So I started my meds last week and thank goodness I on hav any side effects so far. I take mtx and plaquinel (sp). I hope it stays that way. I wish I started the meds sooner honestly. I read so many scary stories online that I almost didn't take them at all. I think I might ask for a third DMARD at my next appointment because I want this disease attacked aggressively. Not sure if my two meds are strong enough for someone with a ccp of 250.View Thread
Oh and I read some strange roost online about how fish oil causes panini your hands so (burning) so I cut that out the same day I cut out sugar. Who know... rheumatoid arthritis makes us second guess everything View Thread
No I haven't taken any medicines yet. I have achy joints but not the sharp over wheel ing pain I had in the beginning. I guess I have the type that comes in waves.
I think I'm going to take the meds but I'm going to do my ccp test again now that I stopped breastfeeding to see if it changes the number at all. It's a new test ski don't know if they know yet.
I was getting progressively worse and worse for weeks then I stopped eating any refined sugar (I bread, pasta, yogurt...it's hidden everywhere) and I started to feel better thenextday. I'm not sure if I would have felt better regardless. I was sugar free for about a week now I eat sugar and I'm fine. Odd.View Thread
I haven't started yet but my doctor prescribed 5mg of folic acid which seems to be a lot more then everyone else takes. I've started taking it in advance to hopefully have reserves built up to help. Sigh.View Thread
Hey everyone. I've posted a few times and I've read so many of your comments I feel like I know some of you. I hope you are all doing well today
My question is, if I'm in remission do I need to start medications?
I had one flare which lasted about 7 weeks. It was horrible. It's been a month and a half since the flare went away and I went into remission. Each day I wake up feeling better and better. But I'm supposed to start methotrexate on Friday. I don't want to start medicine that will make me feel sick when I feel fine. I have two young children at home that I need to watch at nights by myself and I worry that my ability to do so will be compromised when I start methotrexate. I feel really stuck in a corner and I don't know what to do.
My ESR was 24 at the highest but now it's 4. I feel ok but I'm paranoid and I have horrible anxiety. My most obvious symptom right now is that my feet and knees have a dull ache at the end of the day. Sometimes I have a hard time standing while making dinner (I refuse pain meds at this point because I want them to work when I need them).
I have panic attacks during the day and nightmares at night (mostly about things happening to my children). I hope over time I'm able to cope better. I'm the type of person who likes to plan but it's difficult when you don't know if you are going to wake up in pain or not or if in a few years you will be disabled or not.
I'm trying to get referred to another doctor. It will probably be a long wait. View Thread
So I was officially diagnosed with rheumatoid arthritis last week. I think doctors need sensitivety training. My doctor mentioned it at the end the of the appointment as a"oh and by the way you also have rheumatoid arthritis ". She couldn't understand why I was crying or why I wouldn't want more children.
My RF is only 21 and my current ESR is only 4 so if that what was used to diagnose me I'd think I had a mild case and aggressive treatment wasn't that necessary.. However, I paid for a special new test called the CCP antibody test which is highly actuate and I'm told also predicts the severity of the disease.
For ccp 20 is positive, 60 is highly positive and my number is 250. I'm told I have an extremely aggressive form of rheumatoid arthritis . I'm terrified. I caught it early, I feel pretty good now (feet and knees ache at the end of the day and my hands don't hurt but their tender I guess I'd say...could totally be paranoia) but I'm so worried that because my CCP is so high I have no hope. I just need to prepare myself. I hate the unknown.
Can anyone tell me their number and how they are doing? Also, if you don't know I'd suggest finding out since my RF and antibody are completely different. It might change the way you treat it.View Thread
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