I would suggest researching different medications that can be used to treat both diseases and talking with your doc about your options. If a med you are on concerns you let your doc know. Ask him why that is the med for you. Learn as much as you can and ask lots of questions.View Thread
I have swan neck deformity in 4 of my fingers so far. I thought it was something I would just have to deal with. Well last visit with the doc he referred me to a hand therapist to get fitted for silver ring splits. Why didn't he tell me about them sooner?!! They are amazing. I am getting strength back in my hands with the help of these. They are comfortable, and look good and I can do almost anything with them on. Unlike velcro or other splints I can even get them wet. You can treat them pretty much like you would a normal ring. People are constantly complementing my cool rings and even asking where to get them
If you have any type of deformity in your hands please look up silver ring splints; they have many many options to help with lots of issues.
Also, if you are ordering silver ring splints, have the person that sizes you give you a copy of the order form (including cust number) and a quote of the prices they will charge you. Then go home and price the splints on the silver ring splint website. I got mine straight from the website for over $100 cheaper than my therapist would have charged, per splint. And you can submit it to your insurance after.View Thread
Taking 5mg of folic acid daily while on methx can really help cut down on the side affects; it got rid of mine aside from sleeping better 2 days after taking the methx instead of being exhausted all day and nauseous. Also, have you tried any biologic drugs as treatment? They are usually taken with methx but don't have to be.View Thread
I was on enbrel, which worked fine for about a year but then it started to lose its effectiveness. I'm now on Cimzia, for over a year, and loving it. The progress is taking its time but I am getting better, not just maintaining. I can now go up and down stairs pretty much normally, and I can even sit down on the floor and get up on my own (it tires me out a bit but I have found I can do it about 5 times a day before I'm kaput).View Thread
I had that same problem after taking steroids for a bit. What help me are HCG drops. Just take them to get that little bit of weight off, then you probably keep it off since it sounds like you already live a healthy life style. When you take the HCG drops you aren't starving like many people (that have never tried it) think. Since you are only needing to lose 10 pounds it's definitely not worth it to buy the really expensive ones. I've used ones that were over $100 for a bottle and $20 for a bottle and they worked the same. If you do try them, since you don't have much to lose, 0.3-0.5 lb per day could be expected. I hope you find something that works for you!View Thread
Sounds like you are doing great! It's awesome to see that you have done research and are being so proactive about this. I hope your condition doesn't get worse but honestly, even with doing everything right, you can suddenly get a lot worse, or better. There are good days and bad days. Sometimes there is absolutely no noticeable reason for the change. Just keep doing the best you can, stay on your meds not matter how good you feel. Stay positive but also remember it is ok to be scared sometimes.View Thread
I had to work to pay my bills but was in so much pain that I could do nothing else by the time I got home. So I looked up the options for social security disability where I live. Then took time off work since I couldn't work full time and apply for it at the same time, it's sort of a catch 22 there but I won't get into that mess. I was able to get disability approved almost right away but it took a month or so for the payments to start coming, but I did get back pay. So if you are able to save a little and try for disability that might help. I know where I live you have to make less than $1000 gross monthly to even apply so I know this makes it very hard to live and try to transfer over to disability, but if you can find a way to do it it might pay off in the end.View Thread
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