Have you tried a nutritionist or dietitian to help your husband? I also lost about 50 lbs within a short time after my stroke. I had hanging skin on me! If your husband likes milk products, does he like ice cream? Ice cream continues to save me. My doctor told me that she didn't care what I ate--just keep having the ice cream every night and to not lose any more weight.
After 2 years of being below a normal BMI which the doctor said was very unhealthy, I'm now at the low end of a normal BMI. I can't stand to eat most foods, except dairy and sweets. When I got depressed because of my daily pain and not being able to do much, my biggest complaint to my doctor was that every day I had to get up and eat something. If anyone else has any ideas for both of us, please write in.View Thread
You need the tears for your understandable grieving. But otherwise you seem to have started a pretty good routine.
What a thing to have a 26 day migraine from a chiropractic adjustment! I never go to chiropractors especially since I found out that the kind of stroke that I had can be caused by chiropractic adjustments. I went to the neurologist today and got 15 nerve block and trigger point injections which have helped me some. But it won't long enough to get through until the next botox injections which will hopefully work next time, since they didn't this time. I have signed up to do 3 training sessions in the next month about 1.5 hours each way. I really hope that I don't have to cancel them.
Life is harder sometimes, but I've finally gotten used to it and don't get severely depressed anymore. I've gotten to use the therapy of another woman who got a disease where she started getting numerous strokes at the age of 43. With each stroke she loses memory. She dotes on her children and continues to love them as long as she can remember them. Such a loving acceptance in that woman. So in comparison, I have little to complain about. I never had children--not by choice. The biggest disappointment of my life. But I do love my husband, as long as he is around. He's getting up in age. Anything can happen as you know.
This stressful tijme of your life will end. You just have to get through it. Take care.View Thread
I'm so sorry to hear that your husband's personality has changed so much. You must not take it personally. It must be very hard. My mother who did NOT have a brain tumor would sometimes get very irritable with me when I didn't understand something that she was saying. Out of character for her. I would just sincerely apologize and let it go as she would continue to rant awhile longer. I just put it down to her frustration with herself. But she never called me a bitch. Must be so hard for you.
I'm so glad that you have something to look forward to by going to live with your sister. There aren't always good enough relationships to handle having a sibling move in.
I'm also really glad to hear that you are working with your clay at times. That is so very important. I spent most of 24 hours sleeping with day 3 of a severe migraine, except for 2 hours of it. I have been awake for the past 3.5 hours--mostly lying down or the pain gets worse. Never had such a long stretch of sleeping. My back hurts from it. As I write to you, I'm eating.
Must sign off now to lie down again. You have a good day. SaraView Thread
You should really talk to your obstetrician with your question or a qualified neurologist. You certainly don't want to have another stroke. Just because some other women tell you that they have had natural childbirth after their strokes doesn't mean much since you don't know what kind of stroke that they had compared to yours or if they were just plain lucky. I would investigate it further with the experts. And good luck with your natural childbirth.View Thread
You do understand about my pain. Thanks so much. So glad that you finally got beyond it. The doctors say that I may have this pain for the rest of my life since it was caused by my stroke.
It sounds like you both have had good positions, but with illness it can take everything you've got. So sorry that you don't have retirement funds and social security only gives you so much which you'll have to wait awhile for. Both my husband and I are self-employed, so there is no retirement for us unless we can save it. None for me to contribute since my medical bills and insurance payments took everything for years even before my stroke.
When you say that you want to go home, does that mean with parents, to a different state or where? You don't need to say the name of the state. It certainly sounds like a good plan for you, of course later on. How is Pete's personality these days? Hope it's still him in a lot of ways.
It's been wonderful to get to know you better. Of course it would have been better under far less bad circumstances. You have a good day too. SaraView Thread
You are doing so much. Don't feel guilty about taking some time for yourself. You NEED it to keep taking care of Pete. As far as the neatness, that is something that everyone faces when they themselves have a major health problem. And it follows that the caretaker also has that problem. It is a big adjustment. But if it is needed for your mental health, then take more time away from Pete to do the housecleaning.
When I had my stroke, for the first time, we've had to have a cleaning woman come in every 2 weeks. And now everything I I make goes to my medical bills. My husband has to pay for everything. I go to the Salvation Army for most of my clothes, sheets, blankets, bakeware, etc. I never go on any trips because I can't travel due to me illness. We haven't been to the movies since before my stroke. We rarely go out to eat. We aren't poor, but we've had to put away the maximum into our retirement funds. And my husband is still working past retirement age. I'm not complaining, just the facts. I don't feel in need of anything else. I am very disabled, but my husband is not dying.
I'm wondering what you and your husband used to do working, but please don't feel any need to say it, or you could be very vague. I just feel like I've gotten to know you better.
That neighbor who said that she could help has certainly been a big disappointment. If you call her again, you might mention a small favor like sitting with your husband while you have to go out. Maybe then she might feel that she can help out. I think that I would give her another call. What would it hurt and if she feels put on the spot--so what?
My 25 Botox injections did not work this time, and I have to wait another 2 and a half months to get another set of them while my migraines will keep getting worse. What a major disappointment. The nerve block and trigger point injections do help me a little bit which I get next Monday--a week later than usual.
Thinking of you a lot and hope that you will not get worn out. So sorry that there is so much on your plate. SaraView Thread
What does the doctor say about your more recent MRI not showing a stroke when the one that you had initially did show a stroke from what I believe you said? Also what does the AVM have to do with any of your symptoms? What can be done to treat your headahces and dizziness? You need to ask the doctor for the answers.
And you need to get medical treatment for your intense headaches. There are many different treatments for migraines, including a daily preventative migraine medication and abortive pain pills which should not be taken more than 2x a week or you risk rebound headaches.
Again, get your answers from your doctor, then you will know better how to proceed. Good luck to you.View Thread
Sorry to hear that you aren't able to get more help. You must take hour to 2 hour breaks from your husband even with no one around to help you, or you will soon find yourself sick and unable to continue caring for him. Am I right or perhaps not? Monitor yourself for overwhelm and take care of yourself. It sounds like finances are also a concern for you. I can't tell you how sorry I am for your situation. I will continue to pray for you, or if that's not what works for you, know that I will be sending you good energy.View Thread
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