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This bit of discouragement has been brought on by my circumstances that I have experienced this past few months and by no means do I wish any ill regard to any person. This is just another slice of the struggles that we face. Struggles that I am sure will continue as time passes by. May you all become more informed and stay educated on our struggles.
Hugs
sleepingmikeawakeView Thread


Hugs from Narcolepsy support.
Michael DufferView Thread

It has been awhile since I have had the chance to talk. I've been buisy with a couple other support groups for Narcolepsy.
Having to much REM sleep can cause a build up of sleep deprivation that leads to all sorts of problems. That's why it is of the greatest importance to have a sleep study done and find out if it can be straightened out or at minimum treated. I have Narcolepsy\Cataplexy\sleep paralysis\ and the HH along with mixed sleep apnea.
It makes for a miserable existence at times but with all the support from all over it is bareable. for more than 20 years I thought I was alone in this struggle but since 2009 I have contacted a great multitude of Narcoleptics who were in the same situation.
(Michael) If you want to get to the scorce of your problem that you mentioned having a MSLT done at a sleep clinic will most likely give you some answers. If it is something reversable or treatable you will see your productivity increase in your buisness. I hope you get your answers.View Thread

Speaking to Emo:
"You described the states of "dream intrusion" and "waking dream" to a "T."
It also applies to the various states of Cataplexy.
And when in extrem sleepy states but having to push to maintain a presence, many combinations can exist at one time.
It can make one feel great anguish and stress added to the most simple of everyday mundane things in life.
It can pull ones spirit down to the depths of depression.
It can hurt so horribly bad, yet have no measurable reason for existance.
It can be dibilitating.
It can be devestating.
It can be Terrifying.
It can make one suffer such dispare, such a sense of lonelyness or isolation.
So thankful of finding support!
The Lurker?--------It is the evil we make it.
I can not count the times I had to reason with my very own self ,to convence myself that it is my minds construct.
It is when I can not reason with myself, when I am not in a state of mind that is safe from feeling the terrors of the lurker.
It use to sit upon my chest and smother me.
It would transform the shadows in the darkness into evil terrifying things.
It is a dark evil construct that is not welcome but intrudes anyway.
It stabs with a stinging hot blade.
It is a cause of many a downfall.
>>A collaps to the ground.
>>A seeing of horrific sights.
I could go on in my discriptive terms.
>>But alas,
I have trained myself to reason.
>So the unwanted visitor does not intrude as often as before, especially since I have been involved in sharing with others in the group.
Many Hugs
Mike"
Anyone wish to share their experiences with the Lurker?View Thread

Stress is a joy killer in all facets of life. Emotional, Mental, Physical, and Spiritual.
We all try to avoid it. Yet there are those that give the outward appearence that they thrive on it. We know differently, don't we.
Stress causes all sorts of trouble, even if you think you have solved the situation that caused the stress in the first place. Some time in the night whilest sleeping most will subconciously review and sort and store all of the days activities and if strong emotion is connected with the information it may just either work its way out in a passive dream or scare the bejeevers out of ya. Or if you're fortunate as alot are you wont even remember the silly ways the brain handles it.
The bigest scource of stress is alomst gone as my job as an Analysis and Repair Technition is heading to Mexico. 2010 was so much mandintory overtime that it put me in the hospital.
After three more E-R visits and two more hospital stays the following year, along with so many tests I have stableized. When you over work and inturn over stress, it wears the immune system down. In turn you could end up like me and get a virus of some sort and getting the autonomic nervous system messed up. I am sure the spinal stenosis has a part in there as well but I was required to keep a thurough journal on my diet, sleep, pain, BM's, and general all around feeling. For 5 months I did this.
It was a daily routine and almost became an obsession. I did get the information that the Dr. needed to diagnose me with IBS. I could have pushed further into what other things were wrong. but I realised that there has to be a balance of how I think on things. They say you can think yourself right into the grave. It is certianly true that your thought processes on at least some things can have a negative or a positive effect on your well being. So I stopped journaling my every day stuff and now I only write in my personal journal my lifes big events or when I start to get depressed. (Journaling my thoughts has helped me out of the darkness of depression many of times in the past especially before I found a support group for my Narcolepsy.) I certianly hope this helps in your discussion about stress. Having a sleep attack in the middle of driving to wo or from work has to be right up there with the most stressful situations that I have. You see, you can't always time the medicines to co-inside with the digestive absortion timing and the time to be at work. So that's why I work hours that when I am driving, there is little traffic and I have changed my career to have less distance to drive. (I went from a 2 to 3 hour commute to 20 minutes.) I have found that on average if I am by myself, I can go about 15 minutes before a struggle with something Narcolepsy related. Believe me it will be a big relief to be out of work. But then there you have it...how to survive on little or no income. Large stress when given the chance to think about it long enough. It seems to have no end. Still, I have hope that soon all things will be mended.
I hope this helps.View Thread

