The information you provide is confusing but may I suggest you have a look at www.dragon-claw.org where you will find information on Prednisolone. You will also find a link to obtaining a second specialist medical opinion. Strongly suggest that your wife sees a Rheumatologist and manages she drug regime VERY consistently. All the best.View Thread
Clipsal makes some good points. Depends also on how severe the RA is. There is a good dietary outline and other resources for a low inflammation diet on www.dragon-claw.org. The neck swelling could be related to the dose of Prednisolone you may be on.View Thread
Sorry to hear about your troubles. Yes, this all sounds very familiar. You are likely to have a numbers of ups and downs over the next year as your doctors try to stabilise your RA. Your CCP of 259 is not way up there. Mine is much higher so hang in there. Things will get better but you must take your meds exactly as directed. If you can afford it, try seeing a rheumatologist as you may need specialised care. For some information and support go to www.dragon-claw.org. All the best.View Thread
I assume your have been formally diagnosed by a specialist?? I have been on this drug but it failed after 12 months. I also assume you are medium to severe in condition. My suggestion is: - do warm water exercise - reduce you workload as you will need 10 hours plus a night of sleep - adopt a low inflammation diet (see the diet section of www.dragon-claw.org after you sign up free.)
Also you drug mix could be an issue. Hope this helps.View Thread
Hi Jessica I am not certain age has much to do with it. The RA Dragon bites whatever age you are. I am on my third biologic - Actemra. It took two years to really get working. I became a vegetarian and fish only eater and this has made a real boost but it took over a year. My message is that things take time. Try visiting www.dragon-claw.org and see the nutrition section. You must get reasonable sleep so I also suggest that you get your doctor to start you on strong morphine based drugs like Endone until your biologic kicks in. I took these drugs for over 18 months, very helpful but now off them. Diet and exercise are important. All the best.View Thread
Your story is like my own. YES, there is an upside so be positive. It takes about two years for someone with serious RA to settle down with the drugs. Don't sit still and don't sit in a room by yourself. Please get out for a walk and get some exercise every day, even if it just a walk. I have found meditation and exercise a great support. So is distraction! If I do not exercise I start to get sore and depressed. I had to give up my job as job stress made me much worse. Suggest you consider your diet too. Visit www.dragon-claw.org and look at the Diet section. Chin up. ByeView Thread
Hi There Fatigue is very common and with many of us improves a little but stays like an unwanted friend. Enabler should reduce its impact but can takes over a year to make a difference. I found that large doses of Sulfasalazine caused fatigue. See if you can reduce the dose but talk to your medical people first. This site may help: www.dragon-claw.org.View Thread
You really need to see a rheumatologist. Long term use of Prednisone causes major bone demineralisation. Being on methotrexate and biologics is very much a standard treatment for moderate to severe RA people. From what you say I am not surprised about the major flares so please see a specialist. From what you say, alternative therapies are unlikely to work. All the best.View Thread
I think I have replied to you before but here goes. I too am on my third Biologic and have found Actemra to be very good. Now 32 months. There is hope and I will suggest the following: 1) talk to your friends and partner; 2) eat a low inflammatory diet; 3) get outside and take gentle exercise every day; and 4) learn meditation. There is a real issue between control of the disease via steroids and pain management. Being home alone and in pain can be very dangerous so try and get out and about. Have a look at www.dragon-claw.org .View Thread
You are absolutely right about no-one understanding. Look up the 'Five Spoon Theory', as it might help explain things to your friends. I assume you are under the care of a very good rheumatologist and not just a GP? I am not a teen, much older, but happy to chat if you need. Bye, MikeView Thread
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