the dosage of the meds until I see my rheumatologist. I am so sick of all this. It is so depressing. I can't go anywhere without looking likeI just ran five miles. I forgot about makeup and fixing my hair months ago. This has been going on for awhile and I just want it to go away.View Thread
I have had RA for nearly three years - on humira and methotrexate for over two years. But just recently I have been having soreness in my bones. I have sharp pains in both knees and both wrists but the rest of my body just feels sore all over. Even my chest and especially both hips when I turn over in bed. The humira has been working well but could this mean that it is not going to continue to be effective? Like I said the soreness seems to be in my bones. I have never had this kind of discomfort before. When my symptoms first started it was just severe PAIN. Has anyone else had this happen to them? I really don't want to start on different meds unless absolutely necessary. I am just kind of worried about this. Anybody got any ideas????View Thread
I'm sorry to say that the sweating hasn't gotten any better for me. I can't do ANYTHING physical without becoming flushed and wringing wet with sweat. Even my hair becomed drenched and sweat drips from it and from the end of my nose and all my clothes end up being wet. Very uncomfortable to say the least not to mention down right embarrassing. I suspect people look at me and think "drug abuse". Oh if they only knew. I am on folic acid since I also take methotrexate but I haven't had much improvement with the sweating. So all I can say is that if you find anything that helps please let the rest of us know. Actually I suspected the metho as being the culprit but I don't know since I am also on humira so I guess I'll just stay on ALL my meds and hope for the best and for a cold winter....View Thread
I currently take methotrexate, humira, folic acid for my RA. I am also on several meds for hypertension and a beta blocker. My question has to do with the methotrexate. I have severe sweating and flushing episodes where my face, neck and chest turn very red and sweat literally pours off me. My hair becomes drenched and drips sweat. I was wondering if I took the metho by injection other than by mouth if this may help with the sweating. My daughter is getting married this week and I would love to keep my makeup on until the ceremony is over if possible. Has anyone had any experience like this and does anything help? I would appreciate any info or tips that anyone has. Thanks. Baytan2View Thread
I received notification that my SSDI was approved around six months ago. I applied in October 2008, denied January 2009, appealed in March and won my case in July 2009. However I must wait two years for medical coverage to kick in and I think this is just ridiculous. I was working when I became ill and I kept my COBRA insurance coverage when I had to stop work. However in December I was notified that my payments will now be 799.00 plus a few cents every month. I am taking prednisone, methotrexate, humira and numerous other meds for high blood pressure. Just had visit with rheumatologist last week and forced to stop mobic due to abnormal labs. I want to drop the insurance coverage due to the high cost but am afraid to do so especially now that I may be beginning to have problems with meds and such. But I really cannot afford these outrageous premiums. I feel that it is just unfair to work and dedicate my life to helping others (I was a nurse for thirty years) and become ill and still have to wait for insurance coverage when I would still be working if I was able. I am grateful that I did get my approval but the system is very screwed up that works this way. I was instructed not to take any motrin or tylenol until my labs are repeated in one month and I have had severe pain in my knees today since I assume I am not supposed to take my vicodin since it has tylenol in it. I'm sorry if my post got off topic. In summary, I was close to a year in receiving my SSDI notice and it seemed like a terribly long time. Congrats, HuskerKittyCat, glad you were awarded and you are correct, it does make everything a little easier just having a few dollars in my pocket to pay necessities and I wish all our fellow RA's on here the best with their fight to receive what we worked and paid in. Good luck, all.View Thread
I became unable to work in April 2009. I filed for disability social security in October 2009. I was denied and filed an appeal and had a hearing before a judge in May of this year. I just heard last week that my claim has been approved and I should begin receiving my monthly checks next month. This whole process was foreign to me as I don't know anyone who has gone thru this process. I had to report to my social security office and the lady that spoke with me was very nice and evidently I am eligible for SSI for the months that I had no income. I also understood that I will receive a medical card that will back up and pay medical bills. However I have been paying for COBRA insurance thru my last place of employment. This has really taken a huge load off me. I am just so grateful that I won't have to keep fighting for what rightfully belongs to me anyway. The system is definately not fair and I can only advise anyone who is fighting to continue and don't give up. And yes I did have an attorney who specializes in social security cases. Also as I understand it - the medical card will only pay for past care and there is a 24 month waiting period for a new medical card to kick in and pay for future care and we all know that we will have to have medical care for the rest of our lives.View Thread
Hi NE_Rosie, I have been on Humira for nearly a year and it's not so bad. My daughter gave my first injection but I have been doing them since. I don't mind the actual stick but the medication itself stings and burns. However I have found that if I let the med sit out of the refrigerator for about an hour until it comes to room temperature that it doesn't sting quite as bad. Also the syringes are filled with the air bubble to ensure that all the med is injected. I take methotrexate tablets so I don't have to worry about that one. But I do inject vitamin B12 every month so I guess I'll just try to get used to the sticks. I know that I would rather take the shots than suffer the horrible symptoms that I was having before I was diagnosed. I had to have my daughters help me to the bathroom. The pain was excruciating. I NEVER want to go through that again. Just try and give yourself some time to get used to the shots and I hope that you find it gets easier after awhile. Happy and healthful thoughts to you.View Thread
Hi Anon, unlike you I developed eczema years before I was diagnosed with RA. It began with small areas on my hands and I now have it pretty bad on both hands and on my feet. My pcp diagnosed it as dishydrotic (? not sure if that's spelled right) eczema and I saw a dermatologist who prescribes steroid cream. Actually right now my right foot is really bad. I never thought the two could be connected. Wonder what I can look forward to next. All I have to say is that I am sick of all this.........View Thread
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