In October I tested positive for HSV2. I'm sure that I got it long before I married back in 2009. I was shocked, depressed & in denial after getting my results-didn't even ask the doc any q's. I always thought that people typically get lesions, bumps, or blisters, then go see their dr & find out they have it that way. However, I am asymptomatic. I found out (through online research) that most people don't know they have hsv2 because they're asymptomatic, and/or herpes often gets misdiagnosed-by dr's and patients- as other conditions such as yeast infections, uti's, and even hemorrhoids.
I have overcome the initial shock & empowered myself w/knowledge, which stopped me from feeling like this is a death sentence. I'm just thankful my husband is negative (no idea how, after years of unprotected sex) but I'll take that as a blessing...I just want to do everything I can to keep it that way!
Here's my problem thoughâ€¦about 1mo after getting my pos result, I scheduled a follow-up w/my doc to discuss treatment options, best-practice ways of managing hsv2, and reducing the likelihood of transmitting to my husbandâ€¦my doc told me that my body & immune system is already doing a good job of suppressing the virus, therefore, antiviral meds would not be beneficial. She went on to say, the only time they can provide me w/meds is if I'm having an outbreak, or "If it feels like one may be coming on". I then asked her about taking Valtrex daily, inquiring if I'd be a good candidate for that (at least to reduce chances of transmission), she then repeated that I don't need any meds unless I'm having an outbreak. I replied, since there have been no outbreaks (that I know of) for all the years I've been infected, it's safe to assume that I probably won't have one anytime soon-so it's probably a better idea to just start me on a suppressive therapy since my blood tests prove that I definitely have it, just without symptoms. Again, she said NO, the only time I'd be able to get a prescription is to treat an active outbreak.
I was VERY thrown off by this because in all of my research I found that the best course of action includes suppressive antiviral therapy and using condoms going forward. But my doc basically has the opinion that I should be thankful I'm asymptomatic & don't have to deal w/outbreaks, and the only way to protect my husband is by using condoms. After this appointment I was beyond dissatisfied w/my doc & called the following day to request a referral to an infectious disease specialist for a second opinion. My doc called me back, and refused meds again because "They can ruin your kidneys" but also refused to refer me to a specialist stating, "It'll be a waste of time, because they will just tell you the same thing I've already told you"â€¦Ridiculous, right?! After hanging up, I immediately googled acyclovir and kidney damage only to find that acute renal failure (kidney failure) is very uncommon in healthy, young patients-the only people at higher risk are elderly patients or those who have preexisting renal conditions. I'm certainly not at-risk because I'm 27, in good health, and do not have a history of kidney problems. I called back to provide this information, hoping it may change her mind, but was just told again that I will not be given a prescription for antiviral meds without having any symptoms.
Can anyone provide me feedback/suggestions please?View Thread
I just read your story, and can't believe you haven't given hsv2 to your wife after all these years! I still can't believe my husband is neg, after we've been having unprotected sex over 4 years now. I don't get it... I'm just confused now about if I should even continue pushing so hard to get on antivirals. It's quite unsettling that my doc refused a referral to an infectious disease specialist just because she thinks it's a waste of time. I guess it's just more of a way to give me peace of mind that I'm protecting my husband the best way possible.
My IgG score for hsv2 was >5 so, I'm definitely pos even w/the absence of symptoms. I'm now starting to reflect back on all the times I thought I was having a hemorrhoid & think maybe those were outbreaks? My husband has tested twice now, and both of his test results came back neg, so I'm glad he hasn't got it from me up to this point. I'm just scared that I may give it to him, and he won't be so lucky to be asymptomatic like I am. I'd feel horrible if he ends up getting it because I didn't do all I could to prevent it & he has to suffer w/painful, uncomfortable symptoms.View Thread
Have you confirmed yet that he has hsv2 with a blood test? If not, that would be the best way to determine his status & also make sure that you are definitely negative. It is possible to have herpes w/o any outbreaks, because I just tested positive back in October and have never had any blisters, bumps, or lesions down there (asymptomatic).
Depending on the bloodwork results, if he is indeed pos (and you're neg) there are ways to reduce the likelihood of him transmitting it to you. Antivirals such as acyclovir, valacyclovir (Valtrex) & famcyclovir are great for both treatment of outbreak episodes as well as ongoing suppressive treatment. From my understanding, the best-practice method of prevention includes taking antiviral meds along with condom useage. Now, since you've been married for some time & already have 2 kids, I'm assuming condoms aren't normally used...so this will be a discussion to have w/the hubby & see how he feels about that. I thought mine would be upset or turned-off by having to go back to condoms again, but he understands that I'm trying to protect him the best I can. So, it's not an issue for us.
As far as pregnancy, the one thing I know is that it can be dangerous to be newly infected while carrying. Basically, the concern is if the mother has an outbreak at the time of delivery. But there's plenty knowledge in the medical field about handling that, and if it were to happen (an outbreak), they'd just do a c-section to protect the baby from getting it from mom.
I filed a formal complaint w/the hospital's patient relations team about my dr's treatment (well, lack of treatment) in my situation. Have been back & forth w/them for the past month now because apparently your primary doc is the only one who can submit a referral "on the system" and mine has already refused to do so. Now, I'm just stuck in limbo waiting to find out if they can go above her head & push something thru for me to get a 2nd opinion.
Figured I'd put this out there & see if anyone can provide good insight to help me get this resolved.View Thread