I am 57 years old and only recently diagnosed with RA, though I have probably had it in some form since I was a teenager. I have had a seizure disorder of unknown origin since that time that could have been caused by inflammation from the RA. Also, I had the rashes as early as 18. That info aside, my question is this:
On a pretty regular basis, every few months, I go through a flare that has an extremely predictable cycle. It begins with fatigue. I'm so tired, I just want to go to bed and sleep a whole day. I notice my palms are bright red. Then everything starts to hurt, particularly the parts that don't always hurt. That's on day 2. Then, by day 3, it's depression. Day 4, deeper depression and more pain. (My in-laws particularly don't want to hear it; they think everyone hurts; why should I moan about it?) Nobody understands, nobody wants to be around me, nobody loves me, I start thinking. By day 4 I'm wanting to hide under the bed until it's over. Then, suddenly, date 5, it's over, and I'm back to my normal RA self, normal pain levels (which, as we know, are always with us).
I know we all go through these flares. What I want to know is, is this a normal cycle for most people? How do others deal with this? Does everyone want to hibernate through them??? I don't do pain meds, other than aspirin or naproxin. I take plaquenil and fish oil. I'm terrified on pain medications and of steroids. How can I help my wonderful husband survive these flares with his sanity intact?
Any good advice or help would be very much appreciated. Any support welcomed, as I assure you, I don't get very much around here, except for from my husband.View Thread
Thanks, Xperky, and you're absolutely right ... and I guess that's why I came to this site ... trying to blow off some steam here ... rather than in his ear. We're all very close. I love his parents dearly, and I hate to see how it hurts him when I complain about that other thing.
I'm doing fine now the flare has passed. Just the normal every day thing. LOL ... life between the flares. My sis has lupus, and she goes through the same thing, but in a slightly different form. Our mother also had something which was never diagnosed correctly or treated properly.
You are wise to learn from the past to make a less troublesome future. Great words of advice.View Thread
Thank you ... and I will practice the breathing from the stomach. Riding it out is easier when you know you're not alone ...( and I do wish my in-laws would learn to be more supportive ... but I don't think that's going to happen ... ) Are your flares on a schedule? Mine are 2-3 months, almost can mark them on a calendar.View Thread
I have RA and my sister has Lupus. Her doctor has said that she does not have RA, and mine has said that I do not have Lupus. Go figure. My rheumatologist says we're like a negative of the same photograph and that he'd like to see a gene study of us. It is completely possible for a person to have both. Indeed, what our doctors think is so strange is that we do not.View Thread