Hi All, I'm new to these boards, and wanted to throw a question out to the group. I've been browsing the discussions and it seems like a lot of you are in treatment, and some even symptom free, so I was hoping a few or one of you may be able to relate to my problem.
For me, most of the time at least, if you saw me in real life, you would have no I dea that I am suffering from schizoaffective disorder. I take care of myself, and can have a peppy attitude, and be polite...but the problem is while I'm doing all of this...I'm still hallucinating and having paranoid thoughts and sometimes being delusional...even on meds.
I'm in constant contact with my psychiatrist so we are working on finding the best treatment, but I just needed to know if anyone had the same issue. Now that I'm "doing better" my loved ones expect me to be my normal self, pre-breakdown. There are just things I am incapable of doing, even on my best days.
If anyone has any advice on how to deal with this, I would really appreciate it.
Oh man I'm so jealous you can hold a job!!! That is so amazing to me, I can barely go shopping for dog food to take car of my dogs. I'm also the Bipolar type-but the mood part of it doesn't really interfere with my life anymore since I've been on a hefty dose of lithium. The schizo part though-that's what's killing me. I'm hoping abilify works for me, once I work my way up to a decent dose. Do you mind if I ask what meds you take? You totally don't have to answer, I just like to hear other's peoples opinions on the drugs.
OH! and NAMI, is an organization that supports mentally ill people. It stands for (I think) The National Alliance of People With Mental Illness. They host support groups (like actual groups, not online but in person) for both the affected with disorders/illnesses and support groups for families members of the sick ones. Its all over the states, I'm pretty sure. Also, on their website they have boards like this-only a little more active, www.nami.org I'm on that site too, but wanted to see what this was all about.View Thread
Aww I'm sorry your family doesn't get it either! I do have to give mine some credit, the more I educate them about the disorder the more they are starting to realize how debilitating it can be. I agree we do have to stick together! Are you involved with NAMI at all? And that's awesome that you support lgbt causes/ppl! View Thread
Ahhh! It's so nice to meet someone who can relate! My pdoc (who is also my therapist) is always commenting on how unique my case is, b/c I don't show my neurosis to the rest of the world. *Aside from the time when I was pretty far gone, and not getting treatment.
I think you're idea of doing something artistic is fantastic, and right up my ally...I've been an artist since I could hold a pencil, was even in art school before my disorder got in my way. However I have found it EXTREMELY difficult to create while on meds. Have you had that issue at all? I've been on Risperdal for the past year and a half, and have found it to be so tranquilizing that I just really didn't have any original thoughts anymore. Or motivation. As of now, I've been off it for about three weeks, and started Ablify instead, so I'm hoping I get my artistic impulses back. Pre-meds, I was someone who would get lost in a painting for 12hrs a day, for weeks straight so this is very different for me.
But I was actually more curious how you deal with friends/family members being annoyed/frustrated/disappointed in/tired of your limited capabilities in terms of just living life "normally", ie. being able to sit in a crowded restaurant without hallucinating...if you have any issues like that.View Thread
I have found that many different meds, and combos of meds work, but only for the short term. A couple of months at most. I have yet to find the lasting drug that keeps me symptom free. I: agree, you definitely need to keep your doctor informed He/She is your best resource.
I don't mean to sound like a jerk, but to me it seems like you are being entirely insensitive to your sons needs. Why do you think he is being manipulative? What has he done to show his wrong doings had malicious intentions? Have you heard of avolition? you should check it out, it's a schizophrenic symptom that is often mistaken for laziness.
And even if he were being that way...why couldn't you cut him a break until he receives SSA, even though you may not think it is as serious as a physical handicap, mental disorders VERY MUCH SO interfere with one's ability to hold a job. If you don't know what's it like to live in your son's shoes, you shouldn't be so fast to pass judgement on him.View Thread
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