My mother used to work at a nursing home and she told me that the nurses would put the foam from pink hair rollers around their pens. The people with arthritis... especially RA LOVED the pens. I have recently starting doing this at home and work and WOW, I never would have thought doing this would help so much. If you have trouble writing then you should give this a shot. Good Luck!View Thread
I am fairly clumsy... okay, okay...I am usually VERY clumsy. I was walking down the steps at the front of my house to look at our Christmas lights my husband spent all day putting up. The next thing I know I heard a pop from my ankle and down I went. My ankle just gave out. I didnt step funny and my son was behind me said the same thing. I stepped down flat and I just went down. Im 27 with RA and have recently been diagnosed. Im wondering if my ankle sprain was just a freak accident or if maybe the RA played a part in it. Has this happened to you? Should I bring it up to my doctor? Body parts shouldnt just pop and not work... right?View Thread
Oh Girl I KNOW how you feel. Im on month three so Im still at the begining. But maybe I can help...just a little bit. First of all ask your doctor to perscribe you 15mg phenegren. It will make a little tired but it will compleatly take away your nausea. I would trade those two ANY DAY! Second, get all dolled up before you give yourself the shot. I give myself a mani & pedi, shave, wash & straighten my hair, put clean sheets on the bed, and put on a nice pair of silk jammies. Being sick in bed is no fun and its especially no fun when you have to do it for half a week EVERY SINGLE WEEK. This makes it just a tad bit more bearable.
My husband also had problems really talking about it too. I would find short articles and send it to him thru email and I started making large crockpot meals so that him and my son had a hot meal every day even though there was no way I would have had the energy to make it. He is also going to go to my next RA appointment with me so we can talk to the doc together (Im compleatly shocked by this). I think his demenor changed a little bit when I told him how scared I was. How I could be deformed for the rest of my life. How he deserved someone who could keep up with him. How I felt useless and worthless because of RA. Slowly after that things changed.
It will all work out. I get it. Its hard and people dont get it because we look "fine". Feel fee to chat by email if you wanna talk more and go through the journey together. Magmccormick@yahoo.comView Thread
You know your not making it up. You can tell somethings off and that you just dont feel right. Im 27 and I remember looking at other people my age, and older, thinking, "how in the world do they have all that energy" or "Man, they must be really tough because that would be really painfull". People would tell me that I jsut needed to work through the pain and I would be fine. I started going to the doctor because I just couldnt handle it anymore. I was really persistant and waddya know.... I have RA. My pain was real and running really DID hurt and I WAS a lot more tired than my friends.
Other people will never understand and the one thing I have found with older people is they tend to be less understanding.... I know crazy. I have one lady at work who thinks that it's a competition. Well lady, you can win this one! Chronic pain and inflamation is awful and I wouldnt wish it upon my worst enemy. Your ANA shows you that it's not all in your head. Just take one day at a time, one step at a time and dont let people push you into doing things you just cant do. Who cares if that toy is on your floor for 3 days in the same spot. I will tell you one thing, RA will really show you whats important in life and whats not. This is coming from someone who's pretty OCD. Good luck!View Thread
Dont worry. What your going through is compleatly natural. I only felt a lot of pain after taking the methotrexate a couple weeks at the begining. It seemed to simmer down. I did contact my HR department and let them know the situation - which was that I had no clue was was going to happen week by week - and we decided to train someone to keep my department running while I was out. I recommend not pushing yourself too much... you will feel awful a couple days after and its just not worth it. I also take a nap 2x a week, usually on a Tuesday, Wednesday or Thursday. That really helps with the fatigue.
Im 27 and started on 6 pills 1x per week. I suffered ALOT of side effects from those little guys and ultimatly decided 7 weeks in that I couldnt take them again. I called my doc and asked for the shot. Im not (AS) tired anymore and the other side effects and been reduced greatly.
