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I read your piece about secondary prevention of stroke as well as talking to my neurologist about my risk of having another stroke. With neither source where did I hear what I have since learned that most stroke survivers have sleep apnea. And that those who have had a stroke have a greater chance of having another stroke from sleep apnea with a greater chance of mortality and poor rehabilitation.
I had no sleep apnea before my stroke having a sleep study which even included a scope down my esophagus all night. But since my stroke I have not only obstructive, but central brain sleep apnea. I'm having difficulty wearing my CPAP mask due to severe bruising on my skull after a Prolia injection has caused this problem long after the side effects should have gone away. My endocrinologist spent a long time trying to learn when the side effects would go away and came up with nothing. And both the neurologists giving me nerve block, trigger point and Botox injections to treat my 24/7 migraines think that I should not wear the mask for 1 to 2 weeks respectively after the injections so that the liquid is not squeezed out. So now I just got a special mouth piece ordered which I have not yet obtained to try and it doesn't control the central brain sleep apnea.
So how worried should I be?View Thread

I read your piece about secondary prevention of stroke as well as talking to my neurologist about my risk of having another stroke. With neither source where did I hear what I have since learned that most stroke survivers have sleep apnea. And that those who have had a stroke have a greater chance of having another stroke from sleep apnea with a greater chance of mortality and poor rehabilitation.
I had no sleep apnea before my stroke having a sleep study which even included a scope down my esophagus all night. But since my stroke I have not only obstructive, but central brain sleep apnea. I'm having difficulty wearing my CPAP mask due to severe bruising on my skull after a Prolia injection has caused this problem long after the side effects should have gone away. My endocrinologist spent a long time trying to learn when the side effects would go away and came up with nothing. And both the neurologists giving me nerve block, trigger point and Botox injections to treat my 24/7 migraines think that I should not wear the mask for 1 to 2 weeks respectively after the injections so that the liquid is not squeezed out. So now I just got a special mouth piece ordered which I have not yet obtained to try and it doesn't control the central brain sleep apnea.
So how worried should I be?View Thread

After 2 years of being below a normal BMI which the doctor said was very unhealthy, I'm now at the low end of a normal BMI. I can't stand to eat most foods, except dairy and sweets. When I got depressed because of my daily pain and not being able to do much, my biggest complaint to my doctor was that every day I had to get up and eat something. If anyone else has any ideas for both of us, please write in.View Thread

Wish you the best.View Thread


What a thing to have a 26 day migraine from a chiropractic adjustment! I never go to chiropractors especially since I found out that the kind of stroke that I had can be caused by chiropractic adjustments. I went to the neurologist today and got 15 nerve block and trigger point injections which have helped me some. But it won't long enough to get through until the next botox injections which will hopefully work next time, since they didn't this time. I have signed up to do 3 training sessions in the next month about 1.5 hours each way. I really hope that I don't have to cancel them.
Life is harder sometimes, but I've finally gotten used to it and don't get severely depressed anymore. I've gotten to use the therapy of another woman who got a disease where she started getting numerous strokes at the age of 43. With each stroke she loses memory. She dotes on her children and continues to love them as long as she can remember them. Such a loving acceptance in that woman. So in comparison, I have little to complain about. I never had children--not by choice. The biggest disappointment of my life. But I do love my husband, as long as he is around. He's getting up in age. Anything can happen as you know.
This stressful tijme of your life will end. You just have to get through it. Take care.View Thread

I'm so glad that you have something to look forward to by going to live with your sister. There aren't always good enough relationships to handle having a sibling move in.
I'm also really glad to hear that you are working with your clay at times. That is so very important. I spent most of 24 hours sleeping with day 3 of a severe migraine, except for 2 hours of it. I have been awake for the past 3.5 hours--mostly lying down or the pain gets worse. Never had such a long stretch of sleeping. My back hurts from it. As I write to you, I'm eating.
Must sign off now to lie down again. You have a good day.
SaraView Thread


It sounds like you both have had good positions, but with illness it can take everything you've got. So sorry that you don't have retirement funds and social security only gives you so much which you'll have to wait awhile for. Both my husband and I are self-employed, so there is no retirement for us unless we can save it. None for me to contribute since my medical bills and insurance payments took everything for years even before my stroke.
When you say that you want to go home, does that mean with parents, to a different state or where? You don't need to say the name of the state. It certainly sounds like a good plan for you, of course later on. How is Pete's personality these days? Hope it's still him in a lot of ways.
It's been wonderful to get to know you better. Of course it would have been better under far less bad circumstances. You have a good day too.
SaraView Thread
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