Okay, so here's the latest update. I don't know why I haven't been back here to talk to you guys. Talking with people who truly understand helps a lot. So now they are thinking I may have three things: OA, FM, and some type of inflammatory arthritis like the doctor who commented on here said, but they don't know what it is. I took some recent x-rays about two weeks ago and I guess my cartilage is wearing down some more, so I need more cartilage injections in my knees. I'm back to using a cane, but I should be starting water therapy soon. I'm back on Vicodin since the Tramadol is no longer working. I am on Cymbalta and Topamax, but lately they don't seem to be working and the nerve pain is intense, so my rheumy wants to add Lyrica and switch me to Neurontin and see if that helps me out. The only reason I'm not already on it is because my PCM was holding up the process, but hopefully I'll be seen soon. Also I got a puppy, which is helpful. I took up a hobby, guitar and violin (helps cope with the pain). And lastly, I'm supposed to finally get in the see a psychiatrist on Wednesday to help cope with all of the changes because I get pretty depressed about the chronic pain and changes. I'm still not dealing very well with the loss of independence and career.View Thread
We finally got some help for the moving. Most of the furniture is gone so I'm going to go through the rest of the stuff today. Had some issues going to sleep last night because my left hip woke me up. I actually woke up because I heard myself moaning from the pain. So I took a Vicodin and tried to breathe through the pain. I held my husband's hand and he tried to sooothe me until it kicked in and I was able to go to sleep. I finally have an appointment with the rheumatologist. It's next Tuesday. Wish me luck. My right shoulder is acting up a lot too lately as well. It hurts everyday. I can't do too much with it either.View Thread
The only family I have here is my husband. He's like yours. He calms me when I'm freaking out. Tries to comfort me when I'm in excruciating pain. And I know it kills him when it's so painful he can't touch me without me crying. He tells me to rest when he sees I'm doing too much. And I'm finally learning to listen to my body and rest when it tells me to because otherwise it'll force me to. Like I'm finally taking those naps it seems to want me to take daily. Sometimes, multiple times a day. I just wish they weren't in 3-4 hour blocks. It holds stuff up. He helps me find creative ways to feed myself when my hand or fingers lock up or are so tender holding a fork is something I dread. (Like last night) And he never complains. I'm so grateful for that. And soon he'll be on leave and he keeps telling me to just pack the boxes up and he'll move them to storage, but I'm hard-headed. I'm trying to listen, but the apartment is driving me crazy. It's just so messy. And I'm trying not to compare myself with myself (that sounds funny). But I know that I USED TO be able to do all of this stuff by myself. I would've had half the apartment in storage by now. But now just packing the boxes is a task and then I have to sit down because I'm so tired after 15 minutes. It's crazy! I'm still having issues grasping my limitations.View Thread
Thanks for the service comment. We're still working on the rheumatologist appointment. Something about paperwork is delaying the process. It's nice to know that I'm not the only one that has these thoughts of "am I losing my mind?" "is this all in my head?" "why is it no one can figure out what's wrong?" "Am I being punished?" One of my fears is that I will be deformed. I've seen what it has done to my aunt, and I don't want to be that way. I like my independence and I'm so frustrated with my decreasing independence. Never knowing what's going to happen. Never knowing how I'm going to feel. Not even day to day, but hour to hour. Like today, I've been doing okay. Only mild pain. Hip gave me a few sharp pains, but nothing like yesterday. And I know I need to lose weight, AGAIN, but how do you keep it off when the flares occur. Right now I'm in Texas, but I'll be moving to Georgia, hopefully. That's up in the air too. My husband has been so supportive and understanding. I'm blessed to have him. I'm happy he hasn't gone running and screaming for the hills.View Thread
I haven't even seen the current rheumatologist, which is stressing me out. I'm stress eating (although I need to lose like 50 lbs). I just really wish all of this would just go away. It's messing up my life. All I do is sleep when I'm not attempting to do sometihng else. A nap for me is 3 to 4 hour intervals. I really don't understand it. I just want things to go back to the way they were. There's too much going on at one time. Too many things happening. My husband deploys in about a month. I lost my job. I have no idea what's going on with my health. The doctor's have no idea either. It seems like the meds are messing up other organs. I have no idea how I'm supposed to get things done. I'm still waiting on my rheumatology appointment. Found out my lungs are bad. I just want to be a normal, healthy 24 year old. Not this. It's very upsetting to me. And at the present time, my friggin right hip is so inflamed, I can't even lean to the right without severe pain.View Thread
Well for my age it was high. I'm suppose to be in the .0 range and I've been above a one the entire time I've been here. My ESR has gone from 11 to 30 since I've been here, but it says the normal range, I guess for my age is up to 30, so I've just hit the high end of normal as of last month and it seems to be trending on the upward range. It hasn't gone done once since I've been here. No one seems to known what's going on with me. My ANA has been negatvie every time they've tested it which makes them think it's not autoimmune, and my thyroid levels magically fixed themselves. Everyone agrees something isn't right, but no one seems to have any idea what it is except that it's an inflammatory condition.View Thread
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