I've been diagnosed with RA and have been on Sulfasalzine, leflunomide, hydroxlychloroquine, orencia and now enbrel with no success. I'm getting frustrated and wondering if I've been misdiagnosed though I've gotten a second opinion at Northwestern Medical Center from a top guy there. He tweaked the diagnosis to Spondylarthritis but since the treatment is the same not sure that matters much. I'm reading what many of you say about methotrexate and I cannot afford to lose more hair. My blood work is normal which is good news/bad news since I would prefer something definitive. I'm at a loss. They've ruled out fibromyalgia because I respond well to steroid injections. I would describe my pain as more soreness than stiffness. I'm miserable. I've always worked out and eaten fairly well but I'm so discouraged. Any thoughts out there? Advanced thanks for your thoughts.View Thread
Thank you Crystal. This is very helpful. Can you wear wigs to play a sport? Do they itch or get hot in warm weather? Thanks for the specifics on getting Rene or Paris. I never really considered getting a wig but you make it sound pretty do-able. Thank you!View Thread
Thank you so much Crystal. This is very helpful. I will heed your caution looking at other's symptoms. I am amazed at the number of meds your on and am wondering if that's what it will take for me to get this under control. How much tramadol do you take? Does it ever make you nauseated? Thanks for your help!View Thread
I have been on leflunomide, sulfasalazine, hydroxylchlorquine, orencia and now enbrel with no improvement. My RA diagnosis was recently tweaked from a rheumatologist at Northwestern to spondylarthritis which is apparently moot since the treatment is the same. My question is whether the fact I'm not responding to any of the drugs could mean I've been misdiagnosed. My bloodwork does not show RA. Though I do appear to have some swelling in my joints I would describe my pain more as soreness and burning than stiffness. I just wondered if any of you with RA can relate to that description? It's almost as if I ache as though I've had the flu. My elbows hurt, of all things, as in when I lean down on a hard surface it's tender and painful. I am extremely frustrated as I seem very "out of the box" with my symptoms. I seem to get random pain in non joint related areas most recently it's my neck. For two months it feels strained and painful. Help!View Thread
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