Stroke Community: Support Group

Jnicholson1437: Although your symptoms are in line with what I had when I was diagnosed with Wallenber...

Posted by Patricjft

48 Replies | Reply | Watch This Discussion Report This | Share this:wallenberg syndrome and stroke Jnicholson1437: Although your symptoms are in line with what I had when I was diagnosed with Wallenber...

Reply: my mother 49 had a massive brain stem hemmorage st...

they wanted us to pull the plug so to speak a long time ago. said she is in a persistent vegetative...

Posted by dumpsterqueenky

3 Replies | Reply | Watch This Discussion Report This | Share this:my mother 49 had a massive brain stem hemmorage stroke on feb 13 2013. she has yet to open her eyes. she moves a little they wanted us to pull the plug so to speak a long time ago. said she is in a persistent vegetative...

my mum 63, her 2nd big stroke...

my mum is 63, she has had one big stroke before but she totally recovered from it in 2008 it affected her...

Posted by An_251911

0 Replies | Reply | Watch This Discussion Report This | Share this:my mum 63, her 2nd big stroke... my mum is 63, she has had one big stroke before but she totally recovered from it in 2008 it affected her...

Reply: MEMORY LOSS PROBLEMS AFTER TIA

I would like to know as well. I had a TIA two weeks ago and am having severe confusion to the point where it...

Posted by cgreen202

3 Replies | Reply | Watch This Discussion Report This | Share this:MEMORY LOSS PROBLEMS AFTER TIA I would like to know as well. I had a TIA two weeks ago and am having severe confusion to the point where it...

Migraines vs. Mini Strokes

How do you know if you are experiencing migraines or mini strokes.

Posted by BettynChris

0 Replies | Reply | Watch This Discussion Report This | Share this:Migraines vs. Mini Strokes How do you know if you are experiencing migraines or mini strokes.

T.I.As.& seizures

can you have seizures after you had a T.I.As. the reason i asked is i had a T.I.A. last november 2nd ,...

Posted by An_242833

0 Replies | Reply | Watch This Discussion Report This | Share this:T.I.As.& seizures can you have seizures after you had a T.I.As. the reason i asked is i had a T.I.A. last november 2nd ,...

Reply: Flight

Why do your relatives want to move her to FL? What assistance are they going to give her compared to your care?...

Posted by itmatsb

1 Reply | Reply | Watch This Discussion Report This | Share this:Flight Why do your relatives want to move her to FL? What assistance are they going to give her compared to your care?...

Reply: intracerebral hemorrhagic stroke

Thank you very much for the reply and the encouraging words!

Posted by nask84

2 Replies | Reply | Watch This Discussion Report This | Share this:intracerebral hemorrhagic stroke Thank you very much for the reply and the encouraging words!

Mother walking up steps at store, finds herself si...

My mother was at a store recently and was walking up the steps. Next she found herself sitting on the steps...

Posted by An_251642

0 Replies | Reply | Watch This Discussion Report This | Share this:Mother walking up steps at store, finds herself sitting on the steps assisted by clerk and doesn't remember anything about what happened. My mother was at a store recently and was walking up the steps. Next she found herself sitting on the steps...

TIA with Sphenoid Sinus

Last December, while at work, and doing my usual overworking myself, I suffered at TIA. I did not know my...

Posted by afterstroke

Last December, while at work, and doing my usual overworking myself, I suffered at TIA. I did not know my slurred speach was significant and did not know what was happening. I could hardly move my right and left side. Upon leaving the hospital I had to learn to walk and speak without a slurr. I have always been very active and fit, because of a lifetime of asthma and upper and lower scoliosis. At first they said nothing was showing and the next day they said they found bleeds around my cerrebellum and referred me to a neurologist. The neurologist said it was migraines. The neurologist put me on Depakote, that made me function better almost at the onset of the drug. They then referred me to get another MRI w and w/o contrast. The neuro surgeon said I have a bony or fatty growth the covers most of my sphenoid sinus. They have done another scan and said that it hasnt grown and decided not to do surgery. I told the surgeon that I had experienced numbness on the right side of my head that lasted approximately 2 weeks. The neuro surgeon said to wait 3 more months to get another MRI. Presently, I have symptoms of being unbalanced (fell down stairs few times), back of necks hurts, mostly left upper arm pain (but do have pain all over, but not significant), some blurry vision at times, and a little blood when I blow my nose in the morning, and my children and husband tell me I leave things out of conversations or just blurt out stupid stuff. My doctor did not detect what was happening because apparently it is very rare. She did a battery of tests all last year which include, 2 pollups removed, 3 goiters biopsied, and a growth in my liver. Please help me figure out the best suggestion to my problems. Oh and of course my doctor put me on an anti depressant last month. She suggested for me to see another surgeon.View Thread

