Hi Alexandre, It's really hard when you first get diagnosed to ever feel like life will be regular again, but for many of us it does. My humira works great, but I can tell when I am ready for my next shot, i take it weekly. I am also on injections of MTX and space them out so I am doing a shot once every 4 days or so. When I was first diagnosed though it took about 6-8 weeks before I really started feeling better. I had a significant full body flare for onset though. Many people are able to lead completely normal lives when their medications work for them. Hope that helps.
Hi An Isolation is a key issue for people with medium to sever RA. I have been through this too. With the new medication one often looks great, moves better but there remain many issues and limitations. We, a group of patients and those that care, are building an online community. Join us if you'd like. It is free and we are not-for-profit. Visit www.dragon-claw.orgView Thread
I was diagnosed with RA in August. My CCP level was 250 & myRF Factor level was 214. My doctor has me taking Diclofenac twice a day & Avara once a day. It has not been helping as much as he thought it would so he is starting me on Humira if/when my insurance company approves it.View Thread
Pat, my experience was very similar to yours. I was on Methotrexate which wasn't working and I just never wanted to walk past a couch or chair without sitting down and falling asleep. I was diagnosed in October, and in May had dental abcess which was treated with Amoxicillan and I began to feel better except for my mouth having some sore spots and it was suggested that I stop the methotrexate (shots) while on antibiotics. I had not felt so good in a long time either and asked the RA to prescribe Minocin (after doing considerable research and reading). He said no, he didn't believe in it. As it turned out, my primary care Dr. said she would prescribe it if he would follow my RA. That's the current arrangement, although I'm in the process of trying to get a referral so that an RA in my State can provide my care and followup. I take minocycline M, W, & Friday, 100 mgs...and Ibuprofen, vitamins, fish oil, etc. I feel almost completely normal...no more depression, tiredness, headaches, etc...!View Thread
I was experience with MTX for 2 months, once a week, the 1st week it was miracle, pain free right away, but the 2nd week and so on I had many infections, chill all the time, and No sign of help my RA as well, and in 1 month I was so weak just a few steps walking wore me out. I gave it time hope my system able to adjust but NO NO to the end of 8 weeks I felt I was dying plus no help for my pain at all so I stop taking mtx and gradually feel better just with Prednisone, I had Sulfasalazine too, not work with me neither
Good luck, take care!View Thread
I agree! No matter how I behave on diet, if RA decides to flare it flares, I am fustrate just dont care and RA leave me alone, i meams not bad bad like drinking, party, so junk food...
My experience: when I am up to the point careless, I relax so I am ok,
When I am so focus on diet because I am already not feeling well, I stress out to find a right diet, right way to feel better then stress, anxiety, depress to trigger RA, so I Try to take it easy as much as I can, not easy though!
Good luck to you all, take careView Thread
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Hello,I am posting from the Houston, TX area. I am positive for RA. All arthritis tests are positive and my...
Posted by An_265042
Hello,I am posting from the Houston, TX area. I am positive for RA. All arthritis tests are positive and my platelet count remains rather high indicating inflammation. I am miserable and getting no pain relief. My new pcp has prescribed Tramadol and a Medrol Steroid pack at different times. My Rheumatologist has prescribed Steroids as well all these have done nothing but upset my stomach and keep me awake. I am taking Aleve and Tylenol alternatively. I wish I could find a physician unafraid to treat my chronic and worsening pain with a stronger medication. I am over 50. I work out of my home as I am unable to sustain full time work due to health. Does anyone in the RA Community have suggestions or doctor referrals for someone with medicaid/Community Health Choice/Texas Star coverage? I am new to the world of medicaid having had excellent health care coverage for years in the past. Thank you in advance.View Thread
Hi. I'm also 35 and was diagnosed w/ RA about a yr. ago. Believe me, you are not alone w/ having a difficult time emotionally. I highly recommend seeing a therapist-it really helps w/ coping. I also recommend occupational therapy; they teach you how to adapt to any physical limitations you may be having. As for diet; alot of people recommend diet changes, (easier said than done, in my opinion!) Cutting out sugar, processed food and adding fruits & veggies. If you are interested in alternative medicine, there is alot out there. You have a long road, and it's full of pot holes! But you aren't alone!! Best of luck View Thread
I was just forced to make that decision between those two drugs. I chose Rituxan because it is tried and true. Xeljanz has not been approved in Europe due to lack of data. I am now waiting for insurance approval. Good luck!View Thread
Hi. I have also suffered emotionally with my RA diagnosis and the added stress from feeling depressed can make the inflammation worse. I have recently started seeing a therapist for my depression. It has really helped me. I highly recommend it. Best wishes.View Thread
Hi. I've been taking Methotrexate for 9 months. 6 pills once a week ( 2.5mg each pill). I haven't had any irritablity from it but I also haven't had any relief from it either. I have noticed extra fatigue on the day I take them though. I wish you the best.View Thread
We need to heal the 'source' of the problem, debeau67. Healing the source allows the muscle & joint pain...
