I am so sorry that your needs photos for proof of your RA. It's like the instant we diagnosed with RA our hands and feet start contorting into an unatural state. My mom was the same way at first. All I heard was that was too young (26 @ the time), too healthy, no outward signs and I am a man. Guess all those things instantly make me immune?!?!?! It wasn't until I asked her to go to an doc appointment with me. It just happened to be a really bad day for me, so I was moving at a snail's pace and I was in tears. At that point she could tell something was not right. During my visit the doc went over my blood counts, mobility and relfexology. After which, I had him explain RA to her. The most important thing he said, was just because you can not see anything, does not mean that nothing is wrong. RA developes as it goes and the "normal" things that people associate with RA (twisted and bent fingers, toes, etc..) come after years of having RA.
The main point of this is....DO NOT let your sister bring you down, judge the doc's diagnosis and make you feel crazy. Ask her to go to an appointment with you so your Rheummy (RA doc) can explain and answers questions.
I guess I am one of the lucky ones?!?! I have been doing .5ml injections onece a week for years now. And, thus far (knocking on wood) I have had no side effects. My Rheummy did injections versuses the pill form, because it is less harsh on the liver and since I have an elevated undetermined liver enyme, this ws the best option. I also take 400mcg of Folic acid to aide in helping.
Metho has helped me a lot, compared to where I was two years ago. Never did nor understand now why my old Rheummy never suggested metho as an injection.
Peace Out, Kel
Talk to your Rheummy and together you can find ways to curb the side effects of metho.View Thread
I am a 33yo male and was diagnosed with agressive RA 6 years ago. Since guys make up a small percentage of RA suffers, was wondering if there any other guys on here? I feel so alone sometimes, because I feel like I am the only guy iwth RA. It would be great to find others and have someone to talk to.
Thinking about now, in my early 20s was diagnosed with TMJ (don't know the real name) but it is basically jaw pain, clicking of the jawbone and ocassional locking of the jaw.....no swelling that I have noticed. Not sure if it that is connected with my RA or not....I forget about it most o the time...so used to it.
I am on several meds myself....Metho, Enbrel, Nabumetone, Plaquenil, Oxy 80s and 30s for pain. Then there are supplements Vitamin D and Testosterone (which my RA doc said low levels of those can complicate pain). I have severe flare ups and am in the midst of one right now. I have been laid up the past two days.
I was sorta forced to go on a medical LOA (retail manager) because the constent walking, bending, squatting..blah blah blah and was in tears at work and after if pain was really bad. I fought for my long-term disability through my company, that I pad 6years for, only to be denied several times. Only to start SSI.....i hate it!!!! I have to fight for and defend myself everyday!!!! Be glad you work for yourself and can work around your flares, not many of us can do that.
Thanx!!!! I will check your friend's blog. I have been meaning to go to my local Arthritis Foundation, but there never seems to be a good time. I either hurt or my fatigue is bad. I may just have to force myself to go and check it out. I know there shoulld be a lot info for me.
I am not a peri-menopausal woman. In fact I am a male with RA. My RA doc noticed that my testosterone was low and pu me on weekly injections to raise my levels. He told me that my low testosterone was complicatimg my pain and energy level. I have been on the injections for a year now, while I have noticed some changes, my pain level s still high. But, that maybe due to my agressice form. I hope this helps nad gives you the psuh to talk with your RA doc.
I guess it is common place to amke you run around before diagnosed. It took me about 2 years and really awful scare to get diagnosed. My docs at first thought had a blood cncer of some sort, so I had emergency meetings with Hemotologist and Onconologist (spelling?). They were talking chemo, radio and transfussions before they had my blood to properly test. I was 25 at the time, scared to death of leaving my partner and family behind. My mother-in-law was trying to find a lawyer so I could get a Will drawn up. What's up with Docs using the scare tactic?!?!?
I feel your pain. Is your pain/stifness afecting the same joints on the opposite side? If, you say yes...chances are you have RA. Don't be scared, talk with your primary and get a referral to a good Rheummy ( I like saying this better, thanx Diyster). Getting diagnosed early on is your best bet, that and having a good RA doctor.
A little backstory about me; I seem to be a lone wolf when it comes to RA.....how is that you ask...I am a 34yo male and had many of the symptoms of someone who had RA for years when I was diagnosed 6 years ago. The first thing that alerted my primary were the development of small, under the skin bumps (RA nodules) on the underside of a majority of my toes and an extremely high white blood cell count. I had extreme morning and evening stiffness, my knees were swollen (Bursitus), extreme pain (to the point of tears) and the dreaded fatigue. I was referred to a Rheummy (who happened to be a quack) who confirmed my primary's suspicion. I had RA, and boy did the numbers show it. Numbers don't really matter that much when testing for RA, but my rF (rheumatoid factor) was around 1,400. I switched RA doctors two years ago and my new doc is....well he is my god send. He has done more in the last two years than my old one did in 4 years. However, we can not get my rF count to go below 700. It seems I doomed to forever have a case that is not responsive to meds. I am on Enbrel an Methotrexate injections along with some pills now. I am looking into the IV drug treatments now. And, I have to say....I am pretty scared about this avenue.
Are there any men with RA on here or chat groups centered around men? I really feel alone, as guys are not as likely to develope RA and I am the only one in my famly (that we know of) who has been diagnosed with it. I do have a really close girl-friend from high school who has RA and Lupus, so we lean on each other when it arises.
I wish you the best of luck, Bijoubear. Find the right doctor and start treatment ASAP. Thanks for reading my ramble, it feels good to talk about it with someone other than partner, fam and docs.