So I was officially diagnosed with rheumatoid arthritis last week. I think doctors need sensitivety training. My doctor mentioned it at the end the of the appointment as a"oh and by the way you also have rheumatoid arthritis ". She couldn't understand why I was crying or why I wouldn't want more children.
My RF is only 21 and my current ESR is only 4 so if that what was used to diagnose me I'd think I had a mild case and aggressive treatment wasn't that necessary.. However, I paid for a special new test called the CCP antibody test which is highly actuate and I'm told also predicts the severity of the disease.
For ccp 20 is positive, 60 is highly positive and my number is 250. I'm told I have an extremely aggressive form of rheumatoid arthritis . I'm terrified. I caught it early, I feel pretty good now (feet and knees ache at the end of the day and my hands don't hurt but their tender I guess I'd say...could totally be paranoia) but I'm so worried that because my CCP is so high I have no hope. I just need to prepare myself. I hate the unknown.
Can anyone tell me their number and how they are doing? Also, if you don't know I'd suggest finding out since my RF and antibody are completely different. It might change the way you treat it.View Thread
Hey everyone! I haven't been officially diagnosed with RA but I'm seeing my rheumatologist in a month. I've been experiencing hand stiffness for about 8 weeks. It's pretty typical of RA. Worse in the morning but eats progressively better. It started on both hands but then only my left. My Pt diagnosed me with trigger finger of my left pinky and carpal tunnel. My family doctor said it could only be RA.
Anyways, the other day I cut refined sugar completely from my diet. No sugar in bread, tomato sauce... And on the same day I cut omega supplements because I read a forum online where people's hand stiffness went away after stopping the supplements. The next morning my fingers were not swollen for the first time in weeks but still stiff. Yesterday they were stiff but I tried shaking my hands (something new) and the stiffness instantly went away. Today I woke up feeling fine.
Anyone have anything like this happen to them? I know there can be times of remission but it was getting worse, dramatically so actually up until I stopped sugar and omega. Not sure which was causing the problems if it was even either of these two because I'm terrified to reintroduce it.View Thread
Hey everyone! My symptoms started about 6 weeks after I gave birth to my second child. I've read online that breastfeeding can make the symptoms worse and even worse, that breastfeeding might have triggered the disease itself. Does anyone have any knowledge about this?View Thread
When I asked my doctor for help managing the pain she said she'd give me tyenol 3 - not something I can take as a breast feeding mom who watching her children while her husband is at work. When I asked if we can look into other causes of the pain she literally LAUGHED at me. It was really depressing. I live in an area where it's next to impossible to switch family doctors. I feel trapped.View Thread
That's horrible! I had. Similar situation. They told me that if they didn't call me it was good news. When the pain didn't subside I went in to see my doctor and it turned out the results were lost. Then. Nurse gave me the bad news on the phone on December 23 (merry Christmas eh) an said th docto didn't want to see me and I could speak to my rheumatologist in 8-10 months.
How do these people get their degrees? They are horrible!View Thread
I'm a 31 year old mom. My children are 2 and two months. When my youngest was a month old she was hospitalized with a viral infection for 4 days and 3 nights. On the first time my hands began to ache so badly that I was in tears lifting her. It's been about six weeks and my hands still hurt.
I went to a massage therapist who massaged my forearms for am hour (they were bruised the next day) but my ands felt dramatically better. Then my sister was hospitalized and the pain returned.
The pain wakes me at night but gets better during the day. It feels much worse in my dominant hand. The pain effects different fingers each day and sometimes during the day. I sometimes loose motion in my index finger and middle finger.
My blood work showed
---RF - 22
The reason why I don't think it's RA is because I'm not fatigued and I'm so hungry all the frigging time. I read that fatigue and loss of appetite are common. Also, my writs are find. My doctor on even consider other options while I wait the 8-10 months for the specialist. When I asked her if it could be one thing else he laughed at me.
Does this sound like RA? What else could it be? My husband often work 60 plus hour a week and caring for two such young kids is so hard.View Thread