I have recently been diagnosed w RA & connective tissue disease. I went to a local rheumy for my issues. I have so much pain & swelling on a daily basis that I do not complain about I just take otc pain meds that usually does not touch the pain but mayb if I am lucky will dull it to a low roar. I am going to the university clinics for treatment bcause of insurance issues that they will no longer cover the rheumy that I have been seeing locally. I am on prednisone, volterin, plaquenil, tart cherry caps, turmeric caps, vit D. the prob is that my family acts like there is nothing wrong w me & I am making it all up. how do you fake swelling let alone the pain? I snap, crackle & pop in my joints all the time but my family acts like they do not hear the noises. I asked my dad to drive me the 200 mi round trip to the university clinics for an extra ear. I am a single mom that takes care of everyone (including an autistic daughter). if I am having one of those days where I am having a lot of pain or very low energy I tend to sleep. I get told that I am lazy & I need to get up & quit being so lazy. this morning I was talking about making notes for when I do see the new docs so that I can tell them all of my symptoms my dad said what symptoms & I mentioned a few things that I have been experiencing & he acted like I was crazy. this is not the 1st time I have gotten that reaction, just bcause I look healthy at the moment that does not mean I do not have pain & other issues going on. I can be limping around in agony (since my feet are affected) my hands & shoulders are in constant pain & people ask what is my prob. my mom has osteoarthritis & she does not do anything but sit on her behind on the computer (I clean up, cook, basically everything around the house but mow the yard & take out the trash). my mom will not even get a cup of coffee for herself. I take care of 2 elderly ladies which is my job at this time. so I take care of an 82 yr old, a 89 yr old, a 62 yr old (my mom), my autistic daughter, & a 62 yr old man (my dad that works & takes care of himself but cooking laundry & cleaning of any type that I do). my dad is a great help w my daughter at times when I am really down. also we have an online business that I have been trying to get my mom to help w since there are days that I can not type since the pain in my hands is so bad but she wants nothing to do w it since it is not playing games or on fb or buying stuff off of ebay. I have tried get her to let me show her what to do but she says that she doesn't want to know learn. that is another area where I get the lazy name since I can not type & get things done for the online business. my dad thinks that having surgery will cure all of my probs. lol! how this will help I have no idea. my mom that has the osteoarthritis also acts like there is nothing wrong w me. she acts like she is dying when she has to cook (or what ever) unless it has to do w the internet. what can I do to get my family to understand what is going on w me? I am having my dad go into see the docs w me when I see the new docs so that mayb he can get the big pict.View Thread
thank you for the info, while I am awaiting my appointment at the university clinics I am going to try some alternates to meds since I will have no refills or meds to get me through. although the rheumatologist that I have seen locally is going to give me some refills I don't think that it will be enough til the new rheumatologists see me. a long process including establishing with their primary docs at the university clinics and then maybe a referral or not (they will decide when I get a physical there). although I just had one (about 2 mos ago) with the referral to the current rheumatologist I had been seeing. I have the approval of the rheumatologist that I had been seeing here locally to use some herbs and natural meds to my surprise. even before he knew I was no longer going to be his patient. he said that my swelling and other issues I could use the extra help if I wanted to try natural methods. thanks so much for the help LoriView Thread
I was newly diagnosed w RA & connective tissue disease & I am now taking 2 herbal remedies (tart cherry & turmeric) & 5 prescribed meds for the symptoms that I have. after starting the last 2 meds I am experiencing more pain in diff joints that were not effected when I 1st was diagnosed & more popping & what I call snapping in several more joints. is this a sign that the disease is getting worse or what could be up w all the noise? every time I move something either snaps or pops. I am waiting for an upcoming apt at the university clinics to find out what other or different treatment I should be on. any opinions or suggestions are welcome.View Thread
I was on Medicaid but now I do not qualify since my daughter turned 19 yrs old. I have been diagnosed w RA & connective tissue disease for about a month, but I have had symptoms for yrs, just getting worse led me to get investigated further. I had testing done when my daughter was 4 & the doc told me that I had carpal tunnel & that is as far as that went since he gave me splints that made my wrists stiffer & told me to stop doing repetitive tasks. I worked in the food service industry at that time + having a small child I could not do that. over the yrs my symptoms have gotten worse & also my ankles have gotten bad, so bad wrists, ankles, fingers, shoulder, knees. the pain was so bad that I could not write or walk very well. my knees & shoulders are not severely affected just somewhat, but as for my feet, ankles, hands, wrists & fingers are severe. showing some signs of distortion. at 1st I went for treatment to a foot doc for my ankles, he made me special shoe inserts after taking xray only of 1 ankle. 1 yr later I was referred to a ortho surgeon for my wrists. a few tests later he referred me to a rheumatologist that has done test after test after test. finding that I have connective tissue disease & RA. I have seen him once a wk for 2 mos for testing & now treatment. now I have lost my Medicaid due to my disabled child turning 19 yrs old & me working 82 hours a month. I do not make enough to buy insurance, but can not qualify for Medicaid or anything such as a spend down program. I have thought about discontinuing my meds & treatment seeing the doc, but I am just now getting the pain & inflammation sort of under control. I do not know what to do from here since I can not take on anymore work since it is entirely to much on the pain aspect. also my doc wants me to reduce manual labor hours & that is mainly what my job is ( I take care of 2 elderly ladies). what to do? I can not get a different job at this time since the economy is causing layoffs in my area, not hiring. I do qualify to go to the university clinics about 200 miles away under a program, but that is the last resort since I do not drive & I have to arrange a ride for the day & it will take the entire day.