Have you tried nose pillow type? I was skeptical when I first heard about it. but it seemed to work great for my case. I have the double whammy of apnea. both central and obstructive. So, the air pressure had to be just enough to keep my air way open but as soon as it was to high the central apneas would increase. I am set at a low pressure rate. As far as dry mouth, I suffer from this extremely due to the meds I take for Narcolepsy. I did find a mouth wash for dry mouth and during the day I use a chewing gum for it and I also use a tooth paste that is for dry mouth. It helps a little but it is still frustrateing.
I use to suffer TMJ really bad but after a year of wearing a mouth peice while sleeping. It finally tightened up the supporting tendons to keep my jaw in line. Hope this helped some what.View Thread


If you research the phases of sleep that most go through normally you come across the study of how close your brain reads to an awake state during REM or Dream stage. the fact that you are waking in this stage is common. Dreams are so vivid and powerful, they span all of our experiences and go way beyond. Our Brain constructs millions of bits of information and processes it in the dream realm. Emotions that are generated through out our consious life is reconstructed in our dreams though the situation and interpitation of these things may be as simple as remembering the emotion of a taste of a certian food but in the dream construction it plays out as an epic story of adventure and comes so close to matching or excedeing the waking state that you actually phase to an imediate waking state feeling all the intense feeling of the construction that your brain was playing out.
Have you experienced an inability to move when this happens?
This is called Sleep paralysis. evreyone is suppose to have this happen when they enter the dream stage of sleep. some times we experience this on the onset of going to sleep and are awake when it happens. and when we wake up. It is normal to experience this on occasion but if it is happening frequently and even through the time of the day when you are awake; you may have a serious problem, Myself, I have a sleep disorder that has all the REM problems along with Cataplexy and EDS and HHalucinations (dream intrusions while being awake), Sleep paralysis, all of the markers for Narcolepsy. I have dealt with this diagnosis for more than 25 years now and have recently (2009) had the Diagnosis re evaluated and have confirmed it with modern sleep study and multisleep latency tests I also have both kinds of sleep apnea (obstructive and Central)
I find the subject of sleep and how it affects our lives to be very interesting and extensive topic to research. I hope this little tid bit into the realm that I spend most , has helped. Oh, one more thing, recently it has been discovered that REM isn't the only phase inwhich people dream,,,there are deeper phases of sleep that we dream in but the brain wave patterns seem to imply that these dreams are very much different that what we experience during REM. New discoveries are being found every day. thanks for letting me share.View Thread

What you are describing is EDS which can be caused by many things. If this has gone on for some time now and you are experiencing it on a day to day basis you would best be served by getting checked out by your Personal Dr. or if your insurence allows go straight to a Sleep clinic or specialist.
I went the other way round because all the other things besides EDS led me to think it was a brain tumor or something like that. So it took a long time before I ended up in the right place to get the right diagnoses.View Thread
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