I have the same issues that you r have: no spleen since 1996 due to ITP and Hsv 1 & 2 positive since 2009.
The past 2 years I have been having the same type of issues. I have also taken meds for HSV that the symptons that doc seems to think was related to HSV. It didn't help. The meds made me sick to my stomach.
Lately almost 75% of the time if I had un protective sex I got seriously ill within days symptons such as: severe head pain to the point were it felt like i had an infection of the brain, flu like symtons, extreme fatigue, sometimes to the point of light headlines, diarrhea, severe joint, muscular and stiffness, throat and mouth issues such as lesions.
I went to several doctors that new that I had no spleen and 90 % of them told me that I just had a bug or viral infection which could be treated with rest and drinking liquids.
I ended going to an STD clinic I had symtons that I thought was related to HSV and syphilis. The nurse ran a culture and it was neg for HSV. She also run the basic std test for HIV, gonoherra, chlymadia, and syphilis. Since there is a currently high out break of syphilis just to be on the safe side She gave me 2 shots of penicillin G, which is given in the hips of the large muscles area just in case I might test positive for syphilis. All of my Std test came back NEG.
Now back to the penicillin G Shot: out of all the meds the doctors have given me this shot treated over 96% of all the symtons that the other meds either made worse and just didn't help at all.
I did a little research and a lot of the meds the doctors were given me was only a substitute for pencilin. They kept telling me these meds were suppose to be more effective than penicillin they were wrong. These doctors were starting to mess with my life not giving me the proper meds for someone without a spleen.. I went to several doctors when I got sick again and no one would give me any type of meds for penicillin what so ever. They keep giving the the penicillin meds substitute again, which either made it worse or didn't help at all.
Finally I went online and found a doctor who treats infectious diseases, because I had a gut feeling she would know how to help me.
And she did. I was given a shot of the real penicillin and she old me anytime I started having symptons call so she can call me the proper meds to keep me out of the ER or ICU. She told me that if a person without a spleen over looks or wait to late to get treated u could die from infections if the infection is bad enough in a matter of hours. Trust your gut because a lot of these doctors get kick backs from the companies that make the medication they give us. The medical field is no different from any business or politics. IT'S ALL ABOUT THE MONEY HOW CAN THEY KEEP U COMING BACK TO THE OFFICE FOR A FOLLOW UP. That cost us money every time w have to a doctors office visit.
I didn't realize how important the spleen is in keeping us from getting infections. It's a blood filter for diseases. My doctors didn't tell me the true side effects of not having a spleen.
I still haven't figured out why my body is reacting the way is when I have unpretective SEX. I am still researching!!View Thread
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