You really need to see a rheumatologist. Long term use of Prednisone causes major bone demineralisation. Being on methotrexate and biologics is very much a standard treatment for moderate to severe RA people. From what you say I am not surprised about the major flares so please see a specialist. From what you say, alternative therapies are unlikely to work. All the best.View Thread
I think I have replied to you before but here goes. I too am on my third Biologic and have found Actemra to be very good. Now 32 months. There is hope and I will suggest the following: 1) talk to your friends and partner; 2) eat a low inflammatory diet; 3) get outside and take gentle exercise every day; and 4) learn meditation. There is a real issue between control of the disease via steroids and pain management. Being home alone and in pain can be very dangerous so try and get out and about. Have a look at www.dragon-claw.org .View Thread
You are absolutely right about no-one understanding. Look up the 'Five Spoon Theory', as it might help explain things to your friends. I assume you are under the care of a very good rheumatologist and not just a GP? I am not a teen, much older, but happy to chat if you need. Bye, MikeView Thread
Hi there Krisguest. Methotrexate is a very standard treatment for RA. These days is a self administered under the skin injection - simple and easy. Some people, like me, do not tolerate this drug very well while others have no problem. It depends on your general health and sensitivities. I assume you are a medium RA sufferer and not severe. Methotrexate is often prescribed with another drug such as Arava but you should be seeing a rheumatologist not just a GP. RA is progressive so needs to be controlled quickly and strongly. Suggest you do not treat this disease lightly. Setting up the correct dose on methotrexate takes time and the drug itself takes a while to work - sometimes months. There are many side effects but your husband may have few and may not have them for long. Be patient.
I do not subscribe to over the counter therapies, super drinks or rare Chinese herbs. Get good medical advice, eat a good diet, take careful exercise and take the drugs exactly as prescribed. If your husband is classed as moderate or severe do not fool around with this disease. For more information try www.rawarrior.org and www.dragon-claw.org . All the best.View Thread
No you are not alone at all. While the road you travel may not be common, some of us have been there and some keep returning. The biologic drugs are super but they do take time. Your rheumatologist needs to get you on morphine for pain and warm water exercise to give yourself time. From what I read you are severe like me. The biologic drugs will be the way to go plus diet control plus exercise. You are loosing weight too quickly and muscle tone too I suspect. Pain and depression will do this. Perhaps see a physiologist. I have found a vicious circle of pain-lack of sleep-depression can be VERY dangerous. So please address the pain and do not be concerned about the side effects. These can be managed and you can successfully stop taking morphine when the time comes. Suffering pain is not heroic. MikeView Thread
There is a good deal of wisdom in the replies you have received. I hope you have a little more confidence. My RF measure was well over 1,000 !!! and I have severe RA - whole body. Most drugs take time to work, changes in your diet, good sleep and regular exercise are critical to fight off depression. Change your GP and make sure you have a rheumatologist who sees you regularly. Sounds like you have previously been mis-managed. Many GP know almost nothing of RA as it only makes up 0.5% of their client base. Prednisone is good, Prednisolone is better but both drugs have bad long term impacts. The argument becomes one of quality of life versus impact. Suggest you do some research about this drug. There is a new free website for RA, perhaps of interest: www.dragon-claw.org
I am sorry to read about your troubles. Am curious, why are you not taking one of the biologics. These drugs are supposed to stop deformity? I am, my feet hurt too but no deformity yet. I can only offer two suggestions - make sure you see a podiatrist and secondly join our little group trying to make a difference www.dragon-claw.org.
Tiff, I have been exactly where you are. My RA factor is over 1,000!!! and I am now on a biologic. The way people with Rheumatoid Disease are treated or not treated has encouraged a group of us to build www.dragon-claw.org
Perhaps of interest and help. Start off with the video then try the Forum.View Thread
Sure, there is hope. I have experienced what you are going through and it is cry upsetting as you don't know what the future holds. Things do get better so here are a few suggestions:
- visit www.rawarrior.com - learn about your drugs via the Internet - seek a second medical opinion - get the rheumatologist to explain your blood readings and ask how far from 'normal' they are - write instructions down, don't rely on memory - you both need to understand the diseases - work with your medical people, eat well and rest
If you are mild things will soon improve. If you are more serious then let the medical people do their thing. It can takes months for things to settle but you need to address your pain and ensure adequate sleep. Suggest you stay off alcohol, fried foods and corn products for a time. Eat fresh. Hope this helps.View Thread