How long have you had RA? How severe is your RA? I was diagnosed October of last year and I work full time. It takes everything ive got. My house is a mess, I never see my family or pets. I only have enough energy for either my family or a job and financially I have to have a job. I make over $1000 a paycheck but not much more. My doctor has me listed under moderate to severe RA and we havent found a mix of medications that work for me yet. I would really love to work part time and spend time with my family. I havnet looked into disability because I am college educated and only 27. Do you think I could qualify?View Thread
I am 27 and was recently diagnosed with agressive RA. I have noticed an increadable market oppurtunity. There is absolutly no fashionable, cute, uplifting, fun & easy items to aid us with our daily needs. I see tons of pill containers that are all labeled for days of the week but some of my meds are to be used as needed. What about a pill container that doesnt come open in your purse, has an area to label what drugs are in the container and their strength? What if it could and would stay shut until YOU opened it. I would love for people to not know that I am carring a pill container with me. That is one sure way to make you feel old fast.
Another thing is that I ordered compression gloves for my hands this past week and my only options were nude, black & grey. I am a huge fan of those colors but I would love to see some fun colorful options. Just because our bodies are trying to fight a war doesnt mean that we should succumb to generic looking medical aids. I was also thinking about a rhinestoned cane.
We go through so much everyday between pain & medications. I dont want to sadly look at my nude glove wondering how my hands will be in a couple years. I want to look at a glove that inspires me and feels me with hope. A glove that can be a conversation starter with people who dont know about RA, somthing to spread the word. I want to have accessories that make me feel fun and vibrant, not sad, old & in pain. How do you feel about this? Would you buy more aids if they were more fashion foward? What aids would you like to see with more options? Surely it cant be just me who wants change?View Thread
Its great that you are designing an accessory for us with arthritus. Arthritus works in many mysterious ways by moving around the body and affecting different joints on different days. I am 27 and was actually graduated with a degree in design. One of my biggest problems is that my handbags hurt my shoulders, which hurt my neck, which causes stiffness blah, blah, blah. The straps are not thick/wide enough to distribute the weight appropitaly. It would be great to have an area designed specifically to contain perscription bottles or even a flat sturdy bottom. Instead of zippers, maybe the openings could contain magnets. Keep the inside of the handbag light in color so its easy to find what we need quickly. Suprisingly, even looking thru our purses takes quite a bit of energy and can wear us easily. Please try to make any openings on the purse the same size as the compartment it is going into. Currently the purse that I am using today, Coach Maggie bag, the main opening is smaller than the area it goes into so it makes it a little hard to get into it easily and def. makes it much harder to see into. If you put zippers on the purse, try adding a tab so that we have something larger to grab onto.View Thread
Im so sorry you are going through this at such a young age. I am 27 and was diagnosed October '12. Nobody ever believed me either. They used to say I was making it up. I started to wonder myself if maybe I was making it up and everyone felt this way. I think I have actually had RA for quite a while but because I was supporting myself and going to college there was no way I could afford to do anything about it.
I finally graduated and got insurance and after going through a slew of doctors was diagnosed with RA. Luckly MTX will kick in right around 3 months and when you see your general doc for refills on your antidepressents ask for pain medication and show him/her proof of your RA. That's what I did and the pain medication has helped ALOT. Feel free to email me just to talk or to blow off steam at firstname.lastname@example.org . Im super close to your age so I can compleatly get how fustrating it is to not be able to do everything you want and to not have the same energy levels as your friends.View Thread
Oh Stephanie, I am so sorry about you having to go through this. I have always had an issue with depression and was already on medication before I was diagnosed with RA in October '12 (Just like you!). I take Effexor and Buspar and they work great together. I have many of the same exact symptoms/side effects from all my medications. I take MTX (15 mg), folic acid, vitamin D, vitamin A, tramadol, loritabs, ativan, effexor & buspar. I have also lost quite a bit of hair, the awful awful nausea and acid reflux, no appetite, headaches, anxiety, night sweats, fevers, muscle pain, blah blah blah. So, now that that is out of the way this is what I have been doing to deal with all this stupid crap we have to deal with.
For starters, if your low on energy, which I was/am and drinking things with caffine increase your nausea and/or acid reflux try asking your doctor for an appetite suppressent such as phentermine. I know it sounds silly since we already dont have an appetite but it gives you lots of energy without the jittery feeling. Having my energy back makes me feel better and since it increases my blood flow it seems that my pain medication works better. The better I feel equals the less depressed I feel.
