Right now just dealing with some perceived liver damage- from methotrexate and tylenol maybe. Now I'm getting an ultrasound though my liver tests have gotten better. The Actemra is great so far. I have never been in remission and I really want my life back. A lot of those older people you see with RA have had it since your or my age (I got it at 39). Hope you're doing okay too,View Thread
I'm not your age (44) but would like to welcome you and wish you luck with the friendships. I have been on 4 biologics in the last 4 years (I've had RA for almost 5 years. Humira was my first biologic) and no remission yet, I think the severity of the illness and markers matter when judging these medications. For me, the TNF blockers never helped for very long which just meant we should try something designed differently. Good luck ahead and also hope you are having a 'good day'.View Thread
I saw your discussion of elevated liver tests. I was recently taken off mtx and tylenol, asprin and alcohol (not that I could drink being on biologics), they said my ALT is 99 & AST is 54; nobody has really given me any answers when I ask why I'm so tired, etc. I know besides RA I have Fibromyalgia so I thought maybe the symptoms were blurring and tried not to worry, Instead of answers they have scheduled ma for an ultrasound in about 2 weeks, with my condition I want to understand more about what these tests and numbers mean- can you advise?View Thread
I really understand what you're saying. I was diagnosed at the start of 2008. I used Humira first & after 7 months I noticed a drop off of its effectiveness. The Dr suggested Remicade, which is a real hard ass, but did work for a few years; though the amount was increased until I could no longer use it because it too, dropped off. I got handed a new rheumatologist about 6 months ago, because the clinic does that and he suggested Orencia. I have had some relief but I still have flares too often (according to him) and daily have quite a lot of pain (certain areas are worse of course). I spoke to him yesterday; he said he 'didn't feel or see any inflammation' in my hands so it must be my fibromyalgia, I wanted to scream at him- there he sat, able to type and use his mouse fluently and he acted like I didn't know my own pain! People say 'get a new Dr'. I honestly can't... My insurance will pay for this specialty clinic and I have to drive 80 miles going and 80 coming back. They pay well (low co pays etc) but I am feeling very let down. Things are bad at my job (of course I run 4 systems on computer for a pharmacy and they value quickness-I don't know how long I'll have a job). I read articles that people go into remission & they beat the pain and have a flare about every 3-4 months if not in remission. It sounds so wonderful. I think your Dr should get you a new biologic since there are many, An_248298, Don't let them walk over you. I told mine we needed to try a different biologic if they all attack certain aspects of RA. My PA is pending & I will be speaking to my plan soon if my Dr keeps looking 'past' me. Good luck with yours too!View Thread
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