I'm sorry to hear that you have RA on top of dealing with spina bifida and now depression. I can imagine you are having a very hard time right now.
If you don't have very many people to talk to, I'm sure you will find these forums helpful. I was in an extreme state of depression when I posted this and I found it extremely helpful to talk to others who can relate to having RA and having to deal with the medications.
I hope and pray you get the support the you need during this difficult time in your life. Hang in there!
I can definitely relate with you. Recently I was extremely down, frustrated and sad about dealing with the medications and their side effects. I was diagnosed six months ago and I'm now on my 3rd medication. I have found that almost all of the medications have scary side effects but I tell myself I have to keep trying. One of them is bound to work eventually, right?
Being patient and waiting for the results is hard, but I'm looking forward to the day when I will start feeling better and back to normal.
I hear a lot of people say "one day at a time" and I think they are right...it just takes time.
I don't want to discourage you from Enbrel by any means because it sounds like it works for a lot of people. Some people have said it takes 3 months before it really works.
My personal experience was different. I only had 3 doses and I started having issues after two. I was feeling pretty bad physically/emotionally and after the third dose I asked my doctor for something different because I felt THAT bad. That is just me though...everybody is different and will have different experiences.View Thread
P.S. One more thing...don't hesitate to call your RA doc back or make an appointment. I've had to talk with the nurses many times for help when I need it. Also be sure to express how you are feeling...sometimes that can help get you in quicker.View Thread
Prior to being diagnosed I was living on Ibuprofen and ice packs. My regular doctor prescribed Naproxen for me to control the inflammation until I could get into my RA doc. We only have two RA docs where I am and originally they said it could take one month or six months until I could get in. Thankfully it only took one month.
I'm sorry you had to go to the ER, you must have been in a lot of pain. I had a couple nights too (before I was diagnosed) that I would have gone to the ER if had been able. My best advice to you in the meanwhile is to take care of yourself...get as much rest as you can. The other thing I found helpful when I would have a painful flare up is to keep your mind busy, it helps to focus on something else besides the pain. The other was to keep moving (if you are able). I had a flare up in my hip and it felt a little better because I kept walking around until I could take a dose of Prednisone.
I'm sorry you are not able to interact with your kids right now, I'm sure that is really difficult. Just tell yourself that you will be able to soon...patience is definitely needed in dealing with RA. I really hope you are able to get in soon and start getting some relief.
I'm sorry that you don't feel like you are getting the support you need. I'm happy to talk if you ever feel like it.
I was diagnosed with RA this summer and I can relate to having people be dismissive about the disease. I like the way DIYSTER explained it. I think people hear arthritis and they think it's no big deal. I have to remind myself that they don't know or understand RA and how it feels.
I know you said you tend to keep it to yourself, but maybe it's time to talk about it. All you can do is try your best to explain how it is effecting you emotionally and physically and ask/tell them exactly what you need from them.
My family and friends are supportive although I feel bad for my husband having to through this. Thankfully he is a caring person and he tries to help however he can. A lot of times listening and love can help a lot! I recently joined these discussion forums and I'm finding they help too.
I don't know if you are open to holistic methods for the pain, but I highly recommend accupuncture. That is as long as you don't have a fear of needles! ) I use it for other issues, but it has done wonders for me.