Sorry to hear. We do have to set new standards for ourselves living with RA.
Are you having trouble with your treatments lately? I hope you can try a new medicine combo that helps you more. Is it the pain, nausea or fatigue hitting you the worst? Or, all of the above? I wish the best for you.View Thread
Seventeen16, I share your foot pain, but not your burned skin. That must be hard to cope with. Anyway, you might try a prescription of Lidoderm patches on the worst spots on your feet. Some nights I just can't sleep until I put some cut-up pieces on the trouble spots. These patches are different from most as they have lidocaine and actually numb the area for up to 12 hours! I would avoid putting them over the burned areas though, as they are very sticky. I also use SalonPas patches when the pain is not quite as severe. My hand veins freak me out sometimes too. What is that about anyway? Oh well. Good luck to you.View Thread
diablo, do you also take NSAID's, because they can cause bruising and stomach upset. Bring a complete list of meds and vitamins/herbs to your appointments. It's good you have those appointments right away. Sorry the Enbrel is less effective now. I hope you feel better soon.View Thread
Hi michel. I complained to my rheumy about muscle aches and he says it could be my RA. It seems some days my arms and/or legs ache. In your case it could be any or all of those things you mentioned! I know it was painful when I weaned off prednisone. Chronic EB virus must be hard to deal with too. You have your hands full. I wish I could help you.View Thread
KandP, it's good you have some appointments in the near future. Be sure to take along a copy of the lab report for the second opinion. Ask to get a copy at the followup. These reports are good to keep in a file. I know my pcp wants me to fax them as well.
Sometimes we are offered an rx of low doses of prednisone to keep us functional until the DMARD's kick in, or to get through a flare up of symptoms. Some people respond well to 5 or 10 mg a day with little or no side effects. Some, however, don't like the side effects. Of course there are risks with long term use. Some doctors prefer prednisone bursts versus low doses over longer times. There are arguments for and against.
The former poster mentioned Raynaud's as an explanation for the purple fingers. This is another symptom to tell the doctors. It happens to me, but rarely.
Trouble walking is pretty scary stuff. It really lets us know we are sick! Your husband may feel like being a little less active than normal until his symptoms improve. It's good to move enough to keep from getting stiff, but not so much as to cause extra pain, for now.
Keep on supporting him through all this. I hope he is as supportive to you through your knee PT! You are great.View Thread
The article is a doosey and points out flaws that need fixing. I am guessing the same thing is happening to doxycyline, which is used to treat lyme disease.
I don't know what the answer might be, but it seems a compromise is in order. Perhaps these businesses could get a tax break on the profits they make on newer drugs IF they continue to make the drugs that don't make them money?
Wow, that came on fast and severe for you. It sounds to me like you need to really rest until you and your doc can turn it around. I know it's frustrating to put the remodel on hold, but I imagine the hammering is horribly painful! Heck, today it hurt to hold a cup of coffee just because I did a little yardwork yesterday. Good wishes your way.View Thread
Steffi, sorry you are having this new diagnosis. Now is a good time for you and your husband to read all you can about autoimmune diseases/RA. We can have serious flares that make it difficult to push ourselves. Rest can become a priority in order to cope. Yes, exercise, sometimes very mild, is important, but "pushing through the pain" can be a mistake with RA. It's a learning process. We figure out how much we can do when we feel a certain way. It's tempting to overdo on our good days, and then we crash. This is something to avoid.
I don't have children, but have heard others say their kids are more compassionate than adults! They can understand when you say you can't walk through the park today. I imagine you will come up with creative ways to interact with your child. Remember, RA won't take away from your ability to give unconditional love. You can be a terrific mom!View Thread