Posted by An_264266
We need to heal the 'source' of the problem, debeau67. Healing the source allows the muscle & joint pain to resolve itself.
(Unfortunately this info, added to a 3- to 5-year-old discussion, may not reach the ears of its previous posters, but it might reach you, debeau67.)
If you've had enough pain (muscle & joint) *and* the myriad of unpleasant symptoms & side-effects that go hand-in-hand with RA (& medication), and if you're receptive to a plant-based dietary/ lifestyle approach, see the links within these comments:
Consider listening/ following folks who are healing themselves, who have, in essence, 'reversed' their autoimmune illness or put it in 'remission.'
(Use whatever term you like. Some balk at the word 'cure,' others embrace it.)
Whatever word you'd like to use -- the point is:
people have significantly improved their physical & psychological well-being, reduced/ eliminated RA symptoms thereby reducing/ eliminating medications.
By carefully managing their diet/ lifestyle, formerly debilitated autoimmune sufferers have returned to "living" their lives with renewed energy/ vigor & sense of well-being.
If this "sounds to good to be true" & you've dismissed it out of hand, consider re-visiting it down the road if/ when you hit rock bottom.
If you're at the point where you'll "do anything" to stop the pain. This information will always be here for you, whenever you're ready to receive it.
Easing muscle (& joint) pain *can* be done, debeau67.
You have to want it bad enough & persist long enough.
You CAN do it.
Kind regards & best wishes for pain relief, debeau67.View Thread
Hi, mike201. Glad to hear your success reducing Prednisone & your never-give-up-spirit -- 15 attempts....
Posted by An_264266
Glad to hear your success reducing Prednisone & your never-give-up-spirit -- 15 attempts. Wow! Well done, you. (Outstanding persistence.)
It sounds like you are improving your severe RA with lifestyle changes of diet & exercise, as well as med reduction.
If this helps at all (you may already be familiar with this, but just in case your not) -- the Paddison Podcast has successfully helped people reduce & wean off their remaining doses of Prednisone (as well as other meds).
It may be worth a listen (http://www.paddisonprogram.com/blog/) for additional ideas that may weave into your current process.
(Not only meat/ dairy elimination, but specific elimination phase & food reintroduction phases so as to identify individual foods uniquely triggering *your* immune system's inflammation response. This bit of dietary refinement -- pin-pointing & tweaking those troublesome items may make a world of difference for you & hasten your gut healing. There's also a lot of ideas/ tips on probiotic food/ drink, exercise, yoga, etc. -- (too many things to list) some of which you may not be aware of.).
Listening to the podcast episodes may spark a few ideas that you may want to put into practice. Sometimes little tweaks help a lot.
It sounds like you're on a path toward healing, mike201. Wishing you well & continued healing.
I've had a few doctors and other people with arthritis try to convince me that changing my diet will cure my RA. Let me preface this by saying that I have been quite thin my entire life and have eaten healthy my entire life (no processed foods, plenty of fresh produce, and minimal sweets).
I have tried every anti-inflammatory diet I could find and all it accomplished was to make me lose weight and make me exhausted. I have super fast metabolism and very little extra body fat so losing just a couple pounds can be a major problem and make me more susceptible to infections.
Is it possible that my RA had nothing to do with my diet? Has anyone else had this experience? My theory is that my RA was brought on by having a very stressful childhood and young adulthood. My sister has developed chronic illnesses as well. Do you think that it could be caused by prolonged stress? If so, is there anyway to cure it beside the the Remicade treatments that I'm already taking? Any advce would be greatly appreciated!View Thread
So sorry I haven't posted for so long.. guess life is busy and I forget to check this blog.. Yes I still take the Chang Shan and do like it .. I order it from SunCatcher Herbs Greeley, Colorado they have a web site you can check out.. they have several herbs with the Chang Shan Included in them. One bottle is Sclero-eze and the other is T-Helper.. which helps with the inflammation. My RA is still in remission and these help a lot . In the past 2 years I've also gone on a gluten free diet and that really has helped.View Thread
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