I chose to take my pills on a Friday night and would get really pampered before. I would give myself a manicure and pedicure, shave my legs, put fresh sheets on the bed and put on a comfortable silk sleep shirt. I would even do my hair! It really seemed to help when I was the sickest and/or was in the most pain. Its silly but it made me feel good and when you feel as bad as we do, anything is better than nothing. I hope this helps!View Thread
First let me start with saying I love my husband dearly. I have already had one close call about a year and a half ago that left me in ICU for 3 days. Now this. I was recently diagnosed with moderate to severe RA and Im now on medication. My husband doesnt want to talk about it, he doent want to read about it and he doesnt want to be part of any decisions. He thinks that when I ask him to do something I am "taking advantage of the situation." Oh, if only that was the case. I try not to make the 'im in pain' face or noises because it seems to just irritate him. The times that I have tried talking to him about possible treatment plans he flipped out and told me to let the doctor handle it. Personally, Im not going to rely on anyone to make the right choice for me. I need to know what all the options are so I know what questions to ask. Its my health and Im the only one in charge.
I recently had my second dose of MTX and it kicked my butt. I was home sick all day, confused, weak, lethargic. I couldnt do anything. He was upset that I hadnt done anything all day. He couldnt believe that I just laid in bed all day. Not by choice!!! I know I cant be the only one who has gone through this. I dont know what to do about him. I need the emotional support right now. I am very scared and really upset about having RA but I dont know how to get him to understand and be there for me without being a nag. Any Advice? Anything will help.View Thread
I am a receptionist and office manager and it is perfect. I get the perfect balance of being on my feet and sitting down. I seem to have quite a bit more cpu knowledge than the others that I work with so I create a lot of organizational charts and do most of the corspondance (sp) between departments.
I have been really lucky to have the abilty to order things to make my life easier at work too. I have cushions for my mouse hand, in front of the keyboard, a fan/heater for those days I cant regulate myself, a multifunctional headset so my hands dont hurt from holding the phone & back support for my chair.
I started my job while I was having pain but I was undiagnosed until recently. I have always done a great job and have taken on more responsibilities than asked so when I say I cant physically do something one day its not a big deal.View Thread
I was just diagnosed with RA and Im 27. First of all, 1 month away for an RA appointment is pretty good! The earliest I could find was 6 months. Then I called the doctor that did the RA test and he said he would do what he could. There is an Rhuemy in the same building and he told him that I needed to be seen ASAP. I was called first thing Monday morning and asked if I could come in at 3pm.
You need to go to your family doc and have the RA test done before you go to the Rhuemy otherwise he will just want to wait on the test. BUT if you go in with test results then you could quite possibly leave with medication.
My RA doc didnt perscribe pain meds, my family doc did. I have a pretty good relationship with him and he was the first person I went to when I started having the pains. He was with me from the start of the journey so he knew I had been suffering for a while. I had to sign an opoid agreement, but that was no biggie.
I have only taken one dose of MTX and the pain pills have done WONDERS for me. Seriously, wonders. I know if your having all these pains you know how great it feels for them to be reduced, even if its a little bit. I dont think the ER can give you any RA meds just because they are pretty serious medications. Its not suprising your getting antinflammatories. Im allergic to predisone so Im not getting any.
One thing to help with the pain in your hands is to wrap an ace bandage once or twice around your knuckles and wrist and put an ice pack on top then continue to keep wrrapping it. This keeps the ice in place but you can still use both your hands. I do it every single night on both knuckles/wrist and knees. I think the pharmacy thinks my husband and I are into some strange bondage with how many ice packs and ace bandages we buy. lol. Eigh... I'll let his mind wonder.View Thread
I compleatly understand. I am 27 and was just diagnosed with RA about a month ago. My husband and I are not trying yet but we planned on it in a couple years. I feel like I being punished for waiting until were in a better spot. I hope everything works out for you.View Thread
I am taking my 2nd dose of MTX tonight and I am dreading the "fog" everyone talks about. About 2 hours after taking it I was in and out of it. I didnt feel like that "fog" lifted until about 2 pm the next day.View Thread