Posted by afterstroke

0 Replies | Reply | Watch This Discussion Report This | Share this:TIA with Sphenoid Sinus Last December, while at work, and doing my usual overworking myself, I suffered at TIA. I did not know my...

Wallenberg

I went to the emergency room on March 14, 2013 because I had been having mild episodes of vertigo for about 3-4...

Posted by zivo24

0 Replies | Reply | Watch This Discussion Report This | Share this:Wallenberg I went to the emergency room on March 14, 2013 because I had been having mild episodes of vertigo for about 3-4...

Reply: Heart disease? aneurysm? hypochondriac? i don't kn...

Go see a doctor.The only way you're going to find out if it's anything is to be examined by a doctor.

Posted by JeffDaddy

1 Reply | Reply | Watch This Discussion Report This | Share this:Heart disease? aneurysm? hypochondriac? i don't know and im freaking out Go see a doctor.The only way you're going to find out if it's anything is to be examined by a doctor.

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Reply: Struggling with Stroke Recovery

she still has not opend her eyes. she moves a lot more but when you ask her to move something she...

Posted by dumpsterqueenky

5 Replies | Reply | Watch This Discussion Report This | Share this:Struggling with Stroke Recovery she still has not opend her eyes. she moves a lot more but when you ask her to move something she...

hemorrhagic stroke followed by a pulmonary embolis...

I had a hemorrhagic stroke on the front of the left side of my head and 2 seizures all with in a week. About a...

Posted by jameelk

0 Replies | Reply | Watch This Discussion Report This | Share this:hemorrhagic stroke followed by a pulmonary embolism I had a hemorrhagic stroke on the front of the left side of my head and 2 seizures all with in a week. About a...

Reply: Worried after stroke

I do cry very easily and also rise to anger far more easily than I did before my stroke. My emotions seem to be...

Posted by itmatsb

31 Replies | Reply | Watch This Discussion Report This | Share this:Worried after stroke I do cry very easily and also rise to anger far more easily than I did before my stroke. My emotions seem to be...

Reply: How to gain weight lost from stroke

my grandson is on adhd meds and his doctor prescribed cyproheptadine because he has little appetite because of...

Posted by mom0551

1 Reply | Reply | Watch This Discussion Report This | Share this:How to gain weight lost from stroke my grandson is on adhd meds and his doctor prescribed cyproheptadine because he has little appetite because of...

Reply: I lost my consciousness yesterday

I'm 18 years old male

Posted by Huff_Duff

1 Reply | Reply | Watch This Discussion Report This | Share this:I lost my consciousness yesterday I'm 18 years old male

Reply: stroke and lose of balance/dizzines

I HAD A STROKE IN MY 30''s THEN I STARTED HAVING GRANMAL SEIZURES NOW I AM 56 AND HAVE THE SAME PROBLEMS YOU...

Posted by waffel69

19 Replies | Reply | Watch This Discussion Report This | Share this:stroke and lose of balance/dizzines I HAD A STROKE IN MY 30''s THEN I STARTED HAVING GRANMAL SEIZURES NOW I AM 56 AND HAVE THE SAME PROBLEMS YOU...

Reply: Confused

I'm not a doctor and really don't know, but a week long seizure study sounds excessive. I think that I would...

Posted by itmatsb

Take the Poll

Anyone have migraines after going off of Abilify?

1 Reply | Reply | Watch This Discussion Report This | Share this:Confused I'm not a doctor and really don't know, but a week long seizure study sounds excessive. I think that I would...

