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I cannot answer your question on white cell count but, I know my doctor takes my blood every month because my red blood cell count went from 344 to 129 while taking Methotrexate. This condition is called thrombocytopenia. He immediately took me off the Methotrexate.....gave my body 3 months without any RA drugs and then put me on the Arava. So far so good. I have had many tests done on all of my immunoglobulins and it was discovered they are very high which is what you want. Hope someone else can answer your questionView Thread
I too had extreme flare ups the first 2 weeks I was taken off the methotrexate and put on Arava. I wanted to discontinue the Arava but, stuck with it simply because you cannot just discontinue this drug without taking a wash out drug to get the Arava out of my system. I have had no flare ups after the 2 week period. I don't know about your diet but, you might want to consider avoiding any wheat products, sugar or red meat. These foods in themselves can cause inflammation. I also take turmeric (cucumin), ginger root, beet root extract, black seed oil and several other natural herbs. It seems to be helping. You need to stick to your guns until your RA listens to your concerns. You are the only person that knows your body better than anyone else and everyone is different. It seems some doctors expect everyone to fall into the category of what they have seen and dealt with but, like I said we are all different. I hope you can find something that will end up giving you relief.View Thread
I was diagnosed last September with RA and OA. I too was put on MTX and like you was scared to death of the side effects. I get pneumonia very often but, when I got pneumonia again in Dec/Jan 2013 it was determined that the MTX was the culprit. My little sister (who was only 55) passed away on Dec. 22nd 2013 due to a rare interstitial lung disease (Hamman-Rich Syndrome). They believe this is also an auto-immune disease. There is no cure and it only took 3 weeks from her first symptom of illness to death. I am currently on Arava now and have not had any problems. I am also taking Tumeric with Curcumin, Black Seed Oil, Milk Thistle, Ginger, Organic Extra Virgin Coconut Oil, Beet Root Extract, Vitamin D3, Vitamin B12 and prescribed Lovaza ( a very pure fish oil ). I am happy to say that my doctor is pleased with all of my lab results and has also cut my blood pressure medicine in half because the beet root extract has lowered my pressure to a normal 129/70. I am hoping that 1 day I can totally get off blood pressure medicine. Hoping you find what works for you.View Thread
sulfa antibiotics. It was determined I had what they use to call drug fever 30 years ago. I ran a low grade temperature of 100 and I ached all over. I felt like I had the flu. I can no longer take any kind of sulfa drugs because my body although not allergic.......is extremely sensitive. Don't know if this helps you at all.View Thread
Methotrexate gave me a lung infection plus some other side effects such has horrible depression and hair loss. Tried Enbrel for 3 weeks and couldn't handle it. I felt terrible the entire time I was on it. As soon as I stopped, I started feeling better.
I'm curious as to what my doc would have me do after Simponi. I can't say I'm looking forward to it considering my first two experiences.
So what's next?View Thread
I'm sorry you are having a such hard time. I completely understand what that is like. It's depressing if you constantly don't feel good and it can wear a person down. Hopefully you find something that will work and give you some relief soon. Try to keep up your positive thoughts and have faith!! Just know you are not alone and there are those who feel for you.
God bless!View Thread
I just experienced vertigo quite a bit. I stopped taking the medicine and have had no more episode, but still dizzy every one in a awhile. i understand your concern. I went to an ent doctor and he ordered me an MRI of my brain. He said no connection to the medicine. Crazy.View Thread
RA can be tough to diagnose. Symptoms can mimic other illnesses, or they may flare, then fade, only to flare again somewhere else. Lab tests aren't perfect—you can test negative for RA factors and still have it. And X-rays don't show signs until later on.
Another symptoms
Carpal tunnel syndrome, which is marked by tingling in the wrist and hands.
Dryness of the eyes, mouth, nose, throat, or skin. This can happen even in the early stages of RA, but it's unlikely to be the only symptom.
View Thread
Ok so I am being told that I need to do very moderate exercise to ease the soreness of the joints and walking, swimming and cycling would be best for this. What I'd like to know is, is there any way to reverse this condition or the symptoms of it?View Thread
After learning that due to having Hep C in my past I don't qualfiy for many drugs.
Can any one tell me what to expect? Especially since most of the wecsites and chat rooms seem to have members taking Methotraxate or biologics and some kinds of pain meds.
I've been told these are not options for me.
At 56 and in a lot of pain I'm very bewildered.
I cleared the virus over 5 years ago and my liver function tests ar all normal.View Thread
email check out the number of responses to this thread of folks requesting a chat room here.
Thanks!
AmyView Thread
I know what you mean about not taking pain meds enough. I avoid them and worry about becoming dependent. I do find my life is much better when I regularly take my Tramadol though.
Good news on your tests. Hopefully this discomfort will subside soon.View Thread
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The PA at the doctors office just kept saying "how bizarre" when I explained my problem over the phone. Funny how that didn't make me feel any better.
So my question is.....has anyone else experienced this kind of pain or knot. Is this common with RA or is this something unrelated.
I don't even notice the knee pain much anymore because the calf pain is far worse.View Thread
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Just hang in there and keep up the prayers! They will be heard. Be sure to rest, take care of yourself and I hope your spirits lift soon.View Thread
I can relate to the depression regarding the treatment, meds and the wonderful side effects. It is a very draining process to find the right medication. I went through that when I was first diagnosed and the first two meds were horrible. Everyone here on this community kept telling me to hang in there, I would find the right one and they were right. It just took time. Unfortunately, my RA doc is thinking my med may not be working now and I am not looking forward to switching. I don't want to go through that again.
I also think it helps to talk to people who have RA because they can relate. Keep trying to connect with others be sure to take a mental break once in a while if you can. Do something you enjoy...something that will take your mind off of it for a little bit. There is life beyond RA right??
)I wish you the best! Take care.
LCView Thread
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