My MTX has just now started to kick in to reduce my pain and swelling (THANK THE LORD!!!!) and Im starting to feel normal. I was already diagnosed with MDD, major depressive disorder, so I was on medication for depression. I would HIGHLY recommend you get on something quick for your depression. The medication that you will be perscribed will take some time to work. I would suggest to make sure whatever the doctor perscribes you is an extended release. This seems to help with my nausea because the medication is released throughout the day and not all at once. If you are having ANY feeling of depression you NEED to get on something asap as well as start doing things that make you happy.
Okay, now that the depression medication talk is out of the way, these are the other things to keep my mind occupied and happy.
- Talk to friends, call them, instant message them, do whatever it takes for you to keep in touch. Listen to their problems. Make plans to hang out, even if it's just lounging on their couch watching a movie.
-take this time to start learning about the things you have always wanted to learn about. Since holding a book or kindle can be difficult, rent an audio book. It lets your mind escape reality and your body rest.
- Start pampering yourself. Depression can lead to getting lazy on your appearance, especially when you are suffering from depression and pain. Start doing your nails often, search for new easy ideas for fixing your hair and investigate new tricks to better application for makeup. We dont have control over how our body feels on the inside but we can dominate how awesome we look on the outside.
- Do yoga or stretch everyday. You dont need to go to a class to relax and clear your mind. It helps reduce the stiffness and pain in your body. It also seems to increase your energy.
- Make your bed an ultimate luxury zone. Since we dont feel good we are bound to spending lots of time here. Buy super soft sheets, a fluffy comforter and perfectly soft pillows. I like to spray the eculuptis spearment (bad spellling!) fabric spray from Bath & Body works. The spearment seems to reduce my nausea.
- Create list of things you want to get done and try to get one done a day. This helps you not feel so overwhelmed.
- Take up a hobby. It doesnt matter what it is as long as it refocuses your mind off of being sick and hurting. Watch a season or show that you have always wanted to watch but never have had the time. Start a blog. Learn to cook something new. Anything.
- Relax and know that there are a lot of other people out there who understand. I talk with another lady who has RA thru email and it helps alot. My email is email@example.com if you want to talk and/or blow off steam with someone who actually gets it.View Thread
WOW! Thank you! I have just now started to have quite a bit of hair loss. I have lost about 1/2 my hair. Thankfully I have pretty thick hair so now I just look like everyone else, but to me, it feels like I have none.
Also, thanks for the tip about the shoes. The bottoms of my feet have been burning and hurting after standing for a long period of time. It even hurts to stand in the kitchen and cook. I cant wait to try both of these products.View Thread
ive been on mtx for a little over 3 months and I am just now experiencing the hair loss. At first I could tell that my scalp was tender and would tingle a little here and there. The last couple weeks I have noticed that I have been loosing a lot more. I would say that Ive lost about 1/2 of my hair. Only close family has noticed. I used to have really thick hair and now my pony tail is really small. I notice it the most after I wash my hair and comb it while its still wet. There is a lot of hair in my comb and I can pull clumps out. The hair that I have lost is pretty distributed across my head so thats the good part.
I started on the pills but my stomach just couldnt handle them. I switched to the shot and the side effects are much better. I dont think that one or the other contributes more to the hair loss though. I think its based on how long you have been taking it and the build up in your system.View Thread
People that dont have RA cannot grasp the amount of pain we go thru every single day. I went to my family doc and signed an agreement for pain pills on a monthly basis. The pills have helped me just do the normal things people do. I have been seeing him for several years and he was the one I first went to about my pain. He has been with me through my entire process of figuring out whats wrong so he didnt give me any problems. My family has a history of depression and I have been diagnosed with MDD so I already take antidepressents. I would recommend anyone who is having depression issues get on meds asap. Your family doc can also perscribe those too.
As far as the hair goes - Im loosing mine too. I am VERY attached to my hair - for goodness sakes I even have a pretty successful blog names after my hair (borntobeblonde.com). I have noticed that after being on Methotrexate my skin has been a lot dryer so I only wash my hair 2x a week - maybe 3x. I sleep in my conditioner so when I fix it the next morning its silky smooth. I dont know if this helps because I know Im going to loose it anyways but maybe being really really gental will help slow down the process. At least thats what I tell myself.
Good luck and Im sorry about your diagnosis. View Thread
I agree with KimRAno - you want to stick with the Methotrexate. Im 27 and was just diagnosed 3-4 months ago. I have only started to notice pain relief within the last two weeks. I started taking 15mg (6 pills) and would get violently sick within several hours. I did a little research and found that the self injection may have less side effects so I started doing that 3 weeks ago and the side effects are not nearly as bad. Now that my pain has subsided I too have had a lot of nausea and feeling of unwellness. By the time I feel better its time for my shot again. I hope this passes. Good luck with your medicine and Im sorry for your diagnosis.View Thread