Confused

About a year ago I began having frequent chronic migraines. I had never had them in the past. Eventually I...

Posted by tamigail36

Take the Poll

Anyone have migraines after going off of Abilify?

0 Replies | Reply | Watch This Discussion Report This | Share this:Confused About a year ago I began having frequent chronic migraines. I had never had them in the past. Eventually I...

Reply: Dissection on carotid artery

I am sorry to hear about your son. First, there is no way to predict that such an injury will...

After your stroke you may be experiencing a new normal, but remember what George Eliot said- It is never too late to be what you might have been. You still can achieve new goals.

Posted by Richard C Senelick, MD

1 Reply | Reply | Watch This Discussion Report This | Share this:Dissection on carotid artery I am sorry to hear about your son. First, there is no way to predict that such an injury will...

Reply: stroke

You didn't provide any detail about the nature of your mother's stroke, any medical precautions being taken or...

Posted by itmatsb

2 Replies | Reply | Watch This Discussion Report This | Share this:stroke You didn't provide any detail about the nature of your mother's stroke, any medical precautions being taken or...

Reply: Almost 3 months after stroke, and very little impr...

I think that you should ask for an appointment with his doctor and ask your questions about his shoulder,...

Posted by itmatsb

2 Replies | Reply | Watch This Discussion Report This | Share this:Almost 3 months after stroke, and very little improvement. what can i expect? I think that you should ask for an appointment with his doctor and ask your questions about his shoulder,...

Reply: Botox for stroke spasms.

functional electrical stimulation

Posted by susiebelle

3 Replies | Reply | Watch This Discussion Report This | Share this:Botox for stroke spasms. functional electrical stimulation

Prolonged hazy feeling after cerebral hemorrhage i...

I'm 36 years old and on 9-15-2012 I was rushed into emergency brain surgery from a massive large scale hemorrhage...

Posted by pagex

I'm 36 years old and on 9-15-2012 I was rushed into emergency brain surgery from a massive large scale hemorrhage in my right temporal area.

Earlier that day I was at an estate sale on my knees sorting thru vinyl records. I then stood up to walk out the door to drive home. But when I stood up I suddenly felt dizzy and had a funny taste / smell sensation come over me. It was like someone was burning rubber in my mouth. I made it to my car and while I was driving home (about a 5 mile drive) I started feeling the worst headache of my life. I made it home but when I got there I suddenly lost my balance which was causing me to stumble and fall all over my house only to have my fall broken by me bashing head first into every wall as I kept getting back up and falling again. This happened about 10 times around my house, including falling down my first flight of stairs head first into a retaining wall. I simply couldn't keep my balance. I finally managed to stumble into my bed to lay down around 12pm thinking I was just tired and needed a nap. What I didn't know is that was I was having a massive cerebral brain hemorrhage.

My brother found me 6 hours later. And when he found me unresponsive passed out on my bed he called my mom over. I vaguely remember my mother standing by my bed saying "I think he's had a stroke". She and my step-dad didn't wait around for an ambulance at that point. They put me in the car and drove straight to the ER.

I woke up the next day in the ICU with 65 staples in my head after having a craniotomy to drain the massive bleed and to remove a 4 inch blood clot. My first question in the ICU to the surgeon when I awoke was... "Can I ski this year?"

Fast forward exactly 2.5 months from the day of the bleed... I stepped back onto my downhill skis and clocked in at a downhill speed of 62 mph. So all things considered I walked away from something that should have left me dead or left me with with a major lifelong disability.

I'm a software developer and film editor and was back working 4 weeks after the day of the stroke.

I do suffer from a mild visual field loss in my upper left field of vision. Which isn't so much of a problem. I've adjusted to the visual loss mostly. But I still have my fingers crossed they the vision thing will resolve itself. I know it's wishful thinking but I wholeheartedly believe it will resolve itself.

Which brings me to my main question. I wake up everyday with a hazy feeling and it lasts all day long. The neurologist I'm seeing put me on dextroamphetamine which does help a little. But the hazy feeling I've had since the hemorrhage is getting annoying to put it simply.

I'm just wondering if anyone else out there has had the same prolonged hazy groggy feeling after a hemorrhage and I'm wondering if it's ever cleared up.View Thread

Posted by pagex

0 Replies | Reply | Watch This Discussion Report This | Share this:Prolonged hazy feeling after cerebral hemorrhage in right temporal area I'm 36 years old and on 9-15-2012 I was rushed into emergency brain surgery from a massive large scale hemorrhage...

Almost 3 months after stroke, and very little impr...

My husband had a massive right brain cerebral stroke which has effected his paralysis on the left side,...

Posted by southernyankee

My husband had a massive right brain cerebral stroke which has effected his paralysis on the left side, and is now in the rehab unit at a nursing home after being home for one month from the hospital rehab for 21 days. He was still unable to get himself from a laying down position to a sitting position on his own; but was able to sit with his right arm holding his body from falling back or over as long as he was leaning on his right arm without any assistance. He was feeding himself, and was looking to the left side both with his eyes, and turning his head.He has been a diabetic for several yrs.and had a stint put in 12 plus yrs.ago and then again in 2011 the same stint was needing the artery opened up.
He had been on atenelol up until the quad ripple heart bypass in Nov.2012, and had just started cholesterol medicine. He's been on insulin and pills but has stayed very active for his age, which is 74 almost 75, and still worked up until the heart surgery last yr. as a interior/exterior painter for up to 40 yrs.on and off. He quit smoking when he had the first stint put in and does not drink. He stays outside 99% of the time because we have a little farm, and that has always been his passion as he was raised on 80 acres of farmland as a boy.
There are many questions I have, but here is what I have been wondering; his dislocated shoulder, which I've been told is "commom" among stroke patients; in which if that is the case, why is there not a preventive measure put in place, is there anything that can be done to get this healed up?
Another thing is that he sometimes sees things that are not there. I've read that sometimes dimentia may occur in some stroke patients. Is hallucinations also common with right brain stroke patients?
One more thing is that he has just recently had a skin tear in the careless process of transfering him from a hoyerlift to his bed at the rehab unit at this nursing home he is in. Today we noticed that his left hand and fingers and left foot is swollen. The wound looked a little white and pussy looking and also had swelling around it. We got the nurses attention on it and she doctored it again. Could the swelling in the foot and hand be caused from the wound? I was there yesterday, and did not notice his hand being swollen and had spent quite a while with him and went to the dining room and watched him eat so I would have seen this. I am concerned, but don't know what to do if I should do anything. He is all I got, and want to do the best for him so he can get better.
He also has had a hernia in the left groin for years, and get's very enlarged. He says it get's like that when he has not been able to have his bowels move. Can dr's. operate on this so he is not in alot of pain from this? He has complained about it hurting him.
Thank-you for your response on my questions. I am going to do the best I can for him with Hospice when he comes home. We just celebrated 18 yrs. of marriage and want him to enjoy however long we have left together. How long do people go on like this? I've ready to endure however long, just was wondering.
thank youView Thread

Posted by southernyankee

0 Replies | Reply | Watch This Discussion Report This | Share this:Almost 3 months after stroke, and very little improvement. what can i expect? My husband had a massive right brain cerebral stroke which has effected his paralysis on the left side,...

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Reply: muscle cramps in stroke victims

Also one of my doctors told me that Botox can help leg cramping after a stroke.

Posted by itmatsb

5 Replies | Reply | Watch This Discussion Report This | Share this:muscle cramps in stroke victims Also one of my doctors told me that Botox can help leg cramping after a stroke.

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Reply: Questions about stroke

Look at the hiccups posting on here with expert advice. The question says, "We already treated him with:...

Posted by itmatsb

4 Replies | Reply | Watch This Discussion Report This | Share this:Questions about stroke Look at the hiccups posting on here with expert advice. The question says, "We already treated him with:...

Reply: TIA/Stroke Symptom or the "New Normal"

Thank you for your reply, Watarimono. Personally, I think it's either a form of nerve damage (peripheral...

Posted by CitizenR

5 Replies | Reply | Watch This Discussion Report This | Share this:TIA/Stroke Symptom or the "New Normal" Thank you for your reply, Watarimono. Personally, I think it's either a form of nerve damage